Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dapsone
0

8 posts in this topic

I have been on Dapsone for my DH for a while, and I finally had weaned myself off of it about a month ago... however I ate something, I don't know what, and broke out, and i started taking it again. However, I also noticed a couple things that have been really bothering me in association with Dapsone. For the longest time while taking Dapsone, I had no problems... then I had the liver problems and had to go off of it. However, after my liver straightened up and I started taking it again, I (along with my girlfriend) noticed that I get really moody when I'm on Dapsone. Is there a proven correlation or has anyone else experienced this? Again, it didn't do this until after I went off it for about a month (I was itching like crazy though). When I started taking it again, it was like I was always depressed, and when I finally weaned myself off it, I felt like a different person. I was never angry or depressed or anything like I had been. However I started taking it about a week ago again, and I feel horrible right now, like really depressed for no reason and feeling kinda worthless and I get irritated and angry very easily too... like I have a short fuse. I never used to be like this until a couple months ago and I wasn't merely a week ago when i wasn't on Dapsone. It's bothering me really bad because i even KNOW that I shouldn't be feeling like this, I just do. It bothers my girlfriend for obvious reasons too. I am trying to quit taking it again because I honestly believe that it makes me feel better emotionally. But I do wanna know if anyone knows if that is a possible side effect, or if I am just using the medicine as a copout. Thanks---

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've never heard of this as a side effect but you vcan do a google search and find them or ask your pharmacist for a list if side effects.

richard

0

Share this post


Link to post
Share on other sites

Weird you mention that, I seem to have been having a similar problem.

Out of interest how did you know you had liver problems, from tests or did you become ill?

0

Share this post


Link to post
Share on other sites

If you're taking dapsone, your doctor should be doing regular blood tests and liver panel. I never had a liver problem but my white cell count was way off at first.

If you haven't gone gluten-free you need to.

richard

0

Share this post


Link to post
Share on other sites

I think a lot depends on how much you arev taking.

Some people when they start take like 200MG a day. Currently, I take 25mg (1 pill) every day or every other day). If I stop taking dapsone, the DH will come back - it always does -- and yes, I have new pots and pans, gluten-free toiletries and I rarely eat out -- for some reason, it doesn;t go away.

Anyway, I have been on it for 8 years (albeit a low dose) and my CBC has always returned normal.

For what its worth, when I used to drink and take 50 mg of Dapsone, I had moody issues -- but I always viewed it as stress, being hungover (colllege days) and working in a restaurant..

Who knows?

BTW< what is your dosage?

0

Share this post


Link to post
Share on other sites




I normally take 50mg a day. Sometimes less sometimes more but an average of 50mg. I have not had any blood tests at all and have been taking it for about 5 months. I have considered getting blood tests but never got round to it as I work up to 70 hours some weeks. I should really get some tests.

I am gluten free but still seem to get some itching once in a while even when I have only eaten food items that I know to be gluten free. I honestly think half of it could be in my head and dapsone these days is a placebo. As they say the mind is a very powerful thing.

Interesting you mentioned the alcohol and mood problems. I went out drinking last night and I have been feeling moody/depressed all day. Could be down to the fact my skin is itching due to my yeast allergy. Drives me f**king mental all the food allergies I have, I just wish I could eat and do what I want just like 99% of other people out there.

0

Share this post


Link to post
Share on other sites
I normally take 50mg a day.  Sometimes less sometimes more but an average of 50mg.  I have not had any blood tests at all and have been taking it for about 5 months.  I have considered getting blood tests but never got round to it as I work up to 70 hours some weeks.  I should really get some tests.

I am gluten free but still seem to get some itching once in a while even when I have only eaten food items that I know to be gluten free.  I honestly think half of it could be in my head and dapsone these days is a placebo.  As they say the mind is a very powerful thing.

Interesting you mentioned the alcohol and mood problems.  I went out drinking last night and I have been feeling moody/depressed all day.  Could be down to the fact my skin is itching due to my yeast allergy.  Drives me f**king mental all the food allergies I have, I just wish I could eat and do what I want just like 99% of other people out there.

<{POST_SNAPBACK}>

0

Share this post


Link to post
Share on other sites

<{POST_SNAPBACK}>

Dude, working 70 hours a week and dealing with a hangover is depressing all in itself - never mind the whole gluten-free thing. I try my best to maintain the diet, gave up on boozing and take about 25mgs of dapsone a day. Been doing this for over 5 years, my skin stays clear and I would never characterize myself as depressed - a little grumpy here and there, but nobody's perfect...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,695
    • Total Posts
      921,775
  • Topics

  • Posts

    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
    • Thanks for replying. I have been a vegetarian for 31 years, I guess my diet now means I am a vegan but not by choice. Blood tests have picked up a lack of protein and I have seen a dietician who said she couldn't help me and referred me to a specialist who deals with IBS, which I don't understand as I don't have that.   I don't know my blood glucose levels but I think I will find out. I know Hashimoto's and type 1 diabetes is common in Celiac's, I asked my doctor for a thyroid antibodies test but he refused but I'll ask for the type 1 diabetes antibodies test. Thanks again.
    • Hi thanks for this. The kidney function test I a few weeks ago came back normal but there was a question mark over ketones, they said it was all okay, then last week the doctor rang me as there was ketones in a urine sample and I have to repeat the test next week. I'm a bit confused if they weren't worried about the blood test.   I feel for your brother, that sounds awful what he's been through. I have started to get some pain in the leg that is permanently numb, I really hope I find some answers soon. Thanks again.
    • I haven't seen my gastroenterologist for a few years.  I was diagnosed celiac and have been gluten free for more than 5 years.  I've been having trouble again for the past 6 months or so.  I've done a full elimination diet and have come up with the culprit - eggs!   I did a search of the forum here and have found it's not uncommon for people with celiac to develop a sensitivity to eggs.     I can forego eating eating eggs but It's getting to be flu season.  I was planning on getting my flu shot today, as usual, at work.  The pre-shot questionnaire asks if I have an allergy to eggs.  As, I have never been tested, I don't know if this is really an "allergy".   I asked the nurse about it.  She said that if I do have an allergy to eggs,  it could be dangerous to get the vaccine.   So, I didn't ended up not getting the vaccine.  Anyone else in this boat.   Has anyone actually been tested for egg allergy?   Any advice as it pertains to the flu vaccine?  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,699
    • Most Online
      3,093

    Newest Member
    kkreuz
    Joined