Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Jerking Awake At Night
0

18 posts in this topic

I have searched the forum and I haven't been able to find the same symptoms. This has been happening to me more frequently lately, but has happened occasionally in the past as well.

Just as you are falling off, or sometimes out of deep sleep, I experience a violent, one-second jerking moment of my whole body that wakes me up suddenly, as if I have just landed from a fall. These days they are not connected to dreams or nightmares that I can remember, and I usually remember.

The other night I wasn't even asleep yet, but just starting to shut my eyes.

I have just started eating gluten-free. I also have a host of other symptoms, like snoring sometimes (only lately since I held on to a sinus condition that started when I had bronchitis/pneumonia this past winter), restless legs, up several times to pee, but not as much lately.

But, this jerking awake motion has stayed. Any thoughts or recognition?

It's scary.

0

Share this post


Link to post
Share on other sites


Ads by Google:

My husband, who is not celiac, has this problem when he eats anything with MSG.

0

Share this post


Link to post
Share on other sites
I have searched the forum and I haven't been able to find the same symptoms. This has been happening to me more frequently lately, but has happened occasionally in the past as well.

Just as you are falling off, or sometimes out of deep sleep, I experience a violent, one-second jerking moment of my whole body that wakes me up suddenly, as if I have just landed from a fall. These days they are not connected to dreams or nightmares that I can remember, and I usually remember.

The other night I wasn't even asleep yet, but just starting to shut my eyes.

I have just started eating gluten-free. I also have a host of other symptoms, like snoring sometimes (only lately since I held on to a sinus condition that started when I had bronchitis/pneumonia this past winter), restless legs, up several times to pee, but not as much lately.

But, this jerking awake motion has stayed. Any thoughts or recognition?

It's scary.

don't worry...it is a narural thing that happens to many people when they are about to fall asleep. Both my boyfriend and my x-boyfriend kept having that and they definately are not celiacs. It doesn't have to do with gluten at all

0

Share this post


Link to post
Share on other sites

I had this problem prior to celiac diagnoses. it was so bad that they treated me for some type of Parkinsons. It didn't go away until I went gluten free. It takes a little time but after being gluten-free many of the symptoms you mentioned change or disappear.

good luck!

Ken

I have searched the forum and I haven't been able to find the same symptoms. This has been happening to me more frequently lately, but has happened occasionally in the past as well.

Just as you are falling off, or sometimes out of deep sleep, I experience a violent, one-second jerking moment of my whole body that wakes me up suddenly, as if I have just landed from a fall. These days they are not connected to dreams or nightmares that I can remember, and I usually remember.

The other night I wasn't even asleep yet, but just starting to shut my eyes.

I have just started eating gluten-free. I also have a host of other symptoms, like snoring sometimes (only lately since I held on to a sinus condition that started when I had bronchitis/pneumonia this past winter), restless legs, up several times to pee, but not as much lately.

But, this jerking awake motion has stayed. Any thoughts or recognition?

It's scary.

0

Share this post


Link to post
Share on other sites

kahleemehrah Meline tee kahnehteh?

I did have bad shakes that was only from Gluten. Mostly at night and sometimes waking me up. One time my body threw itself off the bed! Sometimes during the day when I was awake. I can remember one time my leg shaking so much I couldnt focus my eyes on it! After gluten-free, it all went away!

adio

ken

don't worry...it is a narural thing that happens to many people when they are about to fall asleep. Both my boyfriend and my x-boyfriend kept having that and they definately are not celiacs. It doesn't have to do with gluten at all
0

Share this post


Link to post
Share on other sites




kahleemehrah Meline tee kahnehteh?

I did have bad shakes that was only from Gluten. Mostly at night and sometimes waking me up. One time my body threw itself off the bed! Sometimes during the day when I was awake. I can remember one time my leg shaking so much I couldnt focus my eyes on it! After gluten-free, it all went away!

adio

ken

Hello there!!!! kahleemehrah to you too!!!!!!!!!! I am great thank you!!!

You had that kind of reaction??? I never did....so our new friend may feel confused....she will just have to find out on her own if it is from gluten or not!!!!

shaking leg? soundS great for dancing......LOL!! Good for you you stopped having that after going gluten-free. (nice avatar......!!!!)

geia sou!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

0

Share this post


Link to post
Share on other sites

I used to get the restless legs which went away after going gluten-free, but I still have and have always had the jerking awake thing which I think is a pretty natural thing, it also happens to my fiance who is far from gluten intolerant.

Hope this helps

0

Share this post


Link to post
Share on other sites

HI Meline

Its too bad I couldnt dance with shaking legs -- maybe I could invent new dance :D

I think the symptoms are so different for everyone. I wonder what causes so many different symptoms for the same disease.

I think I read there are more than 200 different symptoms for celiac.

The avatar is Dr. Ochanamizu. In the old Japanese cartoon Astro Boy. Some of my friends there call me that since my hair sticks out like his. I'm just glad my nose is not that big <G>

Oh its late already!

kahleeneektah

ken

Hello there!!!! kahleemehrah to you too!!!!!!!!!! I am great thank you!!!

You had that kind of reaction??? I never did....so our new friend may feel confused....she will just have to find out on her own if it is from gluten or not!!!!

shaking leg? soundS great for dancing......LOL!! Good for you you stopped having that after going gluten-free. (nice avatar......!!!!)

geia sou!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

0

Share this post


Link to post
Share on other sites
I have searched the forum and I haven't been able to find the same symptoms. This has been happening to me more frequently lately, but has happened occasionally in the past as well.

Just as you are falling off, or sometimes out of deep sleep, I experience a violent, one-second jerking moment of my whole body that wakes me up suddenly, as if I have just landed from a fall. These days they are not connected to dreams or nightmares that I can remember, and I usually remember.

The other night I wasn't even asleep yet, but just starting to shut my eyes.

I have just started eating gluten-free. I also have a host of other symptoms, like snoring sometimes (only lately since I held on to a sinus condition that started when I had bronchitis/pneumonia this past winter), restless legs, up several times to pee, but not as much lately.

But, this jerking awake motion has stayed. Any thoughts or recognition?

It's scary.

Anti-depressants (even St. John's Wort) will cause this reaction in some people

0

Share this post


Link to post
Share on other sites

OK, thanks very much for the feedback everyone. I have had it happening more frequently and more violently than in the past, so I thought it was related to my other symptoms and a form of sleep apnea. But, I have also been anxious and maybe this is another manifestation of it.

Thanks for your help.

0

Share this post


Link to post
Share on other sites

For those of us like me that love trivia :lol: , that phenonmenon it called a hypnic jerk.

http://en.wikipedia.org/wiki/Hypnic_jerk

A hypnic or hypnagogic jerk is an involuntary muscle twitch (commonly known as a myoclonic twitch) which occurs during the transition into hypnagogia. It is often described as an electric shock or falling sensation, and can cause movement of the body in bed. Hypnic jerks are experienced by most people, especially when exhausted or sleeping uncomfortably.

If you have been sleep deprived or your sleep is otherwise disturbed, you will be more likey to experience them.

0

Share this post


Link to post
Share on other sites

Thanks for the cool trivia cruelshoes. I'm fond of trivia myself, but I think I found the source of my recent problem, and it is celiac disease related. You were all on target as well and I very much appreciate your input, but I didn't describe my latest symptom clearly enough as a spasm. It is somewhat confounding, because I've had the episodes described on this thread in the past, but there was something different about the two latest episodes, and especially the last one where I wasn't even asleep yet. That's because they were more like spasms. I need to get myself some calcium pills.

http://en.wikipedia.org/wiki/Tetany_(medical_sign)

Tetany is a medical sign, the involuntary contraction of muscles, caused by diseases and other conditions that increase the action potential frequency. The muscle cramps caused by the disease tetanus are due to a blocking of the inhibition to the neurons that supply muscles and are not classified as tetany.

When the membrane potential is upset, for instance by low levels of ions (such as calcium) in the blood (hypocalcaemia), neurons will depolarize too easily. In the case of hypocalcaemia, calcium ions are drawn away from their association with the voltage-gated sodium channels thus sensitising them. The upset to membrane potential is therefore caused by an influx of sodium to the cell, not directly by the hypocalcaemia. As a result, too many action potentials are sent to muscles causing spasm.

http://www.ncbi.nlm.nih.gov/pubmed/9063935

Tetany is a rare form of presentation of adult celiac disease. We present three patients with spontaneous episodes of tetania who were finally diagnosed of celiac disease. All were women. In two of them an unexplained chronic anemia was previously detected. The origin of tetania was severe hypocalcemia and hypomagnesemia. After intravenous restoration of calcium and posterior free gluten diet with supplements, clinical and biological remission was achieved. In the presence of isolated tetania or unexplained anemia resistant to treatment an adult celiac disease must be disclosed.

0

Share this post


Link to post
Share on other sites

ugh i hate it when you jerk awake like that. i dont get it very often though, although my boyfriends mum had an operation last year and her heart stopped during it, afterwards the doctor asked her if she jerked awake often when falling to sleep, she said sometimes and they were like ahhhh!!! thats why!!...thought that was strange! :P

0

Share this post


Link to post
Share on other sites

This happens to me ALL the time - my arm, leg, or even entire body will spasm. They have diagnosed it as restless legs syndrome, but now I am wondering if it might be celiac related. MAybe with the continuance of a gluten free diet I will see some changes. Since I was just diagnosed a week ago, it's too soon to tell. I tried ALL of the medicines for restless legs syndrome and none seemed to help at all. Probably because the underlying cause is the celiac. I'm glad I found this site.

0

Share this post


Link to post
Share on other sites

I get this all the time when I eat sugar or things that can be converted to sugar too late at night.

0

Share this post


Link to post
Share on other sites

I used to get this quite often, and severely - even leaping straight up off the bed.

Now, since taking a magnesium supplement, it seems to be gone. Though I also take a methylcobalamin (B12) supplement, and this is also good for nerves and muscles.

0

Share this post


Link to post
Share on other sites

Thanks Rice Guy, and everyone else who contributed to this thread. I increased my intake of calcium and magnesium, and all seems to be fine now.

Pleasant dreams.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined