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Gluten And Caesin Intolerant
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Hello, I went to Dr. Stephanie Cave (alternative med) in Baton Rouge, Louisiana about 2 yrs ago. My results showed that I am intolerant to gluten and caesin. Life was pretty hectic and I did nothing about my new findings. I would love to learn how to get on this diet. I know it sounds like gloom and doom, but, honestly, if this lifts the anxiety/depression/adhd at all, I am game. Scared to get my hopes up and miserable at the same time. I'm choosing to try. Anyone? Ty, Robin

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I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

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Hey! I'm from Louisiana...Walker to be exact...not but about 10 minutes from Baton Rouge.I had my test done at Ochsner in Baton Rouge.I was dx last week with Celiac.I'm giving this diet my best shot. I have been feeling so bad for months now.I spent an arm and a leg on Medical costs and I lost so much time with family and friends lately....because I felt bad all the time.If this helps...it will be worth it...hard ...but worth it!Hope you feel better soon.

Kay

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I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

My way of getting a handle on my diet is to stick to chicken/turkey, beef, vegetables including potatoes, nuts, eggs, goat cheese and little else. It's a bit like Atkins but including potatoes, and without the heavy fats/dairy. Or like South Beach without the dairy. I'd suggest you read both those diet books for ideas. Generally I have eggs for breakfast, chicken or beef and side dishes for lunch and dinner. Snacks are a banana, nuts, maybe a Larabar.

My doctors suggest I avoid any grains at all, including rices and pseudograins, soy, sugars, dairy, pork... So I eat very few things - but it's still a guessing game at times. Today I tried a goat milk yogurt, and I think the sugars got me. I'm blown up like a balloon. However, I rarely ever get the IBS cramps and nastiness I had before I went gluten free.

I was on antidepressants for awhile, but I don't think they helped. I went off cold turkey, which was a BIG mistake, messed up my brain chemistry and I was wonked out for a couple months.

hth somehow? Lori

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I had been dx'd as allergic to dairy and wheat from a diet test as an infant, but only off them for a few months. I went gluten and casien free in November, and i've been amazed at the difference. Within a week, 90% of my intestinal symptoms were gone. About 6 weeks in to it, I realized i hadnt taken exedrin in a month, and it used to be 3-4 times each week. My depression and anxiety started to ease about 2 months in to the diet.

So expect great things . . but be patient. There are worse things . . . i'm now on a diet so restrictive I can only eat 25 foods . . so you surely can do this! You can even find vegan chocolate if you look hard!

Good luck

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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