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Support Groups In Phoenix, Az

4 posts in this topic

If anyone knows of, or is interested in starting a support group in the Phoenix area, please let me know. It is needed!


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I agree, Im in Phoenix, and just learning about gluten intolerance, do you know of any good doctors?


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Here is a list of support groups in AZ, I hope something is close to you :D


Chandler - Resource:

Contact: Mark Whitney

Tel: (480) 899-3379

E-mail:, or

Fountain Hills - Support Group

Contacts: Russ Boocock, or Emma Teeter

Sunshine Chapter (CSA)

16205 N. Boulder Dr.

Fountain Hills, AZ 85268-1519

Tel: (602) 837-1953, or (602) 820-5594

Payson - Support Group

Contact 1: Nancy A. Palmer

Payson Area Celiac Support Group

HC 2 Box 95-S

Payson, AZ 85541

Tel: (520) 478-4383

Contact 2: Jane Kendall

HCR Box 305-B

Payson, AZ 85541

Tel: (520) 474-6707.

Phoenix - Support Group

Contact 1: Russ Boocock

Sunshine Celiac Support Group

16205 N. Boulder Drive

Fountain Hills, AZ 85268-1519

Tel: (602) 837-1953

Conact 2: Walter Koncar

1920 E. Inglewood St.

Mesa, AZ 85203

Phoenix - Support Group

Contact: Pam Fuller

Celiac Support of Greater Phoenix (A CDF Connections Group)

Tel: (623) 587-8885 or (602) 493-8266



Sierra Vista - Resource:

Contacts: Ed & Leanne Hanson

465 Pinetree Dr.

Sierra Vista, AZ 85635

Tel: (520) 452-1774


Tucson - Support Group

Contact: Patty Ewing

Tucson Celiacs (CSA)

440 Cambridge Drive

Tucson, AZ 85704-7113

Tel: (520) 297-1834

Tucson - Resource:

Contact: Margaret Eldorado

3373 N. Calle Tortosa

Tucson, AZ 85750

Tel: (520) 298-2264



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    • Those could be celiac symptoms or they could be something else.  Just because celiac runs in your family, I would not jump to conclusions.  That could be dangerous!   For example, my niece presented with celiac disease symptoms.  She tested negative but they found that she has Crohn's (not that she can't ever develop celiac disease).  While a gluten free diet could not hurt her, it is not the cause of her Crohn's flare-ups.    I would not worry about his weight unless he is no longer on the growth charts.   There could be more related to his anxiety issues too. i would NOT recommend sharing prescriptions, especially on a 9 year old!  Dapsone is some pretty evil medication that can do some serious liver damage (but if you have DH or  leporisy, it might be worth the risk -- but I would think not for kids).  For DH, sticking to a gluten-free diet  is much preferred, but I will let one of our members who has DH comment on that.   Those with DH often do not test positive in blood work.  Best to get a skin biopsy (tricky on DH so read up). Please find a dermatologist  and/or a Ped GI who is celiac savvy.    
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