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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

E Mail From Bayer Reguarding Aleve
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8 posts in this topic

Dear Consumer:

Thank you for contacting Bayer HealthCare regarding Aleve Liquid Gels. We appreciate your interest in our product.

We do not add any gluten to our products. However, we cannot guarantee that our products are 100% gluten-free as this product is produced in a facility that manufactures and/or packages other items which may contain gluten.

Comments such as your own help us meet the growing needs of our consumers. I certainly will share them with our Regulatory, Medical and Marketing departments for consideration.

Sincerely,

Frank Belinc

Consumer Advisor

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I do not believe I have ever used the gel caps, but I use the caplets all the time and I know for a fact, they are gluten free. Aleve is wonderful, I do only use it for 2 or 3 weeks at a time, 2 times a day, then I take a break from it. I also use Advil, Tylenol, Excedrin Migraine, Excedrin Tension (I just found I can't use this anymore because I break out from the red dye, but it is gluten free), and I have Equate Ibuprofen. Yes, I have many, I suffer major headaches, along with neuropathy. I do not take as much painkillers anymore now that I am taking Topamax, but I do still have them on hand.

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I called Tylenol and they sent me a list of products with gluten-free ingredients, but they wouldn't guarantee anything either.

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In practical terms, it seems that nobody will guarantee gluten-free for anything anymore. There have been too many lawsuits, so prudent legal advice is to say things like "we don't add any gluten [on purpose]" while denying any responsibility for any inadvertent contamination which may occur. Most manufacturers obtain at least some ingredients from third parties, and they don't want to assume responsibility for an error made by their supplier.

So, get used to hearing "we don't guarantee" anything.

My wife eats a few gluten-containing products, and stores them in the kitchen. We take precautions, but our kitchen is a "shared facility" and our utensils are "shared equipment." This is also true of just about every restaurant, no matter how celiac-aware they are. They have one kitchen, and one pool of utensils. They wash them, but it is a shared facility with shared equipment.

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yep, standard CYA statement. one that I will not let stop me from using aleve. as always, we have to make our own decisions, of course.

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Me too. As I stated above, I use Aleve. I have been taking it for the last week with no ill side effects, although, I have never taken the gel cap. I have neuropathy and sometimes need to take something for pain, I can't be afraid to take something for relief. I have always used Tylenol too. I have Tylenol for Arthritis in my cabinet now and use it often. As has been stated, many of these companies used to state they were gluten free, but now are saying

"we don't add any gluten [on purpose]" while denying any responsibility for any inadvertent contamination which may occur.
just as a CYA statement. For us, it's a judgment call. I used the product before and was fine, so I continue to use it and keep my fingers crossed.
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Me too. As I stated above, I use Aleve. I have been taking it for the last week with no ill side effects, although, I have never taken the gel cap. I have neuropathy and sometimes need to take something for pain, I can't be afraid to take something for relief. I have always used Tylenol too. I have Tylenol for Arthritis in my cabinet now and use it often. As has been stated, many of these companies used to state they were gluten free, but now are saying

"we don't add any gluten [on purpose]" while denying any responsibility for any inadvertent contamination which may occur.
just as a CYA statement. For us, it's a judgment call. I used the product before and was fine, so I continue to use it and keep my fingers crossed.
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Thats almost word for word what I got when I called aleve to ask them before purchasing it on the advice of my doctor for another issue....

My guess is they have a book and tab thru it looking for the word "gluten" then read it off the paper, its also what they send out in the emails, lol

Gotta love lawyers :angry:

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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