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Could I Have Undiagnosed Celiac And Gain Weight?
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Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

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Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

Hi. I dont know and answer to your queston, but this may help: I am not overwieght, but was most of my life. I have not been diagnosed yet either, but feel amazing when I am gluten free. I am a person who puts on wieght easily and has to watch what they eat. I do find that I gain wieght much faster when eating gluten foods than when eating gluten free. actually, when gluten free, I feel I can eat much more and find myself getting hungry more frequently. when eating gluten I feel like I am lacking nutrients and crave food, but at the same time the food just sits in my stomach. This doesnt happen gluten free. Many of my family members have the same symptoms as me but I know they will never get tested because they are stubborn, but pretty much my whole family is overwieght. The foods my family loves are all based around gluten. I realize it more now after going to family get togetehers where there is pot-luck, there is not one thing that is gluten free....

I have talked to other people with celiacs who say they also gain wieght on gluten....I think its differant for everyone.

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Yes Britt you can have coeliac and gain weight. I am one of those. For me prior to diagnosis I had a terrible time with my weight. I'm not saying by going gluten free all my weight problems have gone, far from it, but at least I have remained about the same weight since being gluten free, whereas before it was slowly creeping up.

Cathy

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Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

hi, yes you can gain weight but a lot of doctors won't acknowledge this! :angry: anyway if you look on http://celiac.org/celiac disease-symptoms.php it lists weight gain as one of the symptoms

also on these other sites:

http://www.foodintol.com/celiac.asp

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/#2

and there is an article here http://www.celiac.com/articles/1033/1/Celi...roda/Page1.html

you cand do a search on google by putting in the key words "weight gain and celiac disease" and you will find quite a few links to look at

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Hi. I'm new here and have looked though the site. I am trying to find out if my gluten intolerance is also Celiac disease. I have previously gone on a gluten free diet, which was successful, but I've been off it for 8yrs. I now need to return to it, but I wonder if I have Celiac disease too. I was tested 10ys ago, but I had been gluten free for a couple of years at the time. My blood test came back negative. I have many of the symtems, GI distress, depression, brian fog, listed exept weight loss. In fact, in the last 5 months I have gained 40lbs. I have been overweight all my life, but this is bad. Can you have Celiac disease and gain weight?

I'm sorry if this question has been posted before. I looked but didn't find one like it. I am trying to decide if I need to find a doctor to test me for celiac disease. Or just say it doesn't matter and just go gluten free. I am lactose intolerant, and think I have soy issues as well. Any help and/or advise is welcome.

Thank you

Britt

Hi Britt,

Before being diagnosed with Celiac I was steadily gaining weight. I always had this nagging feeling in my stomach and felt I needed to eat. I also had hypogycemia symptoms and would get what seemed like low blood sugar if I didn't eat every 2 - 3 hours.

Since going gluten free the hypoclycemia and steady weight gain is much better. I still struggle to lose weight but think it's because I still feel the need to eat more than my body needs. I guess that is more habit than anything at this point. I remember once I stopped dieting and ate whatever I wanted and as much as I wanted (pre-gluten free) and I felt better than I had in a long time. I think my body was craving nutrients so badly that it was starving even though I was over eating. And I think the Cealics that gain weight tend to have constipation more as a symptom than diarrhea. But most doctors will tell you that you don't have the typical symptoms and it can't be Celiac.

So, yes it is highly possible.

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Thank you all for replying. I feel much better now. I can't afford to be tested for celiac disease, but I will definatly go gluten free.

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If you felt better when you were gluten free before, it can't hurt to try the diet again.

Also, if you were tested while you were gluten free the tests would have been negative after 2 years. I was only gluten free for 6 months when my bloodwork all came back negative and it was clearly positive the first time.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
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