Posted 02 January 2004 - 08:48 PM
I don't know anything about DH, and I doubt that it's my problem since I'm reading about blisters and such and I just have some rashing and the wounds that I've caused myself.
Does anyone have the same problem? Or advice on what I can do? Please help.
Posted 02 January 2004 - 09:57 PM
I was having itchy scalp and redness and sort of a rash. . .it was nto fun at all. My hairdresser commented on it she goes "Does your shampoo have wheat in it?" Wow I thought. . .so I looked and it did! I stopped using it right away and my scalp is now fine. maybe you are using lotion or something that irritates you? that's all I have to offer. I am sorry to hear of your problem.
Posted 03 January 2004 - 08:48 AM
Posted 03 January 2004 - 10:24 AM
I agree, Shirley. This new board is going to take some getting used to, but I think I'm going to like it a lot. There are still, however, several features that I haven't figured out yet.
I mentioned my itchy scalp problem under the thread "How long have you been gluten-free and how are you feeling?". I won't repeat all the details here, just my question. Anyone know if salicylic acid is gluten-free? It's an ingredient in aspirin - a preservative and flavoring agent - and I think I read or heard somewhere that it is NOT safe for celiacs, but I can't remember the source. Anyway, after using Neutrogena's "Healthy Scalp" anti-dandruff shampoo only twice, my scalp began itchin' like crazy again. Neutrogena had e-mailed me a list of their gluten-free products and this shampoo is on the list, however, it contains 1.8% salicyclic acid. Salicylic acid is the active ingredient, the ingredient that's supposed to help prevent dandruff, but I'm wondering if it contains gluten and so only makes the problem worse for me.
I'm hoping that someone who reads this will have some info to share. Thanks!
Happy Day, everyone - Toni
Posted 03 January 2004 - 10:38 AM
Unless you are coming in contact with or ingesting a lot of gluten, I doubt that your itchiness is from DH and gluten, you may have an additional food allergy(or another allergy) that is causing your problem. Have you been checked by an allergist??
Good luck with stopping your itchies....
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 03 January 2004 - 05:47 PM
For those of us with DH, we should avod NSAID's like aspirin, ibuprofen and naprosin. It isn't that they are not gluten-free, for some reason they trigger a DH reaction. I found that out the hard way last year with a miserable root canal episode. When I went to my celiac specialist, I thought I had been glutenized and told him the meds I was on. That's when he told me that it was the ibuprofen I was taking (I was taking mega doses and it also caused temporary kidney problems!). He told me to stick with acetaminophen. (Too bad it doesn't work as well for me
Posted 03 January 2004 - 06:36 PM
That's interesting about the NSAID's triggering DH reactions. I took Aleve for two years (almost daily) for my headaches and joint pain, and although I did have some DH on my scalp (along with the psoriasis) I never had it anywhere else on my body until I stopped taking the Aleve. I now think the Aleve caused a lot of the burning feeling in my intestine I had as I was trying to digest my food. And Tylenol does not work well for me either....
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 04 January 2004 - 11:06 AM
I'll check into my soaps and lotions. And I plan on seeing a dermatologist when I have insurance again (less than a month).
Thanks a bunch!
Posted 04 January 2004 - 09:17 PM
Mariann: How nice to hear from you on this new snazzy message board! I've been thinking about you lately, wonderin' how the gluten challenge is going and when your biopsy is. YOUR itchies sound quite uncomfortable. I hope your biopsy is REAL soon so you can start focusing on feeling way better. When is your biopsy? I'd like to know so that I can send you my warm thoughts and some positive energy that day. You've stuck it out and I sincerely hope that you get a definitive celiac disease diagnosis. I admire your courage, Mariann, and will be glad to hear when you go gluten-free for life!
As for me and my itchies...I'm beginning to wonder if I'm reacting to something else in my diet, although I don't know what it could be. I haven't eaten any dairy since I became a vegan in 1990. And I'm not eating any soy that I'm aware of. I'm not even eating much corn except for Cascadian Frozen Corn every now and then, although I'll re-check all my food labels. I've never seen an allergist.
Lyn: Thanks for the infor re: NSAID's. I'm curious as to what it is about them that can trigger DH. I'll definitely stay away from them from now on. Hmm...every time I think I'm beginning to get a good handle on this gluten-free lifestyle, something new pops up. Sounds like using a shampoo with salicylic acid was a poor choice for me. I tell ya, I have a bathroom full of body care products to give away! Fortunately, I rarely take over-the-counter pain killers, but it's very good to know not to take ibuprofen. Thanks so much for responding to my question.
Filititi: I've found that it's best to call or e-mail companies when it comes to body care products because the ingredients lists are SO long and who knows what half that stuff is? All of the companies I have contacted have been very helpful and have responded right away. I use Dr. Bronner's soaps. All of them are gluten-free! I like their choice of fragrances and the fact that it's concentrated, so a little bit goes a long way. I hope your itchies have calmed down!
It's so wonderful to be able to talk to people who can relate. Take care - Toni
Posted 04 January 2004 - 10:12 PM
After reading the helpful posts of everyone on here, I checked what I'd been using...and I'll be darned, it was right there "wheat germ." This stuff I bought to stop my itching has been making it worse all along.
It really should have occured to me that that could have been an option, but I had no clue that someone would use the forbidden grain in my soap and lotion.
I gave the wheat infested stuff to my sister and I'll get some new stuff soon. Hopefully I'll feel better soon.
Thanks for your help everyone!
Posted 05 January 2004 - 01:35 PM
Filititi--have you tried a thick, creamy body lotion (gluten-free, of course) on your rash? If it's not full-blown DH, it might respond to being moisturized!
I hope everyone is doing well!
gluten-free since November 1, 2003
Posted 05 January 2004 - 07:24 PM
I appreciate the great advice though!
Posted 05 January 2004 - 07:51 PM
I always used Aubrey Organics, but there line is not gluten free. My skin is sooooo dry since going gluten-free and milk free, never had dry skin too much before, but I do now!
Posted 13 January 2004 - 09:25 AM
Thanks for a great site and keep the good info coming.
Posted 21 January 2004 - 06:48 PM
I do know that he reacted when I was using a shampoo with wheat in it. I believe the wheat shampoo contributed to a terrible case of cradle-cap that caused clumps of hair to fall out. (that and a vitamin deficiency that we've countered with a daily supplement.) So it is NOT only internal exposure to the offending foods that make folks react, in my opinion.
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