Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Could I Have Undiagnosed Celiac And Gain Weight?
0

7 posts in this topic

Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

0

Share this post


Link to post
Share on other sites


Ads by Google:
Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

Hi. I dont know and answer to your queston, but this may help: I am not overwieght, but was most of my life. I have not been diagnosed yet either, but feel amazing when I am gluten free. I am a person who puts on wieght easily and has to watch what they eat. I do find that I gain wieght much faster when eating gluten foods than when eating gluten free. actually, when gluten free, I feel I can eat much more and find myself getting hungry more frequently. when eating gluten I feel like I am lacking nutrients and crave food, but at the same time the food just sits in my stomach. This doesnt happen gluten free. Many of my family members have the same symptoms as me but I know they will never get tested because they are stubborn, but pretty much my whole family is overwieght. The foods my family loves are all based around gluten. I realize it more now after going to family get togetehers where there is pot-luck, there is not one thing that is gluten free....

I have talked to other people with celiacs who say they also gain wieght on gluten....I think its differant for everyone.

0

Share this post


Link to post
Share on other sites

Yes Britt you can have coeliac and gain weight. I am one of those. For me prior to diagnosis I had a terrible time with my weight. I'm not saying by going gluten free all my weight problems have gone, far from it, but at least I have remained about the same weight since being gluten free, whereas before it was slowly creeping up.

Cathy

0

Share this post


Link to post
Share on other sites
Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

hi, yes you can gain weight but a lot of doctors won't acknowledge this! :angry: anyway if you look on http://celiac.org/celiac disease-symptoms.php it lists weight gain as one of the symptoms

also on these other sites:

http://www.foodintol.com/celiac.asp

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/#2

and there is an article here http://www.celiac.com/articles/1033/1/Celi...roda/Page1.html

you cand do a search on google by putting in the key words "weight gain and celiac disease" and you will find quite a few links to look at

0

Share this post


Link to post
Share on other sites
Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

Hi Britt,

Before being diagnosed with Celiac I was steadily gaining weight. I always had this nagging feeling in my stomach and felt I needed to eat. I also had hypogycemia symptoms and would get what seemed like low blood sugar if I didn't eat every 2 - 3 hours.

Since going gluten free the hypoclycemia and steady weight gain is much better. I still struggle to lose weight but think it's because I still feel the need to eat more than my body needs. I guess that is more habit than anything at this point. I remember once I stopped dieting and ate whatever I wanted and as much as I wanted (pre-gluten free) and I felt better than I had in a long time. I think my body was craving nutrients so badly that it was starving even though I was over eating. And I think the Cealics that gain weight tend to have constipation more as a symptom than diarrhea. But most doctors will tell you that you don't have the typical symptoms and it can't be Celiac.

So, yes it is highly possible.

0

Share this post


Link to post
Share on other sites




Thank you all for replying. I feel much better now. I can't afford to be tested for celiac disease, but I will definatly go gluten free.

0

Share this post


Link to post
Share on other sites

If you felt better when you were gluten free before, it can't hurt to try the diet again.

Also, if you were tested while you were gluten free the tests would have been negative after 2 years. I was only gluten free for 6 months when my bloodwork all came back negative and it was clearly positive the first time.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,533
  • Topics

  • Posts

    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined