Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is It True? Can A Dermatologist Test For Dh?
0

3 posts in this topic

I recently went to my first celiac disease support group meeting and when the discussion of DH came up I asked how you knew if you had it. (I haven't had any blatant symptoms, only ones that could possibly be DH but could be something else again too.) I was told by a member (a ten year diagnosed celiac disease) that a dermatologist could, in fact, test you to see if you had DH. We didn't get around to how since the subject changed but was wondering if anyone has been tested and if so, how they do it..blood work, skin biopsy, what?

Thanks,

Kandee

0

Share this post


Link to post
Share on other sites


Ads by Google:

Well someone has to be more expert on this then me, but I've had an unexplained rash on my foot for years and after I found out I had to be gluten-free I did some research on DH. Yes your dermatologist can test for it and if I remember correctly oddly enough they take a small piece of healthy tissue (biopsy I guess) next to or near the DH skin problem.

I'm sure someone that has had this done can explain it better. My DH (I'm sure thats what it is) is not extensive and its looking somewhat better since I've been gluten free (since september 2004). So I'm hoping it will slowly disappear on its own with my gluten-free diet.

Susan

0

Share this post


Link to post
Share on other sites

That's a pretty good description according to what my dermatologist said. She also said that it is different than the usual biopsy in that it is time sensitive so they have to plan ahead a little more when they schedule it so that the lab gets it picked up more rapidly. Might want to keep that in mind when you make the appt and ask if that holds true at your doc . It may be an insurance issue with mine since I am required to use a specific lab in order for it to be covered.

I had DH for most of my life but we wrote it off as being extremely sensitive to an odd poison ivy outbreak or allergies. I would get "PI outbreaks" even in the winter. We thought I had just come into contact with it from summer gardening tools or a neighbor burning off their land, that sort of thing. Now that I know what it is and have had a DH outbreak and PI concurrently, I know that they even "itch" differently.

When I accidently get into some gluten, the outbreak begins with itchy, sensitive feeling skin. It gets kind of reddish and then up comes the rash. Usually the rash arrives within 24-48 hours after the initial symptoms, has what looks similar to pus pockets you might see with PI, an ant bite, or chicken pox though whiter, and "itches" intensely. My experience is that the "itch" is more like having a few hundred tiny needles tapping at you from under the skin...so much so that you just want to dig them out with your fingernails. After the initial outbreak begins to clear, they come and go for five or six months. They scab over and scar over, then break back open again off and on. They can leave discolored areas on the skin that can be cleared up with a lot of effort and Mederma or a similar product. Once you know what it is, you can sense an outbreak coming and recognize the differences between it and other problems. It takes a little experience, though.

Also, if you scratch much you can trigger a secondary infection that requires an antibiotic to clear it up. Keeping them moist seems to help. I use Clindagel and then keep it moist with a product containing petroleum jelly and some natural ingredients (camphor, methol, etc) to help ease the itch. Your dermatologist might have some different suggestions.

While the outbreaks I have read seem to be in a different location, mine often begin in my hairline, on my chin, and on my neck and shoulders. Sometimes they will also be on my arms, trunk, and legs. My daughter's usually arrive on her legs then "spread" to her arms and face. This spreading factor combined with the intense itchiness is what I think caused us to associate it the PI...not having a clue about DH at the time.

From what I have read and my own experience, it takes more than a year gluten-free for the rash to fully disappear. I was closer to a year and a half though I did see progress after a shorter period of time.

Hope this helps. The good news is that if it is associated with the celiac disease/DH problem, going gluten-free will eventually correct it. Don't be surprised it you have it a little worse initially upon going gluten-free. Ours did but got much better the longer I stayed gluten-free.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,357
    • Total Posts
      920,528
  • Topics

  • Posts

    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)  
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
    • I had a biopsy done (2 samples, 1 on a lesion and 1 next to lesions), and also more bloodwork done. All came back negative. However, I only had been eating gluten for 2 weeks prior, and it took a week of gluten for lesions to reappear. I also used a topical steroid off and on (1x a week approximately) for a month or so before testing. The dermatologist told me to stay off gluten though, and said she wants to do more allergy testing (her next open testing appt is in 6 months!!). I know I'm not the DR, but I dont think it's allergies...without a doubt, my skin begins clearing about 2 weeks post gluten-free diet...this is without changing anything else in my lifestyle. And when i had to go back on gluten before my biopsy, it took about a week, but did reappear. Now, about 2 weeks post biopsy and gluten-free, it had begun clearing until i worked outside all day in heat, humidity,  sweat etc and it has definitely irritated all the places that were healing (not new breakouts, just aggravating what was going away!). All that being said, i have a friend who is an MD( who's hobby is to attend conferences on skin conditions!), and she has told me that without a doubt, I have celiac/DH.  I think I just feel like I need test results and paperwork to show for it...especially to show family members who are unsupportive (gross understatement!) of the extreme changes I've had to make!
    • Sorry ! I have never cruised before.  Just wanting to follow your topic.  Good luck! Have a great,  safe vacation.  
    • Hi there, I hope you're all having a good day! I'll be heading on a week-long Carnival cruise shortly and had a few questions: -What is the tipping protocol? I've prepaid gratuities, but feel like the food request will warrant something extra. Should I tip the headwaiter? Hostess? Regular waiter? Chef? Those cooking at, say, the sandwich or pasta bars? If so, how much is appropriate, and should I tip at the beginning of the cruise, the end, or split it up? -It looks like the main dining room will be closed during lunch hours on most days. Any recommendations on safe bets for midday meals? I'll be on the Carnival Sunshine, for what that's worth. Thank you so much for any information you can share!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined