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How To Get Through A Celiac Attack?
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6 posts in this topic

Yesterday, I went out for lunch to a local Mexican restaurant and had a veggie hard-shell taco, plus chips and salsa. The people working behind the counter assured me they were all made from corn. Well, they lied.

All yesterday evening, I was bloated and tired and then, around 1am, I woke up with stabbing stomach pains and proceeded to spend the next 4 hours in the bathroom with severe diarrhea. I am a bit better today, but still bloated and nauseous.

Aside from drinking a LOT of water, is there anything I can do to get through this? How long am I going to feel awful like this? Should I be calling my doctor or going to the ER? This is my FIRST accidental gluten ingestion since my diagnosis last September.

Thanks for the support.

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There is nothing you can do to get over it but ride it out. As someone who works in an ER, do not go to the ER and you do not need to call your Dr. There is nothing they can do to help. Depending on the person it can take days to a week for that glutened feeling to leave. Everyone gets glutened at some point and soon you will learn where you can eat and where you can't. I know the people at a restaurant try to help and may think they know what is in the products, but this is usually not the case. Most don't even know what gluten is. I asked once if there was gluten in a salad dressing and the gut said yes there is sugar in it. You can always ask to see the ingredients as they will have boxes and packaging avalible in the back. Hope this helps. Feel better :)

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There is nothing you can do to get over it but ride it out. As someone who works in an ER, do not go to the ER and you do not need to call your Dr. There is nothing they can do to help. Depending on the person it can take days to a week for that glutened feeling to leave. Everyone gets glutened at some point and soon you will learn where you can eat and where you can't. I know the people at a restaurant try to help and may think they know what is in the products, but this is usually not the case. Most don't even know what gluten is. I asked once if there was gluten in a salad dressing and the gut said yes there is sugar in it. You can always ask to see the ingredients as they will have boxes and packaging avalible in the back. Hope this helps. Feel better :)

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I also wanted to point out they may not have lied about them being made from corn...there may have been a cross contamination issue! I can't eat the corn tortilla chips at our local mexican restuarant due to CC!

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The fried corn tortillas at any mexican restaurant are always suspect because they probably fry the wheat tortillas in the same vat.

My tried-and-true remedy is lots of hot mint tea (spearmint and/or peppermint). Something in the mint helps the stomach (medival remedy) and the hot is soothing and the fluid helps if you are loosing water. I use trader joe's mint medley tea but Celestial Seasonings' peppermint and MintMajic are also good and all gluten free.

~Laura

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I know no-one's replied to this topic in a while, but I thought I'd share; I haven't been diagnosed with celiac disease because my (now fired) doctor did the exams on a gluten-free diet, claiming that it wouldn't change the results! :blink: and as I have such a severe reaction to small amounts of gluten (my skin used to blister just from touching it), and I've been so ill all the time, even on the gluten-free diet, and a whole host of doctors (I've gone through quite a few!) insisted that it was Chron's, atrophic gastritis or just generally nasty stuff with no tests to back them up, and I felt absaloutly hopeless. I'm 19 and I've been so ill I had to drop out of collage and was on morphine for 2 months, and then I discovered the Specific Carbohydrate Diet (SCD) and I've been on it 2 months, and my god the difference! I can touch gluten and nothing happens, I've been able to go back to school, I've been off morphine for almost 3 weeks (I accidentally glutened), but the reaction was so much better! I haven't lost my memory, I haven't thrown everything up, I can walk and there was no blood in my stools!

I reccomend the SCD to everyone now, I've had so many doctors tell me they can do nothing further and that they're so sorry, but with this diet, it's all going away, and my Mum's sleeping again :D

Good look to everyone!

Kelly

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    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
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