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Cd & Exercise
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52 posts in this topic

I used to be crazy energy girl went to the gym 5 days a week and swimming class before I started getting really sick. I didn't lose weight when I got sick, kinda the opposite I got this weird puffy water-like weight gain that wouldn't go away.

I've lost the poofed out belly and the puffyness and went back to the gym for the first time on Monday. Did 25 minutes of stairmaster ( about died), then did Muscle sculpting class on Wednesday ( took it easy had a bit of trouble keeping up), then did yoga class today ( sat out a couple moves), but I feel amazing and the best part is, I don't really hurt that much. I used to get such bad muscle pain that I would down Alleve like candy and just lie there, exhausted. I took it easy cause its been awhile, but not having that crazy muscle aches is so incredible.

I do get insanely starving though. I came back from yoga today and inhaled my food and was looking for more. I told my instructors what I had been going through ( the yoga guy's bf has celiac disease!)

and they were awesome in response to it, especially since I dissapeared from their classes about 6 months ago unexplicably.

I find that my energy is coming back, its slow but I think mine might be faster than some but I wasn't Really badly sick for all that long ( 8 mos). ( sorry for the bad grammar).

It's been a month and I'm back at the gym, taking it easy but excited about the new rock wall they are building.

Not sure about the swimming anymore because I had duodenal ulcers from H. Pylori, pretty sure that was from the pool.

Elonwy

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Glad to hear you are doing so well after being gluten-free. You are much younger than me so your body will respond more quickly than mine has lately :angry: I'm 46 and try to get to the gym, but work and such... Excersize is so good at reducing stress, which I am realizing is harder to handle with the celiac disease. And then when I accidentally get glutenized, I'm out for a week or more from that dang fatigue. So then when i finally get back to the gym I have to start all over again it seems. Keep up the good work!

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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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