What? Be sure that next endoscopy tests you for lymphoma (cancer) as well!
Seriously. You need to do some research as your knowledge of celiac disease is lacking. Did you fail the entire celiac panel? Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA? You have a family history, a positive biopsy, what more do you need? You do realize that this is not about just giving up gluten, don't you? We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)?
Endoscopy in 10 years? Who would even wait 10 years? This isn't colon cancer and polyps! Are you talking about a colonoscopy? Are you even sure you had an endoscopy?
Be sure you have your bones checked too.....and forget the breath. You might not have any teeth and implants will be out since your bones will be compromised.
Sorry, if I come on strong, but when I was diagnosed I had no tummy issues. A few months later, my bones began breaking. I was undiagnosed for a long time because of neglect not stupidity. So, I urge you to research this disease more! Hopefully you'll ward on another autoimmune disorder by remaining gluten free. Find what celiac blood tests were actually taken! Even if you do not think you have celiac disease, something has caused villi damage!
In addition to eating gluten-free, I attribute the following to knocking out my bad breath once and for all:
1. SmartMouth Activated Mouthwash (this is what really did it for me!)
2. Flonase Nasal Spray
3. Dr. Tung's Tongue Scraper
4. The obviously brushing and flossing twice daily (goes without saying).
I went in for an endoscopy to find out if something from my stomach/intestine was causing my bad breath. A biopsy during that procedure revealed that I had Celiac. I thought it was strange since I ate pizza, pasta, and other bread/gluten items almost every day without issue, so I decided to confirm the biopsy result with a blood test.
I took the blood test twice (once on a high- and once on a low-gluten diet) and it came back negative both times. I just assumed someone at the earlier biopsy lab must have messed up my analysis or accidently mistaken someone else's biopsy for mine, but after reading this thread it seems like my initial biopsy might have been correct all along.
My doctor suggested doing another endoscopy, but I didn't want to foot the bill for that. Also, my older brother has Celiac which was confirmed by both a biopsy and blood test.
Eating less gluten did seem to help a little with my bad breath, but SmartMouth Activated Mouthwash along with Flonase nasal spray and a Dr. Tung's tongue scrapper really did the trick to solve the bad breath issue.
I'm just assuming I have Celiac and eating "gluten conscious" until my next endoscopy in about 10 years. If that biopsy comes back positive again, then I'll be strictly gluten-free. I'm just glad I don't have many symptoms.
Hello cycling lady, have you noticed my picture is showing up as you? Have no idea why but it's rather disconcerting to see my picture and your words 😉 Do you know how to fix it? You seem to have far more experience with this board than I do
Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
Here is the link if you have never watched it.