Inhaled Gluten Cause Reaction?
Posted 21 January 2005 - 06:25 PM
Posted 21 January 2005 - 07:24 PM
I would tell the Kindergarten teacher how serious celiac disease is and how it is crutial that your daughter is not put in a situation where she may get gluten. Some options:
-Maybe everyone can cook gluten free! Gluten free baking is not hard! Find some simple gluten free recipes and present them to the teacher. If it looks easy, the teacher may be more willing to accept. Here is a link:
Also, you can buy gluten free premade cake mixes. It is more expensive to buy gluten free stuff, but if you insist the teacher may go for it!
-The teacher could make sure that your daughter is at a safe distance while the floor is flying and maybe help with decorating (and have her wash her hands before touching her mouth).
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 21 January 2005 - 07:52 PM
Posted 22 January 2005 - 05:32 PM
I think you are about to lay the groundwork for how serious your daughter's celiac disease is taken for her entire childhood, within the school among staff, and in the community among her peers and their parents. If you are passive about it, with the intent of not being "difficult", others may perceive that keeping your daughter away from gluten is optional. She has many years of birthday parties, sleep overs, etc. to attend at friends' houses, so I think you need to respectfully voice that baking gluten containing foods is NOT an option for her, and that since you don't want her excluded from full class activities, so they need to figure something else out. We had a meeting with my son's kindergarten teacher to tell her that gluing cereal, macaroni, etc. were not appropriate craft activities for my son, and that for class parties I could provide my son with gluten-free cupcakes, etc. His teacher has been very supportive, and has sent 2 notes home this year reminding parents to remind children not to share nor to bring treats for party days, she provides treats from my gluten-free treat list, so that Logan doesn't feel centred out in any way. Logan even went to his first birthday party just before Christmas. The kids all had hot dogs, I spoke with the mom ahead of time, and she prepared his gluten-free wieners in a seperate pot, put them into the rice flour buns I sent with him, and served him his gluten-free chocolate fudge brownie I had also sent with him. We have received a very positive response so far, and seeing as these kids will be his peers possibly until he graduates, I think it's important that everyone understand his different but manageable needs.
You might suggest alternate flour that you can even pick up with the class budget money normally spent on baking days, and even spring for the xanthan gum yourself. But then you have to be worried about the baking surface being contaminated from prior gluten baking, and the bake ware maybe not being cleaned thoroughly unless you volunteer to clean the bakeware yourself.....
I think in these times, with peanut ALLERGIES becoming more and more common, and obviously deadly, that people are learning to be tolerant of different dietary needs, and will probably cooperate pleasantly, if not enthusiastically. Nobody want to purposely inflict abdominal pain and diarrhea, etc on a little girl, not to mention the less obvious, but more serious intestinal damage! Please do take a stand for your daughter's sake. You are setting the stage for the rest of her life!
Posted 23 January 2005 - 05:52 AM
Posted 23 January 2005 - 11:07 AM
Posted 24 January 2005 - 08:01 AM
Also, as a side note, you do not get a gluten reaction from inhaling flour. It MUST pass through your small intestine for you to react. However, if your child has DH then touching it might aggrevate that (thankfully that is not an issue I have to deal with) BUT, bc your child is young he/she may not completely wash her hands after the activity, which means the second she puts her hands in her mouth she'll be contaminated. OR, if the other children do not wash after the activity, or the flour dust gets on the surfaces they use after the activity and then she touches her mouth she'll be contaminated.
Basically, you must make this teacher realize this is NOT a little issue. And the 504 will certainly do that.
Posted 24 January 2005 - 01:37 PM
Posted 25 January 2005 - 10:14 AM
If all else fails, have a lawyer send a letter. Nobody like to hear from a laywer.
Best of luck!
Posted 25 January 2005 - 01:43 PM
Sounds like this teacher needs to be educated. Your child should be able to participate in the preparation and eat the prepared snack. There are some great kid-friendly gluten-free recipes on this web site...
I hope the teacher understands and sees that cooking gluten-free is not scary, or strange. It won't even have to be mentioned to the rest of the class... except of course with the parents of kids with other allergies!
Diagnosed 3/03 (Positive Biopsy/Negative Blood Tests)
Daughter dx 12/03 (Positive biopsy/Positive blood tests);
Two sons (Negative blood tests); One on gluten-free diet (6/04) ... cured his persistent, severe headaches.
Posted 26 January 2005 - 06:14 AM
Again, I want to thank those who responded. I for one, at times, need the good people on this board to help lift me back up to my convictions when the rest of the uneducated world has beaten me down. Thanks again!
Posted 26 January 2005 - 12:51 PM
Posted 08 February 2005 - 04:39 PM
Posted 08 February 2005 - 05:07 PM
The pamphlet is nice because it has a section about "in the classroom' that details ways in which we seek the assistance of teachers.
Posted 11 February 2005 - 08:00 PM
I think it is excellent you are doing this for your daughter. It is very important to protect her from gluten in craft/cooking projects. Have you ever put flour in a mixer and watched it float up and everywhere - try it in a sunbeam and you'll see what I mean. As for inhalation, it *definitely* counts. Here's 2 recent stories:
I was at a neighbor's house - he's remodeling almost from scratch, and was at the stage where drywall and whatnot is going up. Major dust everywhere, he was coughing from having been in it all day, and it was the end of the workday. I was inside maybe 30 minutes max getting the "tour". By the end I was getting nauseus and bad concentration. Felt better once outside, but 2 hours later at home collapsed on the couch dead tired and glutened. Yes, drywall and joint compound (being sanded - everywhere!) have gluten.
The other story is from my mom, also celiac. She had a client and visited them at a food factory, which made pasta. Every time she went, on the long drive home, she'd have to pull into a rest stop to take a nap, she was just too tired to be safe on the road.
Dh has been banned to making the stray batch of cookies outside on the patio. I won't have gltuen flour flying around my house.
And as for kids, it's just about impossible for them to keep hands clean. Even if your child stayed away from the activity, the other kids would be covered in it, and everything the touched in the room would get covered, and eventually your child would get covered in gluten. It's just kids, yk?
-hoping not to face this with her son, now age 3, gluten-free, and untested for celiac yet
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