Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Swollen Lymph Nodes
1 1

14 posts in this topic

Anyone else with celiac have swollen lymph nodes sometimes that you think are just from the celiac? I know that some other autoimmune diseases can cause them, such as lupus. So I was just wondering.

I have swollen lymph nodes in my neck. They've been there for almost 3 months. And have not gone away. The doctor ruled out any kind of infection and didn't seem concerned about anything else. I called back twice last week and I managed to get an appointment for next Tuesday for further diagnostic testing.

Just wondering if anyone has had them.

Thanks.

Dee

0

Share this post


Link to post
Share on other sites


Ads by Google:

As far as I know, swollen lymph nodes are always an indication of an infection somewhere. Obviously, your doctor can't have ruled out every kind of infection if he hasn't found the cause yet.

You should be concerned about the swollen lymph nodes, and your doctor should be as well!

I had swollen lymph nodes frequently when still eating gluten. Of course, I would have had an inflamed intestine, and probably an inflamed stomach as well.

0

Share this post


Link to post
Share on other sites

Afew times ive been to the doctors and they have said i have swollen lymph nodes, yet i didnt have a sore throat or infection that i knew of.

0

Share this post


Link to post
Share on other sites

I had swollen nodes for years, in neck and groin mostly. Doctors always attributed it to my then undiagnosed DH and the lesions from that. I do know they have finally gone down but it did take a long time gluten-free before they did.

0

Share this post


Link to post
Share on other sites

My lymph nodes are swallon right now too. They seem to get that way when I'm run down. Also a change in seasons always takes it's toll on me. The way I'm feeling right now is if I don't rest and take it easy I'll end up getting a cold. So I'm planning on resting this weekend.

When my kids were small and I go in for a doctors check up the doctor would always say that they were swallon. He would say to me, Tell your husband to help you out and get more rest. ;) I think my husband thought I was making it up.

Gail

0

Share this post


Link to post
Share on other sites




Anyone else with celiac have swollen lymph nodes sometimes that you think are just from the celiac? I know that some other autoimmune diseases can cause them, such as lupus. So I was just wondering.

I have swollen lymph nodes in my neck. They've been there for almost 3 months. And have not gone away. The doctor ruled out any kind of infection and didn't seem concerned about anything else. I called back twice last week and I managed to get an appointment for next Tuesday for further diagnostic testing.

Just wondering if anyone has had them.

Thanks.

Dee

0

Share this post


Link to post
Share on other sites

Well, I am in the same boat you are..I had lymph node removal to rule out lymphoma. they still do not know what is going on..other than no lymphoma. It is very possibly you may have a one of many underlying conditions that is or can be associated wtih celiac disease. I guess you need to see if you are posing other symptoms. (night sweats, fevers, rash etc)

0

Share this post


Link to post
Share on other sites
Anyone else with celiac have swollen lymph nodes sometimes that you think are just from the celiac?

I've had swollen nodes for years, since I was kid (40+ years). For years it was mostly in my neck and groin. Several years ago I began getting deep, painful, cystic abscesses in my face. That was one of the things that finally drove me to the next county to find medical care that cared. I just couldn't stand having my face torn up any more.

Once I went off gluten, my face cleared up, and I've had hardly any abscesses. I'm just getting over a miserable round of bronchitis, so my glands are swollen somewhat, and I've got some inflammation going. There is undoubtedly a connection between the systemic autoimmune response of celiac disease and the swollen glands.

0

Share this post


Link to post
Share on other sites

I have had swollen lymph nodes in my groin area for years. My doctor's explanation varies from time to time; the last time he said it was because I had mononucleosis when I was a teenager (he had it too, and has chronically swollen lymph nodes, as well). Once you have mono, the virus stays in your body forever.

Of course, I'm not sure if this is what's going on with me. It may have something to do with the celiac and always having internal inflammation somewhere.

0

Share this post


Link to post
Share on other sites
Well, I am in the same boat you are..I had lymph node removal to rule out lymphoma. they still do not know what is going on..other than no lymphoma. It is very possibly you may have a one of many underlying conditions that is or can be associated wtih celiac disease. I guess you need to see if you are posing other symptoms. (night sweats, fevers, rash etc)

Haven't been on here for a few days!

I am a little concerned. I had night sweats, but that was whenever I was glutened. The night sweats have pretty much disappeared now that I've been gluten-free for a while. It sounds silly, but I hate to wait and see if other symptoms show up. The swollen lymph nodes are still there. They don't come and go. I realize it could just be an autoimmune relation, such as with Lupus (people with lupus or RA can have swollen lymph nodes. So the person who wrote about the inflammation connection is probably correct.) But I just wish my doctor could rule stuff out and come to the conclusion that it's just related to the celiac.

Also, when I went gluten free at first I thought for sure I'd loose weight. I cut out a lot of sweets and all that fattening food. I was gluten free for over a year and never even lost 1 pound! I was soooo depressed about that. But this month I've lost about 10 or 12 pounds. I'm very happy about that, but also a little concerned. And it's not because I'm trying. All I do is sleep. So there's another concern. I can't seem to make it through the day past 2:30. I'm so exhausted-- you know, like when you're glutened. But I don't think I'm having cc issues either. I don't know.

Thanks for your replies. I think everyone here is right-- there's definitely an autoimmune connection.

0

Share this post


Link to post
Share on other sites
Haven't been on here for a few days!

I am a little concerned. I had night sweats, but that was whenever I was glutened. The night sweats have pretty much disappeared now that I've been gluten-free for a while. It sounds silly, but I hate to wait and see if other symptoms show up. The swollen lymph nodes are still there. They don't come and go. I realize it could just be an autoimmune relation, such as with Lupus (people with lupus or RA can have swollen lymph nodes. So the person who wrote about the inflammation connection is probably correct.) But I just wish my doctor could rule stuff out and come to the conclusion that it's just related to the celiac.

Also, when I went gluten free at first I thought for sure I'd loose weight. I cut out a lot of sweets and all that fattening food. I was gluten free for over a year and never even lost 1 pound! I was soooo depressed about that. But this month I've lost about 10 or 12 pounds. I'm very happy about that, but also a little concerned. And it's not because I'm trying. All I do is sleep. So there's another concern. I can't seem to make it through the day past 2:30. I'm so exhausted-- you know, like when you're glutened. But I don't think I'm having cc issues either. I don't know.

Thanks for your replies. I think everyone here is right-- there's definitely an autoimmune connection.

0

Share this post


Link to post
Share on other sites

Your lymph system is the "great custodian" of the body. Always cleaning crap out. It could be that they are moving toxins out. You can help them along by doing rhythmic exercise like a mini trampolin or even walking helps.

0

Share this post


Link to post
Share on other sites

I am going through an incredibly painful swollen lymph node problem recently. It hadn't occurred to me that it could be celiac related! But who knows? It's in my left groin and it's so painful, worse when I sit or drive, at times so bad it has brought me to tears. I've been going through some skin cancer issues, and had a questionable lesion on my left shin, so I went to have that biopsied...thought for sure it would come back positive and that would be the cause! Before the results I could not endure the pain and I went to my rheumotologist, she said not lupus, osteoporosis or joint related and thought it had to be related to the skin lesion, rx'd pain relievers and heating pad. Biopsy was precancerous. ??? The swelling is still there, the pain has been a bit better the last 2 days, but then again, now I have rx pain meds! I believe I am pretty meticulous with my diet. I can't even trace any cross contamination. Although I have noticed looking a bit bloated and feeling gassy, so maybe it really could somehow be abdominal inflammation in some way. That would be the closest lymph nodes, I think...

Thanks for any input and for letting me vent...

d.

0

Share this post


Link to post
Share on other sites

I have been gluten free for three years and I had never *noticed* any neck swelling... but recently at a routine appointment they noticed my neck was swollen. Thyroid ultrasound and thyroid blood work was good. I went to my primary care doctor and she did some blood work. Slight elevation in platelets, elevated C reactive protein, somewhat anemic. Going to GI doctor tomorrow to get some more input into this. Tracing my steps, I bet I cross-contaminate myself way too often as the husband and I eat out too much. I guess we will see....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      104,665
    • Total Posts
      921,656
  • Topics

  • Posts

    • You're welcome! Yes, I too, hate waiting for lab results. Ugh!
    • I understand this is not a doctor's office and that I need proper testing done to rule out Celiac disease, however, I am stuck waiting until November to even see a GI doctor. So I need some suggestions soon on which test to go for first and what to do as I wait. Also do note, I am 28 years old.

      Right now, the most suspecting culprits to my symptoms have been Gallbadder, Celiac disease, and IBS. I have also been recently diagnosed with pre-diabetes and I am obese.  My Ultrasound and CT scan have all come up as normal and no signs of gallstones. However, I was in extreme pain as my upper abdomen was examined during the ultra sound. My white blood cell count also seems to be high at 12,000 but all blood work came back normal for liver and everything else.

      Symptoms included are: diarrhea
      yellow-stools (Sometimes foul smelling but always sink)
      light gnawing pain in area a few inches above belly button
      burning in chest
      sometimes pain below upper right rib cage.
      Tenderness all around the upper abdomen, but more so on the right and center.
      burping frequently after meals
      Gassy
      bloating in abdomen The pains used to come and go for the past few years as something very mild, but then the yellow stools happen at least four months ago and at a constant rate. Everyday it is either yellow or orange.  Sometimes the stools are lose and other times they are not. Two months in, I was finally diagnosed with pre-diabetes and have been having a strict low calorie and non fatty diet.

      So far the upper right pain has subsided but the pain above my belly button would continue. The gassy and bloated feeling would come and go as well. I get severe heart burn after almost every meal. But I felt it especially after eating whole wheat sandwiches or whole wheat pasta. I however don't feel it when I eat a Nature Valley granola bar, or pack of peanut butter crackers. I also had a chicken and vegetable stir fry with soy sauce cooked in that also had little effect on me. A bowl of cereal also made the heart burn act up pretty bad. I sometimes feel numb or light headed after various meals. Especially larger ones. In fact, it seems the more I eat, the worse I feel. But the less in the stomach, the more the pain above my belly button starts to act up.

      It is usually in the morning and afternoon I feel the most with gas and bloating. Especially after any large meals from the previous day. Despite the diet and work outs I have had, nothing has changed the stools. However, taking fish oil pills has greatly reduced the pain in my upper abdomen as well as the pain  in the the area above my belly button. My question now is, is there a very likely chance of this being celiac disease? Should I go on a gluten free diet to test since I Have to wait so long? Also, which test should I ask the doctor for first, as it will take a GREAT deal of time to pay off each one. Colonoscopy, HIDA scan, or endoscopy. 

      Again, I understand this isn't a site to get compete medical advice or to know exactly what my illness is, but I am trying to narrow down the possibility or what is most likely. If this has a chance of being celiac disease, I would rather know sooner than later.
    • Thank you very much for all the info Squirmingitch. The doctor told me as we were talking he was going to order some tests with urine so I don't know why he didn't mark that. Maybe he forgot as we were talking? Duly noted about the bladder Cancer to watch out for too. Doctor said it will take about a week to get the lab results back usually from this lab. The wait will seem like forever I'm sure. Yes I will press to have the other tests done too if this one comes back negative.
    • http://www.cureceliacdisease.org/screening/ Was your hubs tested for total IgA to see if he's IgA deficient? Read this thread: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83660
    • Yes, bone density problems are all part of the celiac "umbrella" so to speak and yes, osteoporosis tends to happen more rapidly and at earlier ages than normal when malabsorption is happening. At age 43, it's not normal to have osteoporosis as you describe so that's another part of the jigsaw puzzle. Time to receive blood test results back from the doc are entirely dependent on the particular lab they were sent to. Yep, it's time for you to start keeping a very close check on the PSA in light of your father having had prostrate cancer. I would think you should get a PSA every year. I really would have liked to see him do a urinalysis. With the prostrate cancer your father had, it would seem a close watch should be kept on you for bladder cancer as well. The first symptom of that is blood in the urine but it's generally microscopic before you're ever able to actually see it. That happens to be the 8th most common cancer in men & it's moving up in the rankings. I know this because my hubs had it. The good news is that it's also one of the easiest and most successfully treated provided it's caught early. Certainly starting @ age 50, men should see a urologist every year. BTW, in the last year before I found out I was celiac, I turned up with microscopic blood in my urine. I got it checked out thoroughly since I know about bladder cancer & all tests, ultrasounds, cystoscopy, CT scan etc... turned out fine. The docs were stumped & finally said, "apparently that's just what your body does". Guess what? That's not "just" what MY body does. Once I went gluten-free, I have had no more microscopic blood in my urine. Interesting eh? Before now I didn't realize you are in Canada. The doc didn't do the full celiac panel but I understand the initial screening protocols in Canada only order the TTG but if that comes back negative be sure & press for the full panel as cyclinglady said. We have several here who tested like cyclinglady so it's not a rare thing, it's just not the norm. I'm glad he's doing the B-12 & Ferritin -- those can be big clues.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,663
    • Most Online
      3,093

    Newest Member
    Steph0903
    Joined