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How Long Did It Take Your Bloating To Go Away?


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23 replies to this topic

#1 nikki2008

 
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Posted 22 March 2008 - 11:14 AM

I'd appreciate any info about this.

Thanks! :)
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#2 itchygirl

 
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Posted 22 March 2008 - 02:55 PM

Does it ever go away? <_< Since I had surgery all I can wear are Woman Withnin plus size jumpers, or those huge Just my size lounge shirts-anything with a waistband is out.Everything has to be four sizes too big. I need a small portable tent that I can just stick my head out of :lol:
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I don't eat gluten and neither do my cats

#3 yolo

 
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Posted 22 March 2008 - 03:27 PM

I'd appreciate any info about this.

Thanks! :)


By completely going off all trace glutens it took me roughly a month to get rid of all bloating. Originally when I thought I had gone off all gluten (and had as far as I knew) I got rid of a great deal of bloating within 3 months. I also got stronger nails, hair improved and my teeth started to harden according to the dentist. Previous to when I seriously went off wheat and rye (when I was in my late 20's before I knew much of anything about all this) I noticed I would lose weight when I went on a rice diet--and gain it back when I ate wheat and rye -- almost immediately.

If you have been on a gluten free diet for a while and you are still having bloating you could have a yeast or candida overgrowth problem--or you might be eating something you are still allergic too. For myself I can't eat sugar or even dried fruit without getting a very smelly gas. Thank heavens for Stevia I say! A lot of pre-prepared food made for celiacs has a lot of sugar and/or bleached white rice which converts to sugar quickly. It is thus better to make your own when possible. And rely more on vegetables, some roots, some meat, some soaked seeds or nuts (to remove the growth inhibitor--8 hours soaking is enough) and some (non sugared) fruit.
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Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#4 nikki2008

 
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Posted 22 March 2008 - 04:29 PM

Thank you so much for your answer. Could you please explain what a growth inhibitor is?

If you have Celiac, are you more sensitive to sugar, because I've been eating a lot of (gluten-free) lollipops -- I've found they stop me from wheezing. The wheezing started about a month ago, as I became more run-down and malnourished.

I've been eating hard-boiled eggs and some white rice and I've wanted to add yogurt to my diet, but I'm trepidatious. There's nowhere to cook right now, so it's tricky. I would greatly appreciate any other suggestions you have. Thank you.
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#5 itchygirl

 
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Posted 22 March 2008 - 04:55 PM

Thank you so much for your answer. Could you please explain what a growth inhibitor is?

If you have Celiac, are you more sensitive to sugar, because I've been eating a lot of (gluten-free) lollipops -- I've found they stop me from wheezing. The wheezing started about a month ago, as I became more run-down and malnourished.

.



Have you had a chest x-ray and/or lung function test since the wheezing started?

http://www.pubmedcen...gi?artid=499158

This paper describes the necropsy changes in a patient with coeliac disease and respiratory disease and the pulmonary biopsies from 13 other coeliac patients with physiological evidence of a parenchymal lung disorder


http://www.ncbi.nlm..../pubmed/6101248

An association has been suggested between celiac disease and diffuse interstitial lung disease of the hypersensitivity pneumonitis type in several reports from Europe. The present report consists of a study of 18 North American, biopsy-proved celiac patients, who were compared with an equal number of control subjects balanced for age, sex, and smoking. The celiac patients showed no evidence of interstitial lung disease as assessed by chest roentgenograms and pulmonary function tests. However, a history of asthma or chronic cough was present in a higher proportion of the celiac than control subjects


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I don't eat gluten and neither do my cats

#6 yolo

 
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Posted 22 March 2008 - 05:09 PM

Thank you so much for your answer. Could you please explain what a growth inhibitor is?

If you have Celiac, are you more sensitive to sugar, because I've been eating a lot of (gluten-free) lollipops -- I've found they stop me from wheezing. The wheezing started about a month ago, as I became more run-down and malnourished.

I've been eating hard-boiled eggs and some white rice and I've wanted to add yogurt to my diet, but I'm trepidatious. There's nowhere to cook right now, so it's tricky. I would greatly appreciate any other suggestions you have. Thank you.


I have read that that is often the case that one is more sensitive to sugar when one has celiac. However like with anything it doesn't always happen that way. It seems in part to be due to how long you have been struggling with this without changing your diet. I have read that it helps against it happening if you were breast fed as an infant. Exercise also helps against this tendency too.

Have you tried eating root vegetables (you can just slice and boil them) and cooked vegetables? For now you may need to eat cooked foods. The lining of your gut may be extra sensitive. Taking soothing herbs like marshmallow root caps and slippery elm caps will help reduce the sensitivity. (You can also get them in bulk as powders and mix with cold water--then pour in some hot water and mix again using a fork in your teacup).

Later raw vegetables will be just fine and probably then you can add other items--like the soaked seeds and if you are lucky the nuts. But for now just do the basics and you will probably feel a lot better.

A growth inhibitor is what naturally coats the seed or nut to keep it from sprouting before it has sufficient water to grow. The thing is is that it makes the seed or nut harder to digest for humans--unless its soaked first.

If you have candida or some other fungal or yeast problem, whole grains are better than bleached ones like white rice. Try alternative grains like washed cooked quinoa, amaranth, teff, sorghum--as well as gluten-free corn and brown rice--though these last not constantly at first since in sensitive folks they may cause an allergy due to leaky gut situation caused by celiac.

If you suspect the yeast etc. overgrowth, try taking gluten free probiotic capsules and pao de arco capsules or boiled tea (10 minutes slow boil--1 tsp. per cup water).

Is there really no place at all to cook? I suggest simple soups if you only have a hot plate and a pot to cook with. You could have a little mini-refrigerator of your own if you live with others or have limited space. Be careful to not share pots, utinsils etc. if at all possible.

You need to use new pot holders and a cutting board and any wooden spoons or bowls. Any bowls or pots that have built up food from your gluten days have to go since otherwise you will get cross contamination (CC).

As far as the wheezing goes, I suggest you try using licorice root if you have low blood pressure, and a small amount of lobelia. The lobelia will calm your lungs down--but don't use very much since otherwise it can become an emetic. You might also want to try eyebright, and/or mullein as a tea. A bit of skullcap, chamomile, lavendar, rosemary, melissa or mint tea can also help calm the nerves--which often helps the lungs.

If you use the herbs, avoid any alcoholic tinctures since the alcohol is usually made from grains. Using herbs in bulk reduces the cost, just make sure its not cross contaminated with gluten!

Hope this helps.

Bea
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Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#7 tom

 
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Posted 22 March 2008 - 06:30 PM

For me, the bloating didn't go away until I quit all the OTHER foods that were also a problem.
Dairy & soy are the main ones I think.

Since quitting soy, 1/2 my pants are too big to wear!
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#8 nikki2008

 
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Posted 23 March 2008 - 07:44 AM

Thank you so much for the terrific advice. Would slippery elm lozenges be effective? Can I do anything besides elevate my legs for the leg swelling? Anything topical I can use for hives? How much do I really have to worry about CC; for example, if I get rice from a restaurant, do I need to be concerned with whether they just prepared anything with gluten? I never did in the past, but is the idea that once you have an attack, your body becomes sensitized? It's hard to understand how I could eat a whole baguette in December without any problem, and now I might get sick if I buy something at Trader Joe's that says "Prepared on machinery that uses wheat." Are celiacs able to eat in restaurants? Will I be able to have corn tortillas, for example, at a place like Chipotle? I know I'll have to change my lifestyle and start cooking, but right now I'm just so weak from malnutrition and having to get up 6 or 7 times a night to pee, and since I've stopped eating gluten, my mouth is very dry, as if it's filled with cotton, and I'm thirsty all night long.

It seems paradoxical for my legs to be swollen and at the same time, I can't quench my thirst. If I buy white rice from a Chinese restaurant, do I have to be worried about CC? Do you have any idea how long it takes to be able to eat raw foods, such as a salad again? I have found that lollipops stop the wheezing, but should I be concerned about the sugar?

One last thing -- if I still have some hives, does that mean the gluten is still in my system?

Again, thank you very much, I really appreciate the help.
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#9 itchygirl

 
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Posted 23 March 2008 - 11:48 AM

What does your doctor say about the leg swelling? And the thirst? Stuff with those symptoms (diabetes, kidney failure, congestive heart failure) are nothing to mess around with.... :(
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I don't eat gluten and neither do my cats

#10 yolo

 
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Posted 23 March 2008 - 04:49 PM

What does your doctor say about the leg swelling? And the thirst? Stuff with those symptoms (diabetes, kidney failure, congestive heart failure) are nothing to mess around with.... :(



Itchy girl is right, you should have yourself checked out. If you have kidney disease, congestive heart failure or diabetes you need to know.

However it really is possible for the gluten to be doing this to you or at least exacerabating your condition. Celiac is after all not just an allergy; it is an autoimmune disease that often precipitates other degenerative diseases. Exercise could also help. I get swollen legs if I get no exercise, as did my grandmother. However we are also at risk for kidney disease. This is why I got into using lots of kidney and liver cleansing and soothing herbs like uva ursi (for kidneys), dandelion root (for liver)and burdock root (kidneys and liver) and general intestinal tonics like yellow dock and Oregon Grape Root and pao de arco. The marshmallow root actually is very good for the kidneys as well as the intestines. Its also really important to eat a lot of green vegetables to revitalize your blood out as well as clean out your intestines.

Slippery elm caps are a lot safer than lozenges. Who knows what is holding the lozenges together?

It does come as a shock, but once you avoid gluten, if you have celiac, the more reactive you become to trace amounts. This is both a curse and a deliverance. The deliverance is more important -- however the curse is really an unfortunate pain in the ass but there you are. Its better to feel better overall and not risk getting a really serious degenerative disease (or two or three! etc.).

I got sick as a result of several CC's. I had basically avoided gluten for years but not the trace glutens. After a month of strict avoidance I started getting these shooting D episodes from out of nowhere (it seemed) and then got ill with bronchitis. Two more CC's (each time after I thought I was well again) and here I am with my bladder and kidney inflamed. Right now I still can't eat meat or fish without getting my urinary tract system all messed up. However its worth the trouble going completely off G since I am at risk for glaucoma, continued degenerated nervous system, as well as have aching joints and heart disease etc. if I continue eating the trace gluten.

The thing is that trace gluten from eating rice etc. prepared in pots or using dish-ware used for glutenous items can be a real problem. If you could talk to the owners of the restaurant, you might be able to arrange a deal for them to prepare your rice in a special gluten free pot with gluten free potholders and spoons etc. with strictly gluten free brown rice--after the food preparer and server washes their hands. It seems crazy but there you are, its a real deal as you will discover if you explore celiac.com. We are not making this up.

If you cook your own food however you wold have more control of the situation and you would start to feel better sooner since the very real probability of cross contamination would then be eliminated. If you can't cook yourself, maybe you could hire someone to help you? They could make a bunch of stuff and then freeze it perhaps?

Can you get tests for malabsorption? Its common to have malabsorption with celiac.

You thus might really need to be taking a good B complex (I like the gluten free co-enzyme B complex from Country Life taken away from food like early in the AM or late at night--best to avoid sorbitol which often has gluten in the sublinguals) plus vitamin D. I used to have a racing heart and aching swollen legs and feet for instance which went away since I started using the co-enzyme B complex. Taking digestive enzymes like bromelain/papain and pancreatin can help do wonders by the way.

Hope you are starting to feel better by the way! If not, well just hang in there.
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Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#11 nikki2008

 
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Posted 24 March 2008 - 05:45 AM

I just started taking a Centrum multi-vitamin. Is Centrum a good vitamin? It says they're gluten-free. I crush it and eat it in baby food applesauce because I can't swallow it whole. It lists all the B-vitamins. What about eating papaya instead of taking papain?

Thanks so much for your thoughtful reply.

One more thing: I think I'm going to start taking Citracal. Is that okay for one's stomach?

I'm also drinking one or two Ensure a day, so I don't want to OD on vitamins, but I'm so fatigued, I do think malabsorption is a problem.
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#12 nikki2008

 
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Posted 25 March 2008 - 01:57 AM

Thank you for your excellent advice. I'm going to pick up the B-vitamins you suggested. I have very very low energy after one week without gluten, except for small amounts I was getting by accident. I'm drinking one Ensure every day and taking a Centrum daily vitamin, but could you also please recommend some iron supplement that would be easy to absorb -- perhaps a liquid iron supplement. I'm a little concerned about taking that with the iron in the Ensure and the iron in the Centrum, but I'm so weak, I think I need more iron than I'm getting. Is there a liquid iron supplement that 's particularly easy to absorb? Or do you think it would be better to try eating some beans? I get painful trapped gas pockets, so I'm worried about eating beans now that I've stopped Beano, but I have a feeling I really need more iron. I haven't eaten red meat for years, or I would try liver. At any rate, I'm not sure if it would be easier for my body to absorb the iron from food or supplement right now. I used to have tons of energy before this gluten thing started, and I'd appreciate any advice about how to increase my energy level. Or does it just take a while after you've cut out gluten? Thank you very much in advance.
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#13 nikki2008

 
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Posted 25 March 2008 - 03:48 AM

I couldn't figure out why I'm so exhausted, then I just discovered that the Centrum multi I'm taking contains no iron, and I'm having one Ensure a day, but that only contains 25% of my iron, and I think I'm having absorption problems. My feet are swollen because I'm not absorbing enough protein, even though my heart is fine. Can anyone recommend a good bio-available iron supplement that won't upset my stomach or cause constipation, which is the last thing I want right now, because I have so much trapped gas -- otherwise, I'd start eating better. I don't eat red meat, but I thought I was getting iron from chicken -- I just looked it up, and see chicken has very little iron. Is there a gluten-free liquid iron supplement that's easy to absorb and gentle on the stomach? I have no way to cook right now, so I have to rely on food from Whole Foods, etc.
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#14 ravenwoodglass

 
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Posted 25 March 2008 - 05:46 AM

I couldn't figure out why I'm so exhausted, then I just discovered that the Centrum multi I'm taking contains no iron, and I'm having one Ensure a day, but that only contains 25% of my iron, and I think I'm having absorption problems. My feet are swollen because I'm not absorbing enough protein, even though my heart is fine. Can anyone recommend a good bio-available iron supplement that won't upset my stomach or cause constipation, which is the last thing I want right now, because I have so much trapped gas -- otherwise, I'd start eating better. I don't eat red meat, but I thought I was getting iron from chicken -- I just looked it up, and see chicken has very little iron. Is there a gluten-free liquid iron supplement that's easy to absorb and gentle on the stomach? I have no way to cook right now, so I have to rely on food from Whole Foods, etc.



I can't take iron so I will leave those suggestions to others but I want to ask about the issue of not having anyplace to cook. I am taking that to mean you don't have access to a kitchen. You may want to consider picking up a rice cooker or a crock pot. Perhaps that could give you a way to cook something without a stove and reduce your chances of CC from store prepared food.

I don't know if you are but if you are a college student you should let the school know of your diagnosis and restrictions. They will most likely either let you cook in your room or they will perhaps have dorms or spaces available with a kitchenette. My DD's undergrad school put her in senior housing her freshman year to accomodate her need for a private kitchen.

It is hard and it takes time to heal, I hope you are feeling better soon.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#15 nikki2008

 
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Posted 25 March 2008 - 11:54 AM

Thanks so much for your thoughtful response. Do you mind if I ask why you can't take iron? The reason I'm asking is because I'm about to buy some and I'm afraid it will upset my stomach or constipate me. I can tell I really need it because I'm very pale and weak and even if I didn't have a malabsorption problem, I realize I'm getting little iron from my food. Your suggestion is a really good one, but for the sake of speed, I was thinking of trying to find a restaurant with a rice cooker this afternoon and eating white rice fortified with iron, although I'm not sure how much that would give me. I'm wary of an iron supplement right now, because I'm already so bloated and have gas pains just from trying to eat simple foods like chicken, steamed vegetables, and hardboiled eggs. Do you have any idea how long it takes for the inflammation in the intestine to heal after you've gone gluten-free? Days? Weeks? Months until you start to feel better? Thanks.
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