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The One Symptom That Won't Go Away


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21 replies to this topic

#16 Maggie1956

 
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Posted 17 February 2005 - 04:12 AM

Thankx for that info hthorvald. I do get a lot of gas, bloating etc after eating any dairy. How long would I have to go without dairy to see if it makes a difference?
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SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.
gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004
positive biopsy -Nov. 2004

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#17 hthorvald

 
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Posted 17 February 2005 - 07:11 AM

I'm not sure, I'm not lactose intolerant any more (thank goodness). I stopped eating anything with lactose in it for the first couple of months after being diagnosed and then slowly introduced it back into my diet. I've had little problems since, but then again, I only eat yogurt and, occasionally, cheese.

I had a huge problem with eggs after I was diagnosed. Because I couldn't eat my typical oatmeal and english muffin, I switched to grits and gluten free bread. To change the diet slightly, I'd have a boiled egg everyother day. Boy did it tear up my stomach. I should try again, since it's been a few months, but am a little gun shy.

Good luck with your solutions.

Helen.
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Helen Kendrick
Gluten free since 5/03/04

#18 tom

 
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Posted 17 February 2005 - 06:20 PM

Thankx for that info hthorvald. I do get a lot of gas, bloating etc after eating any dairy. How long would I have to go without dairy to see if it makes a difference?

I saw great change in 2 days and felt a TON better in 5.
Gluten-free Casein-free diet is very common. (gluten/casein)
The weird part is that alleged non-dairy creamers actually are not. The ingred labels all include the phrase "a milk derivative" after the Sodium Caseinate listing.
But besides skeptically reading labels of products claiming "non-dairy", it isn't too hard. I use Silk brand soymilk in coffee, cereal etc and it's great.
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#19 melzie

 
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Posted 18 February 2005 - 06:26 AM

Hi all

Well right now I am in the midst of gettting a wrong diagnosis...I had my stuff sent to a specialist at the Mayo in Rochester, Mn and he looked at my biopsy and he isnt sure i have the disease..He ordered some tests I had the gene test and all the blood tests, all the blood came back neg so I am waiting for the gene test now and I had a bone scan so who knows..'

VEry frusterated now so I started drinking beer again and i havent had a problemn yet I dont want to attempt eating gluten yet till I know so who knows I shall know soon if I have celiac disease or not..

Crazy!!
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#20 debmidge

 
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Posted 20 February 2005 - 01:14 PM

Melzie, If I understood you correctly, you are drinking beer but avoiding gluten. Beer=gluten (unless you are drinking the special gluten-free beer).

RE: Cheese consumption. I've been lactose intolerant (severely) for over 20 years and cannot digest soft, moist or creamy cheeses -- like Ricotta or cottage or some muenster unless I eat a Lactaid pill with it. And the Lactaid pills can be "pot shot" meaning that they don't work all the way sometimes.

I learned that the harder in texture the cheese is, the less lactose it has. So a hard parmesan (a grating cheese) will have less lactose than american cheese slice. I don't know if Lactaid brand cheese is gluten-free.
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#21 melzie

 
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Posted 21 February 2005 - 08:20 PM

Hi..


I am on the gluten challenge right now which isnt all its cracked up to be....I have a Dr that dx me with Celiac and I have a specialist that said he isnt sure it is celiac disease??? I am so lost so yes i am drinking beer and that doesnt bother me but I had alsagna tonight and about 1 hour or so later and now I want to curl up and cry..My tummy doesnt like me at all...I am suppose to go to The Mayo in Rochester mn and have more tests but right now I am thinking screw the challenge and forget the Mayo..

Beer tastes great and it doesnt bother me, but doesnt mean I dont have the disease either..
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#22 debmidge

 
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Posted 22 February 2005 - 03:15 AM

Melzie,

Do you have symptoms other than gastro?
  • 0
Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003




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