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Got My York Allergy Results!
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5 posts in this topic

I finally got my food intolerance results. It's one thing to know that you feel sick after eating something but to have it in black and white through a blood test is something else.

It seems that my worst intolerance is to eggs...both the protein and the yolk. ............hhhhhmmmmmmmmmno. At least now I feel better knowing why I was so ill for days after having eggs. the next was milk, then wheat and gluten and a bunch of other things. Soy was listed as a low reaction but it really does a number on me and I have avoided having it. Some nuts but walnuts were ok. There was a lot of information there and I am going to try to the best of my ability to work out my diet. I am already feeling better and have not had diahrea just by avoiding gluten. I also put on 2 lbs! yeah....up to 94!

I went to the GI dr on Monday because of the IBS also acting up. He as pretty knowledgeable in gluten and wants to to a biopsy. At this point I don't want to have it done. He says that he needs it to make a real diagnosis especially since the trans glutaminase test was normal. the Gliadin AB IGg were high....but he said that's not enougn.

At this point I don't need the Celiac diagnosis.....feeling better without the gluten is good enough for me. I am not going to have the endoscopy. I may consider it when I move up North.... but then only at Columbia Presbyterian.

I am so happy I did this test. For me it was sooooooooooo worth the money. Although, I've been told not to rely on it 100%, I feel that it is helping me to get on the right track with my diet and therefore sooooooooo worth it.

Will keep you posted,

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Hi Mel:

I'm SOOOO glad to hear you got some useful info from the York tests, esp. to confirm what you already suspected. Knowledge is power. Now use all that to help yourself feel better. ;)

BURDEE

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Hello! Glad to hear your feeling better. Could you please tell me about the york test? I have heard about them, but I went to an allergy doctor, who gave me the skin prick tests, and said if Im allergic, it will show on these tests. I asked him about blood tests, and he said they arent reliable, how do I know what to believe? Just wondering if someone can help me with advice... thanks..

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Hello! Glad to hear your feeling better. Could you please tell me about the york test? I have heard about them, but I went to an allergy doctor, who gave me the skin prick tests, and said if Im allergic, it will show on these tests. I asked him about blood tests, and he said they arent reliable, how do I know what to believe? Just wondering if someone can help me with advice... thanks..

Hi Dizzy. I was about to ask the exact same question.

Also, does anyone know if this test is available outside America? I'm in Australia. :huh:

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Mel, If you are going to go glutenfree now, don't even consider the biopsy at a later date. You will start healing, and so the results might be negative. I am glad that you have answers, and that you now know what to do!

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    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of all grains, with the exception of rice which I reintroduced using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • I'm not sure I just had the endoscopy, and I've had a  songram. 
    • Thanks and I'm seeing a doctor in three months may have to make it sooner.    Thanks for all the replies.
    • Hey guys so question. I still am going through some of the motions to finally be diagnosed. I has a really bad case of acid reflux a few days ago and now i feel soo sick. Im still eating gluten because i got a negative biaopsy test but ive been told thag i more than likely still have it because its really hard to detect. Well i drank beer last night and had a poutine today stupid i know and now i feel soooo sick. And only felt really sick after the poutine. Now my question is can your symptoms get worse all of a sudden??  I have many other symptoms thaat read celiac deisease for most of my life. But since all doctors told me you have anxiety ibs and fibro at 28 years old. I just baiscally gave up and figured this was going to be my life feeling like crap for the rest of my life. Any thoughts??? Thanks guys. Sorry for the novel lol
    • A negative result from a biopsy that is. 
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