Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Menstruation
0

12 posts in this topic

Ok, I have a question but there is a lot of information so bear with me.

I have always had extremely bad menstrual cramps, so bad that I used to vomit or pass out.

I was told that I may have endometriosis and put on the pill when I was 16 to improve the symptoms (which worked). I have been on the pill for seven years and am ready to come off it. A few months ago I was diagnosed with celiac disease and have been gluten free ever since. My question is this: Could the two be related? Has anyone else out there experienced this? Now that I am gluten free could I go off the pill without my symptoms reoccurring?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I don't know of any scientific studies

but I too used to have D/vomit & almost pass out from pain w/menstrual cramps - not every month, but maybe 2 to 4x/year; other months just really bad cramps

now that am gluten-free, haven't had the D/vomit combination - still have cramps, but much milder. Also my breast soreness during PMS is much milder/almost gone (before going gluten-free, had been getting increasingly worse).

was on birth control, but haven't been for several years (and yes, the birth control did eliminate the D/vomit combination while I was on it)

I personally think gluten sensitivity, hormones & menstrual cycles are all linked somehow, and that I am more sensitive to gluten during PMS and menstruation. Just one person's experience. (There is a semi-recent theory that one significant purpose of menstruation is to 'clean' the body - get rid of any bugs living in the reproductive organs, etc. - could tie in to body trying to rid itself of gluten??) My drs tell me my uterus is 'tipped backwards' - don't know if that makes a difference either.

good luck, and may pain become less frequent in your life!

0

Share this post


Link to post
Share on other sites
Ok, I have a question but there is a lot of information so bear with me.

I have always had extremely bad menstrual cramps, so bad that I used to vomit or pass out.

I was told that I may have endometriosis and put on the pill when I was 16 to improve the symptoms (which worked). I have been on the pill for seven years and am ready to come off it. A few months ago I was diagnosed with celiac disease and have been gluten free ever since. My question is this: Could the two be related? Has anyone else out there experienced this? Now that I am gluten free could I go off the pill without my symptoms reoccurring?

I've seen quite a few sites that linked severe cramps and endometriosis to celiac disease try searching on google with keywords "celiac endometriosis" and you should find some. I had severe cramps starting about a year after i started menstrating. it was really horrible... I got a laparoscopy done to look for endometriosis when I was 23 cause I couldn't get pregnant (subfertility and infertility are also linked to celiac) anyway didn't find anything but was able to get pregnant a few months later. after my first pregnancy the cramps came back again but after the 2nd pregnancy they were alot milder and after the 3rd pregnancy I only have to take tylenol now to keep them in check most of the time! don't know what it was about the pregnancies that made the cramps get less but I sure am glad! anyway, never was on the pill so don't know the answer to that one. but you could try it and it might actually work!

0

Share this post


Link to post
Share on other sites

I always had horrible cramping growing up with my periods :huh: I would just curl up into the fetal postion and cry. In my later teens my periods actually stopped and would be gone for a few months at a time. When I got married it was very hard getting pg. because I wasn't ovulating anymore (doc. said) I had to take medicins to make me ovualte and get periods. I was finally diagnosed a year ago with celiac disease and my periods returned to normal without any meds. :lol: I still get bloated, pms, and sore breats, and sometime mild cramping (all normal symptoms BTW) but, the pain is not near what it was before. Good Luck! I hope it helps!

0

Share this post


Link to post
Share on other sites

I was not getting my period at all..then I went gluten-free. Then I started getting every 45 days about. Then last month it was like 36 days and now this month it came after 22 days? BUT, no real cramps or breast tenderness or anything. Is this normal to get your period this soon and feel this good?!

I always had horrible cramping growing up with my periods :huh: I would just curl up into the fetal postion and cry. In my later teens my periods actually stopped and would be gone for a few months at a time. When I got married it was very hard getting pg. because I wasn't ovulating anymore (doc. said) I had to take medicins to make me ovualte and get periods. I was finally diagnosed a year ago with celiac disease and my periods returned to normal without any meds. :lol: I still get bloated, pms, and sore breats, and sometime mild cramping (all normal symptoms BTW) but, the pain is not near what it was before. Good Luck! I hope it helps!
0

Share this post


Link to post
Share on other sites




I didn't get my first period until I was 15 and was very irregular. No horrible cramps or anything though. When on birthcontrol I was regular, but off birthcontrol I can go sometimes 45 days, sometimes 30, then the next time 60 days inbetween. I have gone gluten free off and on for the last 9 months and notice off gluten I am much more regular.

0

Share this post


Link to post
Share on other sites

I read once that something to try if you have terrible periods - is not eating reproductive products of other animals: milk, eggs ... and probably avoiding other high hormone influencing foods like soy.

I have not tried it myself...well, at least not for long...and I've only every had intermittent cramps. Good luck to you.

0

Share this post


Link to post
Share on other sites

Thanks for all the replies ladies :)

I have decided to go off the pill, I haven't been gluten free for long but hopefully my periods won't be as bad now. Its really interesting to learn that celiac disease and endometriosis/fertility problems are linked (yet another sign that my doctors have managed to miss!). I guess I can always go back on the pill if I need to if I need to. I really enjoyed reading your posts, you have all been really helpful.

Thanks again:)

0

Share this post


Link to post
Share on other sites

I've always had extremely painful periods (though not so bad that I was vomiting) but birth control helped a lot. I went off BC temporarily and found that the pain wasn't as bad, but my period was much heavier than it was before I ever used BC. I don't know if that was an effect of the BC or something to do with being gluten free. But it was nearly as annoying as the horrible pain, so back on BC I went.

0

Share this post


Link to post
Share on other sites

In response to this...sounds a lot like me. How long do all of your periods last now that you are off BC? I feel like in addition to the abnormalities of their frequency, when they do come, they really only last for 2 days and then are pretty much nonexistant. They kind of trickle off for the next 3 - 5 days with nothing really there. Is that normal that they only last that long?!

I didn't get my first period until I was 15 and was very irregular. No horrible cramps or anything though. When on birthcontrol I was regular, but off birthcontrol I can go sometimes 45 days, sometimes 30, then the next time 60 days inbetween. I have gone gluten free off and on for the last 9 months and notice off gluten I am much more regular.
0

Share this post


Link to post
Share on other sites
In response to this...sounds a lot like me. How long do all of your periods last now that you are off BC? I feel like in addition to the abnormalities of their frequency, when they do come, they really only last for 2 days and then are pretty much nonexistant. They kind of trickle off for the next 3 - 5 days with nothing really there. Is that normal that they only last that long?!

They last about 5 days...start with a a really light day, a couple of days heavier and then really light the last couple. I think it is normal, and I also think as we get closer to menopause (I am 42 and could be hitting peri-menopause) things start to change a bit anyways...

0

Share this post


Link to post
Share on other sites

I never had too much pain but i have extremely heavy periods that caused me to be severly iron deficient. Depo provera helps, but it reduces bone density and i only have a BMI of 15, so abit worried. Because celiac disease causes vitamin deficiencies, i wonder if this may be the reason i dont stop bleeding?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,341
    • Total Posts
      920,478
  • Topics

  • Posts

    • As a GI specialty nurse who also has celiac I can tell you that it can not be diagnosed by CT and rarely unless you have severe disease can it be diagnosed by colonoscopy.  Those that have had it diagnosed by colonoscopy have such because their MDs were above to get into the small bowel from the bottom and take biopsys.  Celiac damage is not seen in the large intestine.  Also many people do not have diarrhea, many have constipation or a 50/50 mix between the two.  Celiac has 300 connected symptoms and sometimes no symptoms at all.  It's called the " great pretender" because of this.
    • Okay, thanks! I am 24 but my husband and I don't plan on having kids. However, the more I thought about it, the more I think I should get one for my brother's sake. Especially after my doctor's office called this evening to say my bloodwork tested positive for Celiac. Guess I will be on this forum longer than I thought!
    • You just got diagnosed Celiac and are wondering how serious this really is. What if there is just a little gluten in your food? What if you use the same toaster for your gluten-free bread as your wife's/husband's regular bread? What if those french fries are gluten-free but they fry them in the same fryer as those nice gluten coated onion rings? View the full article
    • Hi, I've never been on a forum before but thought I might find some answers here.  I have never been tested for celiac but a nurse practitioner I saw a few years ago told me she thought I would benefit from a gluten free diet.  At first, I thought I could never do this but after some encouragement I did try.  I did feel much better after going gluten free.  She never tested me for celiac. I turned 50 years old last year and I had a colonoscopy for the first time and had three polyps removed.  The surgeon said that my colon looked like I was a chronic laxative user.  I haven't used a laxative for a very long time.  I was at the time drinking a natural tea to help me to have bowel movements.  Before starting the tea I had always had difficulty with bowel movements and never had them once a day but with the tea I was able to go once a day. At the end of last month I developed severe pain after I would eat (I had my gallbladder removed at the age of 19).  One night the pain got so bad my husband had to drive me to the ER.  My liver functions were high as well as a few other things.  They did a CT scan of my abdomen and pelvis that showed wall thickening of my transverse colon and minimal irregularity involving the transverse colon.  My descending and sigmoid colon were collapsed.  There were a few tiny mesenteric lymph nodes present on the right.  They diagnosed me officially with colitis but said that most likely I had a gallstone (even though I don't have a gallbladder) that had come from the liver and had gotten stuck in the common bile duct (it did not show up on the CT scan).  I usually have a high ferritin level too.  I've been home from the hospital stay for about a month now and still have tenderness in the epigastric area. Some of this may not have anything to do with celiac but was wondering if anyone has been diagnosed with celiac by CT scan or colonoscopy or if anyone has had the same problems that I have had and found out what has caused it.  I cannot see the gastroenterologist who saw me in the hospital for a couple of months.  Can you have celiac and not have diarrhea as I am just the opposite? Any help would be appreciated!  Thanks!  
    • I had an acne flair up after going gluten free but it ended up improving and some long-term back acne I had been dealing with actually went away.  I think going gluten free was a shock to my system and at first I actually felt worse but after about a month things got better. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,411
    • Most Online
      1,763

    Newest Member
    Aly46
    Joined