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Looking For Help About Terrible Nausea
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Hi, all, this is my first post. First, I just want to say thank you--reading through all of your posts makes me feel not so alone...so thank you SO much.

Here's my story: I was diagnosed with IBS at 20, after several years of "weird" stomach issues (occasional nausea and diarrhea). I was put on Levbid and felt 100% better. 5 years later, I started feeling just awful this past September--constant diarrhea and nausea, which led to weight loss (I'm 5'5 and I now weigh 100 pounds because the nausea is so bad--not good). In November I was diagnosed with celiac disease through the blood test. I'm a very anal person, so I've been very strict with the diet since. Started feeling A LOT better, but still no weight gain, but now the past week I'm nauseous 24/7...any ideas on what it could be? I have an appointment with my GI in two weeks (earliest I could see him) and an appointment with an allergist in a week (maybe it's new food allergies? though I'm barely eating anything due to nausea and I STILL feel bad!).

Thanks for any input or help you can provide!

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I suffered from nausia for nine years so I know what you are going through. {{Comfort Hug}}

The best bet I guess would be to see those doctors, but in the meantime, maybe ask your doctor for some Compazine to ease the nausia until you see them. It comes in pill or suppository form. I have taken it for nine years, which is NOT a suggestion. I can't wait to stop taking it. But it does help. It has a generic form which is just as good called prochloraperizine.

I know how terrible nausia is. I avoided eating when I was 20-21 because it was so bad that I went down to 98 pounds and I was 5'5. Just the mere thought of food would set me off. But compazine helped immensily.

I hope you feel better! ;)

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Thank you so much for your reply; I can't believe you've been nauseous for nine years--I'm so sorry. I've been dealing with severe nausea for a week, and I'm already super depressed and upset, so I can't even imagine nine years.

I'm a big chicken about taking new drugs because my stomach is so sensitive--do you have any side effects on Compazine? Thanks for suggesting it! It's nice to know that there's something out there that will help with this nauseousness.

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So is mine. ;) My tummy is so sensitive to medication but Compazine had no side effects with me, minus a little drowsiness the first couple of times I took it, but believe me, it wasn't bad compared to nausia that I get. Compazine is about the strongest anti-nausia drug you will find. At least that's what my educated doctors tell me. It wipes it out. Believe me. It will probably also help with the diareah becuase it has a small constipatant factor with it. Not enough to block you up completely though. I used to call Compazine my best friend. But now I have been on it so long, I am wanting to be completely drug free. If only the nausia would completely leave so that I could do that. Hope you feel better soon! Keep me posted with what happens. :)

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This might be a stupid question for the writer of this post so please pardon if you are a male (I didn't catch your gender)...but if you are indeed female have you ruled out pregnancy?

I'm sure you have if you're a woman but I just wanted to check. When I feel sick that's the first thing my doctor/friends ask me.

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Actually, I get this question a lot whenever I go through these bouts of nausea; nope, not caused by pregnancy.

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Is the nausea all the time or mainly after you eat?

If it is when you eat try taking enzymes before, during, and after your meal it helps alot with digestion and absorption of food and the level of nausea that I get now is 10 times better.

:) Hope you all feel better

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The nausea is pretty much all the time, though it is worse after I eat. I'm seeing my gastroenterologist in a week, so I'll have to ask him about the digestive enzymes--it sounds like they do wonders for some people. Thanks for the input!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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