Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gained 15 Pounds 2 Months
0

24 posts in this topic

I have Celiac and also found out Diabetes 2, the Doc put me on the med Actos for the Diabetes but it is making me gain weight really fast and im getting up in the middle of the night to eat, anyone else have this problem??

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am not diabetic but I am getting extremely frustrated with the weight gain. I have been gluten-free for several years but have been consistently gaining the past 7-8 months. According to my scale, I gained 10 pounds in 10 days! Is that possible? I would think I'd have to eat 24/7 to gain that much in that short period. I can barely fasten my jeans, my stomach is so bloated. My 18 year old son asked if I was pregnant. I exercise several times a week. I have not gone through menopause so it can't be related to that. I am about to SCREAM! <_<

0

Share this post


Link to post
Share on other sites

I gained about 17 lbs in the 6 mos. I've been gluten free. :( I'm getting disgusted with myself. I try to lose but it doesn't work, I cheat too much as I don't have the will power I had when younger.

mopsie

0

Share this post


Link to post
Share on other sites

I can feel your pain. :( I had dropped about 15 pounds when I became ill, and was diagnosed Celiac in Sept 04. Since October, I have gained 25 pounds. I am also diabetic, Type 1, but I think my weight gain is attributed to the amount of bread that I have added to my diet. Since there are not many fast food places we can go to, I have been taking my lunch to work, usually a sandwich with the homemade bread I make.... I rarely ate sandwiches before! Plus, as my health improved my appetite increased considerably. I am also struggling with trying to fit into my clothes.... most of my pants no longer fit and I am reluctant to go shopping for new clothes because I am hoping to lose 10 pounds by curbing my appetite and getting into an excercise routine. I am hoping that within another month I can adjust my diet to more appropriate foods and stay away from the breads. This should improve my blood sugar as well. Has anybody out there been able to shed the weight they have gained as a result of Celiac Sprue?

0

Share this post


Link to post
Share on other sites

Wow, you're all going to hate me. I've been gluten-free since late Sept. 2004 and I've lost about 8 lbs now, without trying. The major difference for me is I'm not eating hardly any "bread" products. Almost no bread, cake, cookies (yes I know there are tons of gluten-free products). I do have starches.... rice, potato, pasta (very rarely).

When I found out I had to be gluten-free I took that as a good time to change my entire diet.

Susan

0

Share this post


Link to post
Share on other sites




I've gained weight too since being gluten-free. I think part if it is because I over-compensated with the food I WAS allowed (rice, potatoes, gluten-free pasta, and now Manna from Anna bread) in place of the food I'm no longer allowed to have.

When I explain to folks about Celiac disease and they ask me the symptoms, I tell them one is unexplained weight loss... then I look down at me and say, "But I didn't GET that one!!" haha

FYI... the pastas we're allowed have a higher "glycemic index" meaning that on any sort of low carb or diabetic diet, they're actually WORSE than regular pasta.

I guess it was about the time I had to go gluten-free that I discovered risotto... my new favorite food... cheesy sticky rice... what's not to love?? It takes all my will power not to make it regularly!!

0

Share this post


Link to post
Share on other sites

My problem was my lifetime habit of eating everything on the table. For 43 years I was the one who ate constately and hardly gained a pound. Now that my gut has healed, I can no longer eat to excess and stay thin. I've discovered that I can indeed survive on smaller, normal portions. This has allowed me to loose about 1/3 or my gain, putting me about where I want to be - no longer rail thin, but not too round. I've also discovered I can't easily tell the difference between hunger and thirst. Now when I'm hungry betwen meals I drink a glass of water before going to the pantry. I also have reduced significantly my consumption of gluten-free substitutes for cookies, cakes, etc.

0

Share this post


Link to post
Share on other sites

A major part of my problem is that glutenfree flours have more calories than wheat flour. Since I figured out how to make yummy devil's food cake and chocolate chip cookies, I can eat the whole batch. I feel deprived, since I cannot eat whatever I want, so I overeat what I can have. It's a vicious circle!

0

Share this post


Link to post
Share on other sites

I was put on Actos about a year ago for pre-diabetes and I gained 14 pounds in a month. You may want to get back in touch with your doctor. I don't want to scare you, but Actos is very hard on a person's liver and the information I received from my doctor was to contact her immediately if I noticed a great deal of weight gain rapidly because it could be water retention/swelling from liver issues. I went to my doctor when I gained that weight and she immediately took me off of Actos because of concerns about it affecting my liver function; I also took some liver tests when I went off of it to see if any damage had been done. I would highly, highly recommend getting in touch with your doctor and ask to be checked and/or put on something else. If you can stomach it, Glucophage is a diabetic medication that is not in the same class as Actos or Avandia; it may hurt your tummy for a while, though, and also requires some liver function monitoring but it doesn't seem to be as hard on someone's liver as Actos or Avandia. As an aside, I ended up going off of all of my diabetic medications because they were so hard on my stomach and I already have horrible stomach issues. I was not in full diabetes yet, so if I could get my diet and weight under control, my doctor felt that I wouldn't need the meds (my diet and weight are not yet under control, but I have lost a few pounds recently). Just be prepared for some significant GI issues with glucophage or metformin if that is what you end up taking. :)

0

Share this post


Link to post
Share on other sites

You guys will hate me even more. I have lost 40lbs in the last year since going gluten-free. Because of the celiac disease I really watch what I eat and make sure I exercise regularly. Yes it is hard and it takes a lot of self-discipline but I have no other choice. I felt so awful eating gluten that my life had hit rock bottom and I almost lost everything. I never want to go back to that again. We have been dealt a bad hand with celiac disease but we have to make the best of it. I can do things I was never able to do in the first 36 years of my life. If it means giving up the gluten to finally feel alive then so be it. I'm not about to waste the next 36 years of my life. There is hope.

Ianm

0

Share this post


Link to post
Share on other sites
:o I have the same weight gain problem, also. I am trying to abstain from lots of gluten-free carbs that are high in calories and fat. I think that it is a" basic 'count your calories as if you were not gluten free. I am giving it a whirl to see if I can lose sensibly on fruits anf vegetables(FRESH)AND lean meat.
0

Share this post


Link to post
Share on other sites

I started the SCD diet last week, and the weight is already starting to come off. When I first went gluten-free I lost 45 lbs. ~ then put it back on over the past 10 years. I was eating gluten in many sources that I didn't realize, and for me, eating gluten = weight gain. Over the past 6 months I have been "eduated" on this site and am starting to eliminate all gluten. I am doing the SCD to "clean" out and start fresh! Hopefully I can lose the weight again and feel better than I have in years!! :)

0

Share this post


Link to post
Share on other sites

I've found too that I've lost weight since being strictly gluten-free. I do replace a few breads/carbs with gluten-free items but not frequently. Simply because I don't find that I have a lot of time to do this. I recently read something about eating in the volumetrics life style. By weight of items and volume, not content. As it is styled by the concept that regardless of what we eat humans are in the habit of eating the same volume sizes of food on a regular basis.

Well, whether or not that holds a lot of water, I decided it was time to incorporate more vegetables in my diet and fruit.

For those of you gaining weight, it may just be a spin off of your body trying to balance this new lifestlye of eating. My only suggestion is looking at what new foods you are substituting that are gluten-free, are they higher in fat or calories? I found initally that I was doing that myself. I wish you all luck as I can relate to the frustration of weight gain and attempting to keep it off. I'd give subsituting other foods with more veggies and fruits and see how that does you for a couple of weeks. Can't hurt! :)

Best of luck to all..and feel free to look here for support. There are alot of us in the same boat it seems!

0

Share this post


Link to post
Share on other sites

It makes me feel better to hear other people complain of the same problems and know I'm not alone. I've been gluten free for a few years now, and initially lost weight with the diet. But I ate gluten about a month ago, and must have messed up recently as well. I have gained about 15 lbs, and my stomach is so bloated none of my pants fit. It is so depressing, and it literally happened overnight. I have been trying to be super strict, but I am still really bloated and really unhappy about it. I heard yeast can cause bloating as well, so I'm going to try to avoid that as well and see if it helps. If not, I need to go buy a whole new wardrobe for when I accidently eat gluten and look pregnant. :(

0

Share this post


Link to post
Share on other sites

I can relate Rebecb. SUCH a pain!!! If I get gluten, I swell up overnight and can't find anything to wear! AND, all it takes is a crumb. Sigh... It is such a drag. We all have our crosses to bear ~ I guess there are a lot of things worse out there. :)

Just eating meat, fruits and veggies should help with the bloat. Eating fewer carbs helps in that area greatly.

0

Share this post


Link to post
Share on other sites

I agree, it is the carbs. I do not like the bread, any of it and only one type of pasta. My diet is basically lean protein, fruits, veggies with a few fats like nuts and cheese.

The flours used to make our stuff is highly refined, so its all useless carbs, and has high glycemic index that luv is talking about. unlike a 12 grain bread which is full of fiber. Carbs are stored as fat. This why Atkins and Southbeach work...

I hear you in feeling deprived. I get angry sometimes but then I think how sick I was and nothing would induce me to go back to that.

It also does not help that the brownies come in packages that make a HUGE pan.. there they sit and you just eat them.

I have lost my stomach, I was never heavy and am rather angular instead of curvy like I always wanted to be so I cannot say I have gained weight, I have lost the bloat that I thought was just my stomach. <_<

I think if you can, try very hard to stay away from all those carbs. I mean you gotta have some and yes we all need treats but you will get more fiber if you eat some veggies. I graze throughout the day. If I go too long without something, I am starving and thats when the pan of brownies starts looking like dinner. If youre starving by the time you eat, its easy to eat 16 oz of red meat.. thats not good either. :o

My husband who is not Celiac gains weight at an alarming rate when he starts eating lots of breads and what not. All in his belly. When he takes them out, poof its gone. Carbs make people heavy.

I really think people were not meant to eat a lot of grains or flours. No matter if you are Celiac or not. We were meant to eat lean protein and plants. Even in the ancient times, if people gathered grains, they were NOT refined. They busted them up with rocks and boiled them and ate them. They were only a very small part of the diet too. The meat they ate was lean game. Did you know the Native Americans used to store fat in intestines because in the winter, they would get a disease due to lack of fat in the amimals they killed? Cannot think of what the illness was called.... but anyway, we dont have that problem in the USA these days. Too much of what we eat is full of fat and we eat too many carbs too. Its just that it TASTES SO GOOD! :angry:

Instead of white or worse, Minute Rice, try brown rice. Put your PB on a stick of celery or an apple. Easy on our pasta and bread. And if you mess up dont be too hard on yourself. Its hard enough to be on a diet let alone this one!!

0

Share this post


Link to post
Share on other sites

Well said about the "high carb and fat" in our gluten-free breads and desserts. They really are empty calories and nutrient "low". I am really trying to stay away from them as much as I can, but I am going to have to make it a lifestyle to eat them as a treat(once in a while). You are so right about lean meat and vege protein as well as fresh fruit being our daily needs. I know that I can fight the battle of the bulge if I eat healthy gluten-free foods and watch calories as wellas EXERCISE! :o:(:rolleyes:

mom

0

Share this post


Link to post
Share on other sites

I LOVE Dietary Specialties mixes, but, like Jessica said, we have to use them rarely and in "treat" form!! :( I can tell a BIG difference in my body and how I feel when I have a lot of carbs or limited carbs. Bummer, but that is life!! :)

0

Share this post


Link to post
Share on other sites

Oooops! Sorry "Mom"... saw your avitar and thought you were Jessica. Teach me not to READ the name!! Sorry!! :(

0

Share this post


Link to post
Share on other sites

I've gained 20 pounds since I started a gluten-free diet at the beginning of the year, and I was a little overweight to begin with. My celiac symptoms are "silent" - other than having low iron and some lactose intolerance, I don't suffer from the awful GI problems that many do. I think the only reason the gastroenterologist found the celiac disease was because he was doing an endoscopy/colonoscopy to find out why I wasn't healing as well from surgery as I could be. This is so frustrating!!! I feel like I've given up my favorite things for nothing! I don't think I'm overeating, or eating a lot of fatty or high-calorie food. I haven't been substituting much of the gluten-free baked goods because they're just not worth eating. My body must now be absorbing every single calorie I ingest. I'm now working out 4 days a week and really watching every bite I take - if I can't lose a significant amount of weight by the first part of June when I have a follow-up doctor's appointment, I'm thinking that something else is wrong. I'm ready to ditch this gluten-free diet. Is being obese a bigger health risk than chronic low iron and diet-related angst? As you can tell, I'm "fed" up! Any advice? :angry:

0

Share this post


Link to post
Share on other sites

;) I am having the same problem as you have. I had silent signs also except for low iron and protein levels. Believe you me , I think that I would rather keep trucking and try at weight loss (which is what I am trying to do) than to end up with severe malnution and possiblly lymphoma etc. This disease also can work on you mental health if you continue eating gluten..Try to keep yor chin up and comminicate with all of celiac people. I can get very frustated at times but you just can't give in to gluten!

Mom :rolleyes::rolleyes:B)

0

Share this post


Link to post
Share on other sites

Scoutfinch-- :)

I also wanted to ask you if you had heard of the GIDIET. It is low in sugar and carbs. Lots of people like the recipes that are in the book. You can find the book info at www.gidiet.com. I am thinking about looking into it myself. It may be worth a try. :D;)

Mom

0

Share this post


Link to post
Share on other sites

Hi Mom:

Thanks for the gidiet website (and also for letting me vent!) I'll check it out to see what it's about.

scoutfinch

0

Share this post


Link to post
Share on other sites

I eat so incredibly healthy, but I too cannot lose weight. I just feel like my metabolism is in slow gear. I eat very few calories per day (maximum of 1500), but I still continue to gain. I don't know what to do anymore because I am so incredibly frustrated. I mean if I am going to gain weight, I will do it by eating sweets, not fresh fruits, vegetables, and lean meats!!!!!!!!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,096
    • Total Posts
      920,333
  • Topics

  • Posts

    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
    • Hi.  I have been reading your post and thinking about how my pain was around diagnosis.  It was above the belly button, I think where you are describing.  At the time I assumed I had a stomach ulcer.   I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).   Going back to the pain, it was a burning feeling.   My doctor prescribed Omeprazole but it didn't touch it.   In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease.   I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.     I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget. The other thing I had that you mention was that pain between the shoulder blades.  I had that - I felt almost like someone was pushing my shoulders down.  So odd. I get palpitations when I am anemic.    I hope you get some answers soon.  It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,132
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined