Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten And Caesin Intolerant
0

5 posts in this topic

Hello, I went to Dr. Stephanie Cave (alternative med) in Baton Rouge, Louisiana about 2 yrs ago. My results showed that I am intolerant to gluten and caesin. Life was pretty hectic and I did nothing about my new findings. I would love to learn how to get on this diet. I know it sounds like gloom and doom, but, honestly, if this lifts the anxiety/depression/adhd at all, I am game. Scared to get my hopes up and miserable at the same time. I'm choosing to try. Anyone? Ty, Robin

0

Share this post


Link to post
Share on other sites


Ads by Google:

More info:

I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

0

Share this post


Link to post
Share on other sites

Hey! I'm from Louisiana...Walker to be exact...not but about 10 minutes from Baton Rouge.I had my test done at Ochsner in Baton Rouge.I was dx last week with Celiac.I'm giving this diet my best shot. I have been feeling so bad for months now.I spent an arm and a leg on Medical costs and I lost so much time with family and friends lately....because I felt bad all the time.If this helps...it will be worth it...hard ...but worth it!Hope you feel better soon.

Kay

0

Share this post


Link to post
Share on other sites
More info:

I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

My way of getting a handle on my diet is to stick to chicken/turkey, beef, vegetables including potatoes, nuts, eggs, goat cheese and little else. It's a bit like Atkins but including potatoes, and without the heavy fats/dairy. Or like South Beach without the dairy. I'd suggest you read both those diet books for ideas. Generally I have eggs for breakfast, chicken or beef and side dishes for lunch and dinner. Snacks are a banana, nuts, maybe a Larabar.

My doctors suggest I avoid any grains at all, including rices and pseudograins, soy, sugars, dairy, pork... So I eat very few things - but it's still a guessing game at times. Today I tried a goat milk yogurt, and I think the sugars got me. I'm blown up like a balloon. However, I rarely ever get the IBS cramps and nastiness I had before I went gluten free.

I was on antidepressants for awhile, but I don't think they helped. I went off cold turkey, which was a BIG mistake, messed up my brain chemistry and I was wonked out for a couple months.

hth somehow? Lori

0

Share this post


Link to post
Share on other sites

I had been dx'd as allergic to dairy and wheat from a diet test as an infant, but only off them for a few months. I went gluten and casien free in November, and i've been amazed at the difference. Within a week, 90% of my intestinal symptoms were gone. About 6 weeks in to it, I realized i hadnt taken exedrin in a month, and it used to be 3-4 times each week. My depression and anxiety started to ease about 2 months in to the diet.

So expect great things . . but be patient. There are worse things . . . i'm now on a diet so restrictive I can only eat 25 foods . . so you surely can do this! You can even find vegan chocolate if you look hard!

Good luck

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined