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2 Months Of Pain In Right Abdomen, And Right Side And Lower Right Back
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I hope you guys are still reading this.... Hopefully you can help. So far I have been suspected of having kidney stones and gall bladder problems. I have had an ultrasound that has showed up nothing and I am booked in to have a c.t scan.For two months I have had a recurring pain. I'll describe it in detail and then if any of you can confirm it sounds like celiac's I would be very grateful. Over two months ago a pain started just to the right of my belly button (left if you were looking at me) it would radiate to the sides and eventually to the lower back (any pain has always been on the right side) Right now it is in the area where the pain seems to be predominately. On my right side above my hip and under my ribs. Sometimes this pain can go for days and then come back again. So far the doctors are stumped. I should add that last year I had a couple of what seemed to be bad food allergic reactions this prompted me to send my blood off to be tested. It said my worse reactions were to wheat and gluten but it said it couldn't confirm celiacs. The nutricianist said if I carried on with my same diet symptoms would worsen but I didn't listen ..... Any advice would be gratefully recieved I spend a lot of nights lying on my right side cause it hurts a lot. The pain never feels too far beneath the surface of the skin it feels like someone with hot fingers is pinching if that makes any sense at all

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Has appendicitis been ruled out?

If you tested allergic to wheat and gluten, you absolutely need to eliminate those! If your pain is as bad as you describe it, why haven't you tried that already?

There is no easy fix for food intolerances, other than to stop eating those foods. Start the gluten-free diet today, and hopefully your pain will subside soon (just don't expect it to be instant, even though it may happen).

Sometimes it takes a while to get better. Give it a good try (a few months rather than a few days) to give the gluten-free diet a chance to make a difference.

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You've gotten good advice, and all I would add is that you may want to try a B12 supplement. It doesn't matter if the blood levels check out fine. Your doctor may be able to give you an injection to start you off, but might refuse to do so without confirming with blood tests (which apparently aren't so accurate when it comes to B12 deficiency). If you decide to try it, be sure to get a sublingual methylcobalamin type (and gluten-free of course).

My own experience with pain on my sides seemed different, so I don't know if the magnesium which worked for me would work for you. I'm guessing not.

But as was said, the appendix thing might be one to check out, though the pains are expected to be lower if I'm not mistaken. If your doctor has ruled that out, perhaps the position of the pain is why.

Since you haven't mentioned going gluten-free, I can only guess you haven't yet done so, in which case that would obviously be the first thing to do, and immediately too.

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perhaps I can explain because I am sensing a bit of hostility here. I wasn't 100% convinced by the company I used for the intolerance testing (they are called Yorktest and they are very expensive)(As well as wheat and gluten) carrots came up. I have raised IgG antibodies to gluten (gliadin) and wheat. I scored 2 out of a possible 5 on both (5 being the strongest possible reaction). My doctor said that it was practically impossible to be intolerant of carrots. I have had a certain persistant indigestion over the years after yeasty bread etc but I never in my 34 years had symptoms like these last few months. I guess I just couldn't believe that I was suddenly getting reactions to foods that I have eaten for over 30 years.... That is why I haven't eliminated gluten as yet. Sorry for the lack of knowledge on my part but is there a list anywhere online of gluten free foods. I tried gluten free muesli and it was like plastic.

I can say appendicitus hasn't been ruled out but it isn't being considered as my symptoms don't fit. I have no pain in the area of my appendix. More in the area of liver and kidney and gull bladder and rarely my groin. Thanks for listening

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I actually get those same pains. I went to the hospital a few years back for severe pain in my lower right abdomen right where the appendix would be. I had a slight temp and something was wacky with my blood tests showing that I had an infection of some sort. They checked me for appendicitis, but the cat scan was dark from my mid abdomen down, even after a couple hours of drinking that aweful white liquid they make you drink for the cat scan, it all sat in my stomach and never made its way down that far. They ended up subbmitting me to the hospital and were going to do surgery on me, but the next day the pain went away. They couldnt figure out what caused it, the only thing I kept thinking of was the wheat nuts I ate at my grandmas that day a few hours before I went to the ER. I remember getting gas after I ate them and tried to go to the bathroom but nothing would come out, not even gas. They never got the connection in the ER and said I may have just had bad gas or a kidney stone??? This was way before I knew of gluten intolerance. All I know is it hurt like hell when the doctors kept pressing and releasing the area that hurt. I stil got the pain off and on years after that happened, but on a gluten free diet I have no problems.....

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I forgot to mention the pain was also just below my rib cage like you described, I noticed whenever I drank beer I got the same exact pain, it would start up high and then move down....

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It sure sounds like you have celiac disease. You might also (in addition) have candidiasis, as indicated by reactions to yeasty bread.

Actually, you may develop an intolerance/allergy to just about anything, including carrots.

Have your liver and kidneys been checked out? Because it might be your right kidney, and if the pain is that bad and the kidney is the cause, something better be done soon! You don't fool with kidney problems, as you don't want to lose a kidney.

Intolerances can come on suddenly, when the so-called 'bucket' flows over. Also, for a celiac disease gene to express itself and for celiac disease to actually suddenly show up, you need a trigger. For some just being born may be enough, as it is traumatic, that is why some babies have celiac disease right from the start.

Others have celiac disease triggered by an accident, an illness, lots of stress, pregnancy or giving birth, death of a loved one, divorce..... really anything that causes stress.

Before you suddenly got sick from foods, did you have anything stressful happening?

So, as I said in my previous answer, it is imperative that you eliminate gluten from your diet. And it is very possible that your pain will actually go away on the gluten-free diet. If not, then you have to keep looking for the cause of that particular problem, as it could be serious.

Still, even if it is a kidney, it could have been caused by eating a food that is harmful to you, in this case likely gluten.

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I forgot to mention the pain was also just below my rib cage like you described, I noticed whenever I drank beer I got the same exact pain, it would start up high and then move down....

Thank you so much MSAU22 thats extremely helpful. Did you have the pain over a period of time. Were you since diagnosed with a gluten intolerance? Did you find the pain moving around (Mine can be on my side or like now in my groin and lower back (right hand side)

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It sure sounds like you have celiac disease. You might also (in addition) have candidiasis, as indicated by reactions to yeasty bread.

Actually, you may develop an intolerance/allergy to just about anything, including carrots.

Have your liver and kidneys been checked out? Because it might be your right kidney, and if the pain is that bad and the kidney is the cause, something better be done soon! You don't fool with kidney problems, as you don't want to lose a kidney.

Intolerances can come on suddenly, when the so-called 'bucket' flows over. Also, for a celiac disease gene to express itself and for celiac disease to actually suddenly show up, you need a trigger. For some just being born may be enough, as it is traumatic, that is why some babies have celiac disease right from the start.

Others have celiac disease triggered by an accident, an illness, lots of stress, pregnancy or giving birth, death of a loved one, divorce..... really anything that causes stress.

Before you suddenly got sick from foods, did you have anything stressful happening?

So, as I said in my previous answer, it is imperative that you eliminate gluten from your diet. And it is very possible that your pain will actually go away on the gluten-free diet. If not, then you have to keep looking for the cause of that particular problem, as it could be serious.

Still, even if it is a kidney, it could have been caused by eating a food that is harmful to you, in this case likely gluten.

Thank you for your kind reply Ursa. Sorry for some reason I thought I had mentioned I have recently had an ultrasound (as It was suggested I had kidney stones) The ultrasound turned up nothing and I have since been put forward for a c.t scan but I haven't a confirmed date yet. I don't remember anything too stressful. I think its the undiagnosed symptoms that stress me out more than anything. Last year I had a couple of nasty episodes where I think the "bucket" must have filled up. I had a tingling tongue (it felt burnt as well) sticky eyes and a numb sensation around my left cheekbones. It was these events that lead me to having the blood tested for intolerances

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Thank you so much MSAU22 thats extremely helpful. Did you have the pain over a period of time. Were you since diagnosed with a gluten intolerance? Did you find the pain moving around (Mine can be on my side or like now in my groin and lower back (right hand side)

hey, no prob. Yes the pain does move around. Generally I get it on my lower right hand side and sometmes into my goin and back like you mentioned. Also once and a while I get a similar pain on my left side just below my stomach, the pain tends to move over to the right side after a few hours and then pocket into my lower right side. Like I mentioned in the comment above, the one thing that really bothers me is beer (but its not the only thing) , I will wake up the next day after having a couple beers the night before- after a few hours of being awake the pain comes on and its so bad at times I get naucious and have to lay down on my stomach. The pain that I get on my right side however, is the pain that will last the longest. Sometimes it will last for days. It comes on slowly, gets really bad and then fades away, but is still constantly there for a few days or more and ver uncomfortable. There is a history of kidney stones in my family, but I never have any of the other symptoms of kidney stones when I get the pain. I have been exerimenting with going on and off gluten and I notice I only get the pain on gluten. I have not been diagnosed with anything yet as I am still trying to find a doctor :( I'm hoping to get in in the next month or so b/c this is driving me insane ( I also have many other symptoms on gluten)

hope this helps- I'm actually glad you posted this b/c I'v been wondering if anyone else has had this! it sucks!!!!

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I had a tingling tongue (it felt burnt as well) sticky eyes and a numb sensation around my left cheekbones. It was these events that lead me to having the blood tested for intolerances

god, I just saw this now as well, I had a burning tounge along with mouth soars a few months back!!!! they gave me no answer exept for a slightly low hemoglobin, it was bordering 11/12, but I'm normally like that! thats when I found out about gluten intolerance.

ok, I'm done wrtiting now-lol

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god, I just saw this now as well, I had a burning tounge along with mouth soars a few months back!!!! they gave me no answer exept for a slightly low hemoglobin, it was bordering 11/12, but I'm normally like that! thats when I found out about gluten intolerance.

ok, I'm done wrtiting now-lol

yes you sound in a similar boat to me. The one thing I can advise on is DON'T TRUST MOST GP'S. I've seen three and not one has even touched on the possibilities of it being gluten intolerance. One even said it wasn't in the right place to be digestion related

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I hope you guys are still reading this.... Hopefully you can help. So far I have been suspected of having kidney stones and gall bladder problems. I have had an ultrasound that has showed up nothing and I am booked in to have a c.t scan.For two months I have had a recurring pain. I'll describe it in detail and then if any of you can confirm it sounds like celiac's I would be very grateful. Over two months ago a pain started just to the right of my belly button (left if you were looking at me) it would radiate to the sides and eventually to the lower back (any pain has always been on the right side) Right now it is in the area where the pain seems to be predominately. On my right side above my hip and under my ribs. Sometimes this pain can go for days and then come back again. So far the doctors are stumped. I should add that last year I had a couple of what seemed to be bad food allergic reactions this prompted me to send my blood off to be tested. It said my worse reactions were to wheat and gluten but it said it couldn't confirm celiacs. The nutricianist said if I carried on with my same diet symptoms would worsen but I didn't listen ..... Any advice would be gratefully recieved I spend a lot of nights lying on my right side cause it hurts a lot. The pain never feels too far beneath the surface of the skin it feels like someone with hot fingers is pinching if that makes any sense at all

I had pain in the right side of my stomach just under my rib cage for months before I was dx with gluten intolarance.I was tested for everything in the book.I had abdominal scans ..where they found gallbladder stones....not causing problems...just lying there they said.I had a HIDA scan to see if any of the stones were stuck in the bile ducts.I had everything the obgyn could order for any "female" problems there might be.My appendix was removed at age 12....so that was not an issue.I can not begin to count the blood tests I had for this count and that count.I saw a urologist after no one else could find anything.Of course he found nothing as well.One thing that all of the doctors did tell me was there was a lot of inflammation in my body.At this point,I felt like I was going crazy.My family was very positive and supportive even though I was becoming very depressed.I doubted myself sometimes ...as the pain would come and go.When my primary doctor ordered the endoscopy,I almost said no...not another test.I have put out so much money for copays and deductibles this year.My family convinced me to go ahead and do the test....and that is when I was dx.

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I had pain in the right side of my stomach just under my rib cage for months before I was dx with gluten intolarance.I was tested for everything in the book.I had abdominal scans ..where they found gallbladder stones....not causing problems...just lying there they said.I had a HIDA scan to see if any of the stones were stuck in the bile ducts.I had everything the obgyn could order for any "female" problems there might be.My appendix was removed at age 12....so that was not an issue.I can not begin to count the blood tests I had for this count and that count.I saw a urologist after no one else could find anything.Of course he found nothing as well.One thing that all of the doctors did tell me was there was a lot of inflammation in my body.At this point,I felt like I was going crazy.My family was very positive and supportive even though I was becoming very depressed.I doubted myself sometimes ...as the pain would come and go.When my primary doctor ordered the endoscopy,I almost said no...not another test.I have put out so much money for copays and deductibles this year.My family convinced me to go ahead and do the test....and that is when I was dx.

thats so bizarre. Gp's probably follow the same route when faced with wheat/gluten intolerance cause I ended up with a urologist as well. It's a lot worse for you poor guys over the river as you don't have a public health care system. If its any consolation I rarely trust mine.

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I hope you guys are still reading this.... Hopefully you can help. So far I have been suspected of having kidney stones and gall bladder problems. I have had an ultrasound that has showed up nothing and I am booked in to have a c.t scan.For two months I have had a recurring pain. I'll describe it in detail and then if any of you can confirm it sounds like celiac's I would be very grateful. Over two months ago a pain started just to the right of my belly button (left if you were looking at me) it would radiate to the sides and eventually to the lower back (any pain has always been on the right side) Right now it is in the area where the pain seems to be predominately. On my right side above my hip and under my ribs. Sometimes this pain can go for days and then come back again. So far the doctors are stumped. I should add that last year I had a couple of what seemed to be bad food allergic reactions this prompted me to send my blood off to be tested. It said my worse reactions were to wheat and gluten but it said it couldn't confirm celiacs. The nutricianist said if I carried on with my same diet symptoms would worsen but I didn't listen ..... Any advice would be gratefully recieved I spend a lot of nights lying on my right side cause it hurts a lot. The pain never feels too far beneath the surface of the skin it feels like someone with hot fingers is pinching if that makes any sense at all

I have gallstones which caused my symptoms like that but when my husband's friend who is a dr. in germany heard my symptoms he immediatley suspected celiac disease. I think I do have celiac disease or at least gluten intolerance because of my other symptoms though.

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I have gallstones which caused my symptoms like that but when my husband's friend who is a dr. in germany heard my symptoms he immediatley suspected celiac disease. I think I do have celiac disease or at least gluten intolerance because of my other symptoms though.

hmm I guess gallstones could still be a possibility as when I had my ultrasound they hadn't told me not to eat (I'd had a tiny bit of chocolate about 3 or 4 hours before. So my gallbladder was collapsed when I had my ultrasound and they couldn't check for stones. well he said I had no large stones.... hmmm lets hope this diet makes all the pain go away!

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interestingly enough I have glucoma and some of the side effects of the drops can be kidney stones etc

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I had pain in the right side of my stomach just under my rib cage for months before I was dx with gluten intolarance.I was tested for everything in the book.I had abdominal scans ..where they found gallbladder stones....not causing problems...just lying there they said.I had a HIDA scan to see if any of the stones were stuck in the bile ducts.I had everything the obgyn could order for any "female" problems there might be.My appendix was removed at age 12....so that was not an issue.I can not begin to count the blood tests I had for this count and that count.I saw a urologist after no one else could find anything.Of course he found nothing as well.One thing that all of the doctors did tell me was there was a lot of inflammation in my body.At this point,I felt like I was going crazy.My family was very positive and supportive even though I was becoming very depressed.I doubted myself sometimes ...as the pain would come and go.When my primary doctor ordered the endoscopy,I almost said no...not another test.I have put out so much money for copays and deductibles this year.My family convinced me to go ahead and do the test....and that is when I was dx.

Guys just wanted to update you cause I feel like I am sitting here losing my mind. I had another blood test recently for gliadin reaction etc. For this test (as I am sure you all know) I had to go back on gluten for 2 weeks. They were sposed to test for 5 different things but apparantly if the first is sooo low then they don't bother with the rest. So basically it came back as no reaction to gluten/wheat. Thats why I can't work out why I am in so much pain now. I can pinch the skin where the pain is. It is near the surface. It feels like a tube. If I put my index finger in my belly button and pinch with my thumb that is where it is and then it goes in a straight horizontal line towards my right side :( Which is what makes me think its intestines. It's driving me mad. So far have had ultra sound, ct scan and have an impending appointment with gastro endrologist

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Guys just wanted to update you cause I feel like I am sitting here losing my mind. I had another blood test recently for gliadin reaction etc. For this test (as I am sure you all know) I had to go back on gluten for 2 weeks. They were sposed to test for 5 different things but apparantly if the first is sooo low then they don't bother with the rest. So basically it came back as no reaction to gluten/wheat. Thats why I can't work out why I am in so much pain now. I can pinch the skin where the pain is. It is near the surface. It feels like a tube. If I put my index finger in my belly button and pinch with my thumb that is where it is and then it goes in a straight horizontal line towards my right side :( Which is what makes me think its intestines. It's driving me mad. So far have had ultra sound, ct scan and have an impending appointment with gastro endrologist

Well my father and myself were negative to the blood test for celiac (probably because that's not 'exactly' what we have). HOWEVER - your symptoms sound EXACTLY like what I was feeling. I actually had to go on 800mg of Ibuprofin and muscle relaxants (at age 30!!) because I couldn't even walk (it was that bad!). Anyhow - I cut out gluten AND casein and I've had no back pain like that anymore (or side pains).

BTW.. the carrots thing - if you are allergic to BIRCH (yes BIRCH pollen) - then you can show a reaction to Carrots, celery, etc. The proteins are the SAME (SCAREY thought). My neice has an ANAPHALACTIC reaction to carrots. HOWEVER when you cook them it denatures the proteins and you can eat them. IE - cooked - she's fine - uncooked she goes to the ER and must use an EPI pen.

My father was diagnosed with KIDNEY FAILURE and FSGS. Never got the back pains (at least I don't think) but had problems with his stomache emptying. That went away on a gluten-free diet and he tested negative. My Anti-Gliadin numbers were slightly elevated which is what lead me to cut out gluten and I'm glad I did! Remember - your KIDNEY filters proteins.. and Gliadin should NOT BE IN YOUR BLOOD! I think it causes the kidneys to get 'clogged'. Of course I'm not a doctor and don't know - but my dad's kidney numbers got better and his FSGS REVERSED on a gluten-free diet.. and I also think that would be where I was heading if I continued eating it. Some of his damage is irreversible and permanent now...

I do hope this helps - the POSITIVE thing is if you go completely gluten-free (and maybe Casein free was well - this is the protein in milk) you will feel better probably. You might have to go Soy free too - alot of kidney problem people on this forum have trouble with all three. In case you wonder, Gliadin, Casein and the soy protein are all like 80+% alike - hence the cross reactivity - depends on sensitivity and gene's I'd suspect.

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Well my father and myself were negative to the blood test for celiac (probably because that's not 'exactly' what we have). HOWEVER - your symptoms sound EXACTLY like what I was feeling. I actually had to go on 800mg of Ibuprofin and muscle relaxants (at age 30!!) because I couldn't even walk (it was that bad!). Anyhow - I cut out gluten AND casein and I've had no back pain like that anymore (or side pains).

BTW.. the carrots thing - if you are allergic to BIRCH (yes BIRCH pollen) - then you can show a reaction to Carrots, celery, etc. The proteins are the SAME (SCAREY thought). My neice has an ANAPHALACTIC reaction to carrots. HOWEVER when you cook them it denatures the proteins and you can eat them. IE - cooked - she's fine - uncooked she goes to the ER and must use an EPI pen.

My father was diagnosed with KIDNEY FAILURE and FSGS. Never got the back pains (at least I don't think) but had problems with his stomache emptying. That went away on a gluten-free diet and he tested negative. My Anti-Gliadin numbers were slightly elevated which is what lead me to cut out gluten and I'm glad I did! Remember - your KIDNEY filters proteins.. and Gliadin should NOT BE IN YOUR BLOOD! I think it causes the kidneys to get 'clogged'. Of course I'm not a doctor and don't know - but my dad's kidney numbers got better and his FSGS REVERSED on a gluten-free diet.. and I also think that would be where I was heading if I continued eating it. Some of his damage is irreversible and permanent now...

I do hope this helps - the POSITIVE thing is if you go completely gluten-free (and maybe Casein free was well - this is the protein in milk) you will feel better probably. You might have to go Soy free too - alot of kidney problem people on this forum have trouble with all three. In case you wonder, Gliadin, Casein and the soy protein are all like 80+% alike - hence the cross reactivity - depends on sensitivity and gene's I'd suspect.

Thanks very much for your lengthy reply. I haven't had any back pain for about 6 months. But the pain on side and front is back with a vengence. I gave up dairy a long time ago. I have however substituted it with soya milk and yoghurt. But I don't have that much of either. a tiny bit in tea and I now have my coffee black. I only eat goats or sheeps cheese. etc. I may well be suffering from the two weeks of gluten for the blood test. The soya is a slight worry.

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    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
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