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Posted 23 March 2005 - 09:39 PM

My spells can happen while walking, standing, sitting, lying. Sitting here at the computer can be difficult. Alot of times I feel my upper body getting tired and weak. I feel like a ballon being deflated. At this time I lye down because I'm not sure if it's going to be a active spell.
How's your consentration(?) staying on task. Simple things I used to do can be overwhelming. If I have to get ready to go somewhere, but first staighten up the house, or pay a few bills, I find myself not being able to be on time because I stop to lye down. I was able to multi task before. I must be getting gluten from something. I know I have to get my head on straight, and tune back in with my body.
Just wondering, how do you put pictures with your postings??
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Posted 23 March 2005 - 10:10 PM


My mother, who passed away on Valentine's Day, suffered over 20 years with a condition known as Trigeminal Neuralgia. She had terrible pain along the nerve in her face. Her face really twitched a lot as she got older. They treated her with seizure medication, Tegretol, for a lot of years. It kept her pretty well stabilized but she had outbreaks when she really suffered and had to be given Vicodin for the pain. I feel like I inherited a lot of problems from her, she did have some symptoms of gluten intolerance but never got as bad as mine. This is one disease
(trigeminal neuralgia) that I hope I never get. I'm hoping by staying gluten-free that I can prevent it. Has anyone ever read about this condition? It is also known as Tic de leroux? Sorry about the spelling!
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The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller

Judy- Gluten Intolerant

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