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Craving Gluten Free
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HI,

I wasnt sure where to post this, just a littel story I wanted to share b/c my mom doesnt think anything of it.....

I am 22 and self diagnosed. When I was younger and would go shopping with my mom (way before I knew I was Gluten intolerant) I always remember passing through the gluten free section in the store and stopping and looking. For some reason I was always drawn to looking at the food, especially the pretzels. I ended up bugging my mom to buy me the pretzels, and of course she got upset b/c they were more expensive, but i kept bugging and bugging :lol: So evetually she bought them for me and after that I ended up craving them (even though my mom had no idea how b/c she thought they were absolutely disgusting- haha) My mom got pretty upset everytime we went to the store and I wanted Gluten free pretzles haha she said "why dont we just get regular prtetzels?, they are much cheeper" But for some reason I just craved the gluten-free ones really bad!

Maybe it was an early sign for my mom :lol: as if getting sick all the time and almost missing a few grades in school wasnt enough!!!

just thought I'd share :)

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I never had any gluten free specialty foods until I figure out my problem with it. But, as a child and until now, I have never been much of a pasta person, never liked fried chicken or things that were breaded, most cakes and cookies I could eat very little of because they hurt my stomach. I never thought about it, because most of those things I was better off not eating anyway, but now it all makes perfect sense why I was never drawn to them. I knew subconsciously that it was those food making me sick. Just took a little while to figure it out. Adjusting to the gluten-free diet has been pretty easy for me. I know my body was craving it too!!!

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When I was a freshman in college, I noticed that I preferred not to eat wheat items - i would eat my sandwhiches open-face so I didnt have to eat so much bread, and I preferred chips and cereals which were not wheat-based. I mentioned it to my mom, and that was when she told me I was violently allergic to wheat as an infant (but i grew out of it . .. well, kinda . . . . )

I think sometimes we can be aware of things without KNOWING we're aware of them, kwim

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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