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"losing Wieght" Eating More
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Since I've been gluten free everyone tells me I look like I keep losing wieght. I have not been trying to lose wieght and I've actually been eating a lot more than I used to and more frequently b/c i actually get hungry and dont feel bloated and gross after eating. The thing that bothers me is in the past week I started noticeing that I look and feel thinner. I have always been a person who has trouble keeping thier wieght down and now that I'm gluten free it seems that no matter how much I eat or what I eat I look like I', getting thinner, even though the scale doesnt show it. My wieght has always fluctuated between 135 and 150 in the past few years, and the flucuation could all be in a month, usually related to my periods. Even though I look thin and my clothes are starting to be too loose on me, I still wiegh the same, around 140, but I look like I wieght 115-120. I'm 5'6.

I"ve been having some wierd feelings in my stomach lately, almost like a burning, but not heart burn type. Its definitly not painful but I notice it off and on and I sometimes feel naucious or extremely hungry even though I ate plenty throughout the day making sure i have plenty of protien and healthy fats and balance of carbs. I also get even more dizzy than normal when I stand up, its to the point where its very annoying!!!!

I was wondering if these symptoms may be the sign of an ulcer? I"ve heard that people with celiacs are at risk for ulcers. I have not seen a doctor in a long time and have not been diagnosed with anything yet. Is wieght loss or possibly a "mal- nourished" look also a side effect of an ulcer? and I was wondering what causes ulcers in someone with celiacs? I thought maybe since the small intestine cant break food down properly that this would cause the stomach to work harder/possibly producing more H Pylori??? I'm seeing a doc soon, I just have all this stuff running through my head b/c I just dont feel right, even though the majority of my major problems are gone when gluten free....this seems like an endless battle....

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Of course, the first question everyone asks on this forum is are you sure you're 100% gluten-free?

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Of course, the first question everyone asks on this forum is are you sure you're 100% gluten-free?

I am sure. I've been eating only products produced in dedicated factories....the only thing that I could think of is my mouthwash. Its and off brand whitening pre-rinse by CareOne, but I didnt see any ingredients that could possibly have gluten...

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You might have just lost some water weight and bloating if you recently started the gluten free diet. That happened to me. I very quickly lost a few pounds when I started the diet. If I accidentally get some gluten I gain a couple pounds over night and then lose them a few days later when the reaction starts to be over.

There's a thread about constant hunger in the "coping with" section right now. It's also quite common in the beginning of the diet. You might just have to eat more often for a couple of months until your body starts to heal. Not necessarily big meals but spread your eating over the day every couple hours or so.

When I was still eating gluten I used to always feel a bit full but it was actually from the bloating. When that went away I had to get used to a totally different feeling of hunger. So that also could be what you're feeling. If that's the case I think things will even out in a few months time.

Pauliina

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the same thing happens with me with the water wieght, so you are right, thats probably what it is. I know if I eat gluten I feel fatigued and achy all over the next day, but a lot of that feeling is from the water wieght b/c there are times where I can actually press my skin and feel soarness..

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    • thanks for your input, the reason I do the blood test is because I found out my duagther has it recently and she carry dq2 gene,so must be from my husband or me...im in the process waiting for my genetic test back,,by the way,I do have lots of celiac symptom,so it could be gluten sensitiive you said,thanks again.  
    • No I'm in the UK, from what I've been told that's a good thing for gluten labeling and standards compliance. What you and everyone else on here says makes me sense than what the doctors are saying (a confused message at best is what they're giving me, each one with a slightly different version of it). My referral letter is in the post so on theory appointment may not be that far away. I have a load of my favourite Quorn stuff (non-gluten-free version) in the freezer so perhaps using that up may be a good way to proceed for now. I'm out at the moment and torn whether to try chips from a café, in the strict gluten-free future would probably be a no-no but in current situation probably not so bad...
    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
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