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What Types Of Reactions Do You Get When You're Glutened?


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24 replies to this topic

#16 sandpiper

 
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Posted 01 April 2008 - 06:21 PM

Hi!
I am relatively new yet to the whole gluten-free life, but I certainly notice when I slip up. First, there's the bloating. Ugh. I look pregnant, i swear. Next come the washroom "isues"...usually starting with an urgent case (or few) or D, followed the next day or so by C. If it's really bad, I get such severe abdominal pain and the D is so bad that I have to be hospitalized to deal with the pain and to avoid severe dehydration.

Mentally and mood-wise, I am a mess. I can't concentrate and become depressed and snappy (SUCH a joy to be around haha). I, too, feel "foggy", and this tends to last a couple of days.
I am SO glad I went gluten free!!! Even now when I get glutened, I am reminded that the daily annoyances of going gluten-free faaaaar outweigh the physical and mental symptoms I was living with for so many years.

Best of luck to you!!!

Glutina :)


Hi Glutina,

It sounds as if so many of us here are getting the same type of reactions (and that's not fun). You did mentioned that you get a rash on your forehead? Would you please let me know what this looks like? I have had some issues with breakouts on my forehead and don't know if I am getting a hold of some gluten somewhere, I have tried to do the best with checking all the foods/body products out, and after not eating gluten (atleast I don't think so) for a number of years, around 4-5, I can't figure out why I still am having these breakouts. Do wonder if I have some rosacea. Does anyone here have a problem like this or has been dx with rosacea? I don't have these breakouts all the time, and I have somewhat connected this to maybe being seasonal active. By chance do you have a thyroid disease?

Thanks for your help,
Susie
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#17 curlyfries

 
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Posted 01 April 2008 - 08:16 PM

I know I'm not the only one that started out dealing with celiac by going "gluten lite". I was too overwhelmed with all the restrictions at first and I still didn't have all the information needed to do it right. While I was "gluten lite" there were things I cheated on and didn't feel any effects. Pizza was one of those [but only if it was thin crust and only if it was one or two]. I don't know why, because I am one of those that gets the stomache aches, gas and bloating [ although not nearly as bad as it seems others of you get].

Of course now I know that other issues I have had are also triggered by gluten. The more I learned [ and realized that this is what probably killed my mom], the more I realized that I had to get serious about it.

We all stumble through it in our own way, but I don't think I would have totally "gotten it" without this forum and all these wonderful people.

Lisa
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#18 darlindeb25

 
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Posted 02 April 2008 - 03:43 AM

I agree with Larry, there is a big difference between accidental glutening and cheating on purpose. Having celiac disease is very serious and should not be joked about. Many of us went years without a diagnosis and have several other auto-immune diseases on top of celiac disease because of those mis-diagnosis's. If you cheat, then I feel you get what you deserve. I have been gluten free now for nearly 8 yrs and never once cheated. I was so sick before finding out about celiac disease that I never, ever had the urge to cheat. Not that I haven't mourned the foods I can't have, believe me, I still mourn foods. After nearly 8 yrs, I now have so many intolerance's, I wish I could be just a "normal" celiac, whatever that is!

So, in the first few years, if I got glutened, which was very rare, almost never, I had the severe stomach cramps and diarrhea. Over the years, when I got sick, it was usually a new intolerance rearing it's ugly head. Recently I found out I had been glutened over the years by Xanax, Pfizer had been telling us it was gluten free when it wasn't. I knew I was reacting to the Xanax, but I never realized it was a gluten reaction. In January, I was glutened by another medication. So now, I know my reaction to gluten is neurological. I will get a severe panic attack, my heart races, my blood pressure rises, some nausea, severe head pain, and nasty brain fog which doesn't clear for hours. I did research and found a gluten free Xanax, so I can take that for the panic and calm most of the symptoms, but the brain fog can last for more than 8 hours. This all usually happens within 12 hours or so of getting the gluten in my system--it's not immediate anymore like it used to be, but the minute it hits, the reaction is intense!

Please take your gluten intolerance seriously, this is your life we are talking about!
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#19 mftnchn

 
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Posted 02 April 2008 - 04:23 AM

I am getting increasingly clear symptoms with accidental exposure to gluten; I am very very careful but it still happens on occasion from CC or poorly labeled items.

My symptoms include fatigue, brain fog and this can be overwhelming. Now I get abdominal cramping, a bit of pain and discomfort, and some D. The first couple of times I was glutened, symptoms started 2 days later and lasted 2-4 days. Now the symptoms start right away and last a bit longer. My original symptom was C.

I take the diet very seriously; all it took for me was reading the literature about celiac disease. It scared me so much.

Adjustment to the diagnosis can be a process, and it is different for each of us. Certainly it is a major loss which we have to process through and that takes time. Lets be gracious to those who take the "a little at a time" approach to going gluten-free, even if that is not how we did or would do it. Our stories and encouragement can help them learn to be more strict, and I think works much better than criticism.
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#20 susieg_1

 
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Posted 02 April 2008 - 05:13 AM

i had an endoscopy but it came back negative for celiac. i am chronically constipated and was wondering what types of reactions you had/have when you've been glutened.

there are days i can eat pizza and feel fine. (i know i am not suppose to eat it but i generally get a rash on my legs when i do). sometimes i cant keep the craving down, lol!

today i had a bag of cadbury mini eggs and felt SO NAUSEOUS about 10 minutes after eating them. now i didn't throw-up but i had a little diahrea.
i know - TMI but i am really unsure as to whats wrong with me!

i also sometimes feel a weird haze (like i am all foggy) after i had corned beef the other day. i wasnt sure if that was a gluten thing.

First,my gastroenteroligist tells me that endoscopy can not detect celiacs and that biopsy test must be done in small intestine not stomach. I don't know what your Dr. did for test but you may want to check other dx methods for celiac. Do not rely on testing to tell you that you need to go on gluten-free diet, listen to your body and what makes you feel healthy!! Also, make your own pizza crust it is easy and you can make several at a time and freeze. Be sure toppings are gluten-free also. Wegmans has a wonderful method for noting gluten-free on labels and have many gluten-free items also Hormel website lists their gluten-free items. Hope this helps!
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Self dx celiac disease
Gluten free since July 2007
Clinical dx celiac disease November 2007
Self-dx Lyme disease May 2008
Lyme confirmed positive Western Blot May 2008

#21 susieg_1

 
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Posted 02 April 2008 - 05:18 AM

I agree with Larry, there is a big difference between accidental glutening and cheating on purpose. Having celiac disease is very serious and should not be joked about. Many of us went years without a diagnosis and have several other auto-immune diseases on top of celiac disease because of those mis-diagnosis's. If you cheat, then I feel you get what you deserve. I have been gluten free now for nearly 8 yrs and never once cheated. I was so sick before finding out about celiac disease that I never, ever had the urge to cheat. Not that I haven't mourned the foods I can't have, believe me, I still mourn foods. After nearly 8 yrs, I now have so many intolerance's, I wish I could be just a "normal" celiac, whatever that is!

So, in the first few years, if I got glutened, which was very rare, almost never, I had the severe stomach cramps and diarrhea. Over the years, when I got sick, it was usually a new intolerance rearing it's ugly head. Recently I found out I had been glutened over the years by Xanax, Pfizer had been telling us it was gluten free when it wasn't. I knew I was reacting to the Xanax, but I never realized it was a gluten reaction. In January, I was glutened by another medication. So now, I know my reaction to gluten is neurological. I will get a severe panic attack, my heart races, my blood pressure rises, some nausea, severe head pain, and nasty brain fog which doesn't clear for hours. I did research and found a gluten free Xanax, so I can take that for the panic and calm most of the symptoms, but the brain fog can last for more than 8 hours. This all usually happens within 12 hours or so of getting the gluten in my system--it's not immediate anymore like it used to be, but the minute it hits, the reaction is intense!

Please take your gluten intolerance seriously, this is your life we are talking about!
GREAT observation!! This is a serious disease that has very negative effects!! Having had this disease undiagnosed for 30 yrs and now finding out how badly my body has been damaged as a result tells me that this is not a disease to take lighlty!! I can now only try to repair the damage that gluten has done to my body. Thank you for your comments about the seriousness of celiac disease!!


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Self dx celiac disease
Gluten free since July 2007
Clinical dx celiac disease November 2007
Self-dx Lyme disease May 2008
Lyme confirmed positive Western Blot May 2008

#22 SueBee

 
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Posted 23 February 2010 - 09:48 AM

Does anyone get palpitations after eating gluten? Feels like they're in the upper stomach.
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#23 newgfcali

 
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Posted 23 February 2010 - 01:08 PM

joint pain & swelling, esp. hands, knees & ankles



Me, too, babysteps. Swollen fingers and ankles where I can't get my rings off and can barely bend my feet around. Weird.

Plus the usual symptoms mentioned above. Mine only last a few days fortunately.
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#24 JeanneA

 
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Posted 05 August 2012 - 01:06 PM

Hi, everyone. Decided to see what conversation I could find about this, as I've had an awful weekend. I'm in month 5 of gluten-free, my life having really changed 180 because of finally discovering what was behind constant pain, constip., diarhhea, migraines, insomnia. But then Fri. started with aching and swollen ankle joint---I realize now that was the beginning. Woke up Fri night with terrible stomach ache. Did teach all Sat morning but nothing since then. Normally play music for a church on Sun morning but called in sick this morning. My husband's the one who I think came up with the most plausible reason: had pakora (made with chickpea flour) in friend's restaurant on Thurs., and then had a leftover one Fri. I think they probably fried them in the same oil as they fried the samosas, in spite of my explaining what was necessary. The bloating, gas, nausea all weekend was so awful. Am starting to feel a little better now. Saw on another site that it's good to go DF for a little while while getting over being glutened, as the gut is temporarily so inflamed that you can be lactose intolerant for a little while even if you aren't usually. Anybody ever find this to be true? As soon as I saw that, I quit dairy, hoping just temporarily, as it doesn't usually bother me. So, wondering about the DF thing as well as I'd be glad for any other advice you all can give me about how to recover. Thanks for any support!
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Gluten-free and so grateful, as I can now live not only mostly free from the IBS that had started to get really bad, but also am now living almost migraine-free and insomnia-free.

Either gluten intolerant or allergic to wheat; time will tell. The important thing for me, though, is that I feel so much better. I feel like it hardly matters what the actual problem is at this point.

Also allergic to MSG, sulfites, and nitrates. Hypoglycemic and have Hashimoto's.

#25 Stephanie Young

 
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Posted 06 August 2012 - 02:55 PM

Errgh. Where to start. I get very hot in the face, almost ecsma like, and then I get the farts, followed by you know what...

I really don't remember much from my early childhood but I first started noticing some gluten intolerance symptoms as a teenager - and it got progressively worse - I'm 23 now, and i'm actually going to the doctor tomorrow for celiac tests - i've always thought I was intolerant until I realized I really shouldn't put it off since I've read about how much damage could be done. Wish me luck!
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