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#151 mushroom

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Posted 05 January 2012 - 08:23 PM

But thanks for bumping this up I Throughly enjoyed reading lol!


I read back a couple of posts and I did too :D A special sofa to sit on? Was she maybe thinking of a whoopee cushion? :lol:
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#152 Monklady123

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Posted 06 January 2012 - 12:00 PM

I realize that this is an old thread that was brought to the top, but I've still enjoyed -- in a perverse sort of way :blink: -- reading it.

I can understand the ordinary person who doesn't know what gluten is. However, I'm not quite as forgiving when I've said "wheat" and they then try to give me bread. Also, anyone working in the food service industry, or in medical, should know what I'm talking about.

My favorite line was the time I called a local pizza place to see if they had a gluten free crust. I said "hi, I just wanted to ask if you had a pizza with gluten free crust" and he replied "uh...glucose?" Thank you, and bye. (in contrast, the next place I called -- which I knew had a gluten free crust but I had called the first place because they were closer to my house -- said "oh yes, let me tell you how we make the gluten free pizza so that it's not cross-contaminated") :)

But the one that bothers me the most is the people who keep insisting, and insisting, and INSISTING that I eat. or they keep trying to figure out how we can arrange for something I can eat. Like at church events where a particular ministry team is sponsoring the meal. Or at the hospital -- my director did that recently for a lunch we had. I've finally learned to ask them "I said I am happy to bring my own lunch, and I actually prefer it because I'm sure then that I won't get sick...why does it bother you so much?" or some version of that. I do understand that they're trying to be hospitable, and I do appreciate it. But after awhile they just need to accept "no thank you."
:rolleyes:
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#153 Gfgoddess

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Posted 16 January 2012 - 02:19 PM

Once i called an airline a week in advance to inform them of my food intolerances, as they request you do to provide for you. I spent like an hour on the phone trying o explain what gluten is and they assured me i would have food on my flight. Halfway through my 11 hour flight, i was excited to receive a special tray with a sticker on the lid that said "No Gluten, No eggs, No Milk". I opened it to find an EGG SANDWICH and MILK.

Recently, a manager at the restaurant i work for went on a rant in front of me about how annoying people with gluten intolerances are and how they just shouldnt eat out ever because the world doesnt revolve around them. Wow.

And if i had a penny for every time i've heard "so you can have white bread you just cant have wheat bread?" or "are you like anorexic or something?"...

Once in high school, my friends (who were fully informed of my disease) invited me over for a baking party. I said "i think i will pass since i cant eat anything" but they insisted i come and that id have fun. As soon as i arrived, a flour fight broke out. Flour was flying everywhere! So ignorant.

The worst iis when someone tries so hard to feed me and they still dont get it right. Do you tell them thanks for all their trouble but i dont trust you? Or do you eat it with a smile and be miserable for days?
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#154 jeanzdyn

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Posted 16 January 2012 - 07:44 PM

I think this is more of a symbol of how far we are (as a society) from understanding what we eat. Few people cook from scratch, even fewer grow their own food.

Love the image of the googly eyed plants leaping out of the water to nip seeds from the waving fields of white.


"far from understanding what we eat." ?? Most people don't even read the labels on the foods they eat.
They have no idea that there is high fructose corn syrup in almost everything in the supermarket.
They don't have a clue that there is flour, or wheat, or glutenous stuff in so very many foods.

The first step in educating the general populace is teaching them to read the label!


I have had "digestive issues" for over 20 years and I started reading food product labels to try to find some kind
of common denominator for my digestive symptoms. At least I am used to reading the labels, so with this Celiac Disease
diagnosis being new to me, I have a pretty good idea what I am looking at when I read the labels.
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What is food to one man may be fierce poison to others. —--Lucretius


I miss bread! But I love Kinnikinnick gluten free pizza crust.


Diagnosed celiac disease: November 2011 (biopsy and endoscopy)
other conditions: asthma, arthritis

#155 jeanzdyn

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Posted 16 January 2012 - 07:48 PM

Recently I was assigned to order food for a meeting at our office. "sandwiches or pizza", yeah, and I was in the meeting too, so what was I going to eat for lunch? I made a pleasant discovery when I read the menu from Jimmy Johns subs ==
the "unwich" --a sandwich made with no bread, it is wrapped in a couple of lettuce leafs. I still miss the bread, but I am happy that I can order food for a crowd and get myself something from the same restaurant.
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What is food to one man may be fierce poison to others. —--Lucretius


I miss bread! But I love Kinnikinnick gluten free pizza crust.


Diagnosed celiac disease: November 2011 (biopsy and endoscopy)
other conditions: asthma, arthritis

#156 Skylark

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Posted 16 January 2012 - 08:34 PM

Old thread but perfectly up-to-date. :lol: One of these days I'm going to find a flour tree orchard and see where those 5-pound bags of white flour that somehow magically contains no wheat come from.
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#157 tbritt

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Posted 18 January 2012 - 11:24 PM

I was planning my wedding and my mother-in-law was insistent upon getting a "glutton" free meal for me with the catered dinner from a barbecue joint in Fredericksburg, TX. No, Thanks! I'll just eat a PB&J on Udi's bread at the meal that will honor me and my new husband. John eventually talked her out of the catered meal. Then they made "gluten free" burgers and veggies on a grill at a B&B instead. (Still didn't eat it because there was gluten all around!) I had to wear a white dress the following day.

A friend of mine offered to make pasta with nothing on it when I visited her home. No, thank you.

I stayed with a woman who insisted on making a gluten free meal for me. It was ham with mashed potatoes and salad. I was thinking it must have been CC from the pan that made me sick. Maybe the ham flavorings. Whatever it was, I was sick for days.

The local "gluten free" place sells items with gluten free oat flour (without disclosing ingredients). If you call yourself a "gluten free" restaurant, please be knowledgeable of the fact that some people can't have oats!!!!!

More recently, I have come to dislike being at events and folks blessing food that I can't eat. I hate that. "God bless this pepperoni pizza." I don't believe in blessing food that will not sustain everyone around.

Every time I eat out is a gamble. I get sick most of the time. Most people don't understand that.
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#158 Laurentru

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Posted 19 January 2012 - 02:11 PM

My favorite comment of all time was:
Friend: So you can't have donuts right?
Me: No, no donuts.
Friend: What about chocolate donuts?
Me:....still no
Friend: Muffins?
Me: *sigh*


This is the friend (clearly not the greatest friend) who still to this day will invite me to hang out with her and then take me to a bakery and say, "oh yeah, are there gluten free things here? The cream puffs are really good!"
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#159 Adalaide

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Posted 20 January 2012 - 05:36 AM

"You're just lucky it's not lupus, cause so-and-so has lupus and it's the bad kind."

.... there's a good kind of lupus? :blink:
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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#160 tennisman

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Posted 20 January 2012 - 12:30 PM

This week I heard a lot of bad comments . Including i'm uneducated about my disease when this person doesn't even have celiac disease , I wish I had a gun to shoot that person !
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#161 BrittLoves2Run

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Posted 20 January 2012 - 01:10 PM

Oh my...just..wow. I'm LOLing right now.

Thats as bad as people who try and tell me chicken and fish aren't meat (I'm a vegetarian).
I'm like what are fish, strange sea plants with googly eyes???

LOL!


When I used to tell people I was vegetarian and couldn't eat their meat they'd say "oh.. okay.. but you still eat chicken right?" UM.. DID IT HAVE A HEARTBEAT? No. People are idiots.
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--Brittany
Dxed with IBS in 2010

Celiac Panel/Thyroid blood test done on 1/19/2012
1/23- Positive Celiac blood tests/ TSH Levels 4.5 (range 0.4-5.5)
1/24- Gluten free
3/14--Since being gluten free i've had NO nausea, joint pain, and finally I am not tired all the time!! I am starting to feel like a normal person again!!!
5/30- Just a little over 4 months of being gluten free. While the joint pain and nausea are gone, I'm very sluggish and tired again. I also for the first time in my life have to get up to pee in the middle of the night. Quite annoying. But I'm still very grateful most of my issues are gone!

6th half marathon completed on 5/6/2012

#162 kaity

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Posted 20 January 2012 - 10:08 PM

i am a person that hardly eats cookies, i dont eat hamburgers when going out because personally i dont trust what they put in them, one time me and some close friends went out for lunch, and my son is celiac and they are all aware of that, so i got him frenchfries that they are gluten free, and some salad, and i ordered for me the same thing, they all started asking why dont you order burgers, or something else, but i told them that i dont like burgers (so they dont start trying to convince me to eat in that place and that they know what they put in the meat and so on, so i said that just to avoid and argument). The next thing i know while we were eating my son told me that he wants a hamburger so i told him that they are yucky, after all he was at the time only 30 months old and he doesnt understand if i tell him that they are not good for him, but if i tell him that tthey are yucky he wont ask for them again, so all of my friends started telling me "if you dont like something it doesnt mean you cant give it to your son".. I was so mad I was like "WHAT?" and they all know what his problem is, so i told them again that he cant have anything with gluten in it, so one of them said "i am sure that the cheese burgers dont have gluten in them", so i told them that the bread has gluten, and how it makes him sick, anyways, i was pregnant at the time, o i had to go to the lady's room, so i left my son with them for about 3 minutes and then we went home, that night my son kept crying, very bad diarrhea and vomitting , so i called one of my friends and she said that she had given him a piece of her hamburger just to see if anything happens to him but nothing happened so she gave him another piece.... i was so mad and started yelling telling her that my son is sick because of her... needless to say i dont hang out with any of them any more.. i mean you dont believe someone has a problem until you put them to a test????
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#163 tennisman

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Posted 21 January 2012 - 04:24 AM

i am a person that hardly eats cookies, i dont eat hamburgers when going out because personally i dont trust what they put in them, one time me and some close friends went out for lunch, and my son is celiac and they are all aware of that, so i got him frenchfries that they are gluten free, and some salad, and i ordered for me the same thing, they all started asking why dont you order burgers, or something else, but i told them that i dont like burgers (so they dont start trying to convince me to eat in that place and that they know what they put in the meat and so on, so i said that just to avoid and argument). The next thing i know while we were eating my son told me that he wants a hamburger so i told him that they are yucky, after all he was at the time only 30 months old and he doesnt understand if i tell him that they are not good for him, but if i tell him that tthey are yucky he wont ask for them again, so all of my friends started telling me "if you dont like something it doesnt mean you cant give it to your son".. I was so mad I was like "WHAT?" and they all know what his problem is, so i told them again that he cant have anything with gluten in it, so one of them said "i am sure that the cheese burgers dont have gluten in them", so i told them that the bread has gluten, and how it makes him sick, anyways, i was pregnant at the time, o i had to go to the lady's room, so i left my son with them for about 3 minutes and then we went home, that night my son kept crying, very bad diarrhea and vomitting , so i called one of my friends and she said that she had given him a piece of her hamburger just to see if anything happens to him but nothing happened so she gave him another piece.... i was so mad and started yelling telling her that my son is sick because of her... needless to say i dont hang out with any of them any more.. i mean you dont believe someone has a problem until you put them to a test????


Wow that's terrible :( I can't believe people can even do such stupid things .
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#164 Ollie's Mom

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Posted 21 January 2012 - 05:09 AM

Kaity, that's a terrible story. I'm never going to leave my LO at a table with ppl who don't take celiac seriously - and sadly there are a lot of them. And it just highlights one of the most ignorant assumptions about celiac - that the reaction has to happen immediately and if nothing happens within a minute gluten can't be the issue. Le sigh.
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#165 Aly1

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Posted 21 January 2012 - 05:17 AM

Wow that is so offensive I have nothing to say! Speechless.
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