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Newly Diagnosed And A Sudden Relapse Of Symptoms


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6 replies to this topic

#1 pickles177

 
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Posted 21 May 2008 - 12:34 PM

Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated
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#2 ShayFL

 
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Posted 21 May 2008 - 12:48 PM

A lot of Celiacs react to Dairy. Some can eventually add it back in. If you are certain that you did not get cross contaminated, then I would suspect Dairy. Iron pills can totally screw with your digestive tract. I took "Gentle Iron" by Solgar and it didnt bother me.
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GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

#3 MELINE

 
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Posted 21 May 2008 - 12:56 PM

Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated



Hello


I had the same problem and it was all because of lactose/casein and an endless list of other food intolerances AND IBS. So I just had a test for food intolerances and when I exluded the guilty ingredients my belly stopped existing.

Just to let you know that till now I thought that everyone was feeling abdominal pain/bloating after eating. I thought it was normal.....Silly me...

You are not getting any gluten by accident, are you?

And yes lactose/casein intolerance is very common for celiacs.


Good luck

Meline
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Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008

#4 feelingbetter

 
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Posted 21 May 2008 - 02:19 PM

Just to echo what has been said here about dairy. I also had lots of problems with bloating, constipation etc until I gave up dairy.
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Brenda

Diagnosed with chronic fatigue, fibro, anemia, chronic constipation, low blood pressure, migraines, headaches, severe low sugar reactions and bipolar disorder. I was basically disabled.
March/08  Gluten and dairy free - Tested positive through enterolab
April/08   Gave up tomatoes, corn, soy, potatoes and peanutsMay/08  
May/08   Started SCD. Dramatic improvement!!! All symptoms above have mostly gone away.  Will stay on SCD for at least a year or two. My diet consists of 65% raw fruit and vegetables,  25% protein and the balance good fats.  NO PROCESSED FOODS!
Oct/08 Now 80-90% Raw Food Diet. My health continues to improve and energy is coming back.

#5 ShayFL

 
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Posted 21 May 2008 - 03:48 PM

Meline....what test did you take? Lame Advertisement
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GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

#6 MELINE

 
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Posted 21 May 2008 - 08:09 PM

Meline....what test did you take? Lame Advertisement



There is this lab here in greece that is running some tests , they call them nutritest. Without blood taking they measure the reaction of your body to some food combinations and they give you a list of your intolerances. I think my english is not good enough to explain the process in a better way....It cost me 250 euros to check 180 food ingredients. This can also be done with blood taking tests. It is 99% accurate (for me I think 100%.....)


I don't know the way you do it in your country but it was worth it for sure!!


Kisses

Meline
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Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008

#7 AliB

 
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Posted 22 May 2008 - 12:13 PM

when I realised I was GI I dropped dairy at the same time as gluten, as well as most carbs and sugar. I thought "in for a penny, in for a pound!".

I had been tootling along fairly well for the last 3 months, getting odd reactions that I thought may be to other foods or just because my gut was still healing, but on Saturday I had a blatantly obvious reaction to gluten. I'm not sure what it was that did it but I suspect some oats that I used in some cookies I made.

Either I reacted to the oats or to some kind of contamination. I didn't sleep all night and was pretty dodgy for a couple days. Then Tuesday it happened again! This time I think it was some little nut and seed cookies that also have oats in them. I have been having them all the way through but lately I noticed that after one or two my stomach wasn't very happy.

What I am thinking is that I have probably been getting some gluten contamination from them all the way through, but suspect it is likely that my immune system is starting to kick back in now and that is why I am starting to get a lot more sensitive. Foods I thought were safe, aren't.

You may have the same problem. I am trying to completely avoid anything that might be a potential trigger or might even remotely have been contaminated.

Just out of interest, because I have had to now remove the oat milk I was having (the jury's out on soy and rice milk is too high in carbs - I am diabetic) I decided to try some cream in my (dairy-free!) hot choc this morning. My guts have been grumbling all afternoon and I have been passing the most obnoxious gas so that is definitely still a no-no. I might try the lactofree milk but although I am pretty sure my problem is lactose, it might be casein too.

Those who are Celiac/GI are typically reactive to other foods particularly dairy as the enzymes that produce lactase are situated at the tips of the villi and they usually are the first things to go in the damage process, mind you I do think you would have reacted to it sooner, but these things have a habit of not doing what we expect!

I still favour some kind of contamination, so look closely at what you are having and perhaps try a basic diet with nothing processed for a while to see if it makes any difference. I am doing the Specific Carbohydrate Diet and it does seem to help (the sweet oaty cookie things are not allowed so me eating them served me right!!!)
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Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........




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