51 replies to this topic

[sweetp]

i exercise at least six times a week, (training for a half marathon) i love running and i do totally fine, you just have to make sure you're getting enough carbs and protien, my doctor put me on a protien supplement. and it helps

[stef_the_kicking_cuty]

I'm finding it a real challenge to do any excercise at all. I get really short of breath, and  my balance isn't good at the best of times, but if I'm tired  ...when aren't I tired? ...I'm worse.
My heart races all the time too. I have a faster than normal heartrate. I can't remember exactly what the rate is, but I'm over 60 beats per minute sitting down.

I get a weird feeling just above my heart quite often. It's hard to descibe. Sorta like my heart is weary. Does that make sense?

Sorry for taking over this thread at this point. I'm a bit worried about myself. My doctor isn't giving me a lot of answers. I think he thinks I'm a bit of a hypercondriac (sp??) . 

Hey Maggie, I know the being short of breath and balance problem real good. I had that in my "end-stadium" so to speak, before I got my diagnosis. Since going glutenfree however it got better and better everyday. But when i'm sitting down, I have something around 60, too. Sometimes more and sometimes (very seldom though) less. And I still do now after being glutenfree. And with ingesting gluten I do have heart problems, too. But a rate around 60 while sitting is fine. And I have that weird heart feeling, too, sometimes. It's really weird, I can't describe it either, but I guess I know what you're talking about.

Hugs, Stef

[Maggie1956]

Stef, thanks for that. I feel so useless at times. I've only been gluten-free since December 1st 2004, so I guess it's still very early days, and as you said, it improves.
It's good to know people know what it feels like.

Thanks for the encouragement.

[stef_the_kicking_cuty]

Hello Maggie,

if you started in December with your glutenfree diet and your like I was, then around now it should be much better. It took me like three month, too. I started with the glutenfree diet end of July and around September/October I already felt much better and in December I haven't had any heart problems at all any more.

Hugs, Stef

[ianm]

By the end of the year you should be feeling better than you ever have before. The first three months you won't feel that much better because you body is trying to heal and clean the poisons out. In another three months you should really start feeling different. Patience is required but it will be worth the wait.

Ianm

[stef_the_kicking_cuty]

Yeah, Ianm is right. You "poisoned" your body all these years, you can't expect that it's better in two weeks.

Hugs, Stef

[Canadian Karen]

Boy, I'm tired out just READING about all this exercise!!!

If you count running after four kids, including four year old twin boys exercise, then yep, I exercise 24/7!!!!!!

Karen

[Maggie1956]

I'll hold onto those thoughts, Steph and ianm. This past few days especially, I feel really wrung out. So I'll try and look to the future and see that light at the end of the tunnel.

[cdford]

If you have not been active in a while or tend to get out of breath, you might want to try stretching exercises such as Pilates. We also have a therapy tub (a hot tub if you don't have a doctor's note for it). We had fibromyalgia so badly that initially exercising was very difficult. The hot tub really helped and now we have begun the initial Pilates program. There are several out there that are similar. They can be order off the TV, internet, or at HSN.

[stef_the_kicking_cuty]

Yes, it can be tough, if you didn't do much for a while. Even if you actually DID do something for a while it can be tough. I'm the best example. And the last couple of days I had my celiac student with fibro also standing in the gym and being real tired because all of that. A couple of weeks since diagnosis she was good now. And thursday she came to the lessons and complained about being extreme fatigue and short of breath and condition. I told here it sounded to me like she ingested gluten accidentaly. And then she said, yeah, she remembered questioning some food the day before. And at the weekend it just got worse. And yesterday she stood in the gym and couldn't do some kicks with her right leg anymore, because she "overdid" a muscle. So she has muscle fatigue, too. Just like me. That's how it can go, even if you work out like a nutball. So take it easy at the beginning.

[lcmcafee2]

Maggie,
I could have written your post ... your symptoms sound so similar to mine. Low energy, rapid heart rate, and that funny feeling (almost like an awareness of it beating in a empty drum?) I have never been able to get energy from exercising, it usually makes me feel sick. I am taking the words of advice from the experienced celiac disease folks "that it will get better".
I was diag. Nov 2004, and sort of watched what I ate until a month ago. So, I am really only a month gluten-free and waiting for the energy .... I am going out today to look into supplements to take to help as well.
The rapid heart rate I have is a result from taking beta-blockers for migraines for 25 years and now my normal/resting heart rate is around 95. I now take the same beta-blockers to keep the rate below 100! If I had know migraines could be a symptom for celiac disease I would have checked it out sooner.
Blessings to you,
Laura

[KaitiUSA]

Laura
I had high pulse and low blood pressure when standing and my heart felt like it was racing and I would get so tired. They found out I have Graves Disease which is Hyperthyroid. You may want to have your thyroid checked it runs with celiac alot. My doctor told me there are rarely any celiacs with just celiac.

[mom]

How many of you guys and gals jog? I am thinking of trying to start it again

[lcmcafee2]

There is no way in the world that I could jog at this time. OHHH even thnking about it makes me feel ill. (I am going to take Kati's advice and have the doctor check thyroid issues.)
There is a cool web site about running and it has an agenda "From couch potato to 5 K in -------- I forgot how long" I tried it when I wasn't symptomatic and did ok.
I just do not do well with exercise. Also, forgot where it is, but I remember I found it in a search using couch potato and 5K.
Good luck, my hubby runs @5 miles a day and he loves it. Get good shoes and a buddy to run with.
Blessings
Laura

[KaitiUSA]

I jog for about a mile mostly. When I don't have my daily excerise I get cranky