Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Newly Diagnosed And A Sudden Relapse Of Symptoms


pickles177

Recommended Posts

pickles177 Newbie

Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

A lot of Celiacs react to Dairy. Some can eventually add it back in. If you are certain that you did not get cross contaminated, then I would suspect Dairy. Iron pills can totally screw with your digestive tract. I took "Gentle Iron" by Solgar and it didnt bother me.

Link to comment
Share on other sites
MELINE Enthusiast
Was diagnosed with celiac disease only two months ago and from that date undertook a completely gluten free diet. My most severe symptom before this was extreme bloating (looking 7 months pregnant) and a lot of pain. Within 3 days of going gluten free my stomach had ease and was going down :lol:

However - only last week suddenly overnight my stomach blew up again - and I am now completely unsure as to what to do next. I've just been diagnosed as anaemic as well and am on iron tablets form the doctor for two months. Some people say I should cut out dairy, some say it could be cereals, some say it could be rice cakes - everybody is telling me something different and I'm left very confused, still severely bloated and in a lot of pain - can anybody tell me if they had this and what they did?

Any advice appreciated

Hello

I had the same problem and it was all because of lactose/casein and an endless list of other food intolerances AND IBS. So I just had a test for food intolerances and when I exluded the guilty ingredients my belly stopped existing.

Just to let you know that till now I thought that everyone was feeling abdominal pain/bloating after eating. I thought it was normal.....Silly me...

You are not getting any gluten by accident, are you?

And yes lactose/casein intolerance is very common for celiacs.

Good luck

Meline

Link to comment
Share on other sites
feelingbetter Rookie

Just to echo what has been said here about dairy. I also had lots of problems with bloating, constipation etc until I gave up dairy.

Link to comment
Share on other sites
ShayFL Enthusiast

Meline....what test did you take? Lame Advertisement

Link to comment
Share on other sites
MELINE Enthusiast
Meline....what test did you take? Lame Advertisement

There is this lab here in greece that is running some tests , they call them nutritest. Without blood taking they measure the reaction of your body to some food combinations and they give you a list of your intolerances. I think my english is not good enough to explain the process in a better way....It cost me 250 euros to check 180 food ingredients. This can also be done with blood taking tests. It is 99% accurate (for me I think 100%.....)

I don't know the way you do it in your country but it was worth it for sure!!

Kisses

Meline

Link to comment
Share on other sites
AliB Enthusiast

when I realised I was GI I dropped dairy at the same time as gluten, as well as most carbs and sugar. I thought "in for a penny, in for a pound!".

I had been tootling along fairly well for the last 3 months, getting odd reactions that I thought may be to other foods or just because my gut was still healing, but on Saturday I had a blatantly obvious reaction to gluten. I'm not sure what it was that did it but I suspect some oats that I used in some cookies I made.

Either I reacted to the oats or to some kind of contamination. I didn't sleep all night and was pretty dodgy for a couple days. Then Tuesday it happened again! This time I think it was some little nut and seed cookies that also have oats in them. I have been having them all the way through but lately I noticed that after one or two my stomach wasn't very happy.

What I am thinking is that I have probably been getting some gluten contamination from them all the way through, but suspect it is likely that my immune system is starting to kick back in now and that is why I am starting to get a lot more sensitive. Foods I thought were safe, aren't.

You may have the same problem. I am trying to completely avoid anything that might be a potential trigger or might even remotely have been contaminated.

Just out of interest, because I have had to now remove the oat milk I was having (the jury's out on soy and rice milk is too high in carbs - I am diabetic) I decided to try some cream in my (dairy-free!) hot choc this morning. My guts have been grumbling all afternoon and I have been passing the most obnoxious gas so that is definitely still a no-no. I might try the lactofree milk but although I am pretty sure my problem is lactose, it might be casein too.

Those who are Celiac/GI are typically reactive to other foods particularly dairy as the enzymes that produce lactase are situated at the tips of the villi and they usually are the first things to go in the damage process, mind you I do think you would have reacted to it sooner, but these things have a habit of not doing what we expect!

I still favour some kind of contamination, so look closely at what you are having and perhaps try a basic diet with nothing processed for a while to see if it makes any difference. I am doing the Specific Carbohydrate Diet and it does seem to help (the sweet oaty cookie things are not allowed so me eating them served me right!!!)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,213
    • Most Online (within 30 mins)
      7,748

    marimom
    Newest Member
    marimom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...