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Scope Or No Scope
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6 posts in this topic

I am a celiac and my daughter just tested positive.

What is the feeling on getting her scoped or just getting her on the diet.

Do you need to be scoped to get the diagnosis of Celiac?

thanks for you help.

w

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I would say definitely have her scoped. My 7 year old had her biopsy and it was a piece of cake. She was put under for less than a half an hour and we were at the hospital for less than 4 hours.

I think by her having a definite confirmed diagnosis it will help her as she gets older in being more compliant with the diet (at least I hope so anyways).

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I would do the scope. It might catch something you weren't aware of. When my 8-year-old son has his scope in March his GI said his esophagus was damaged and put him on Pepcid for reflux. He also said it looked like my son had hives on his esophugus (from his food allergies). We would have never known this if we wouldn't have done the scope. Good luck!

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I am all for the scope. Your child may be more than a bit nervous about the scope see if she can talk t other kids who have had a scope done. It is quick and painless. The scope can be used to rule out other problems your child may be having. Most importantly the biospy is not something that the school or your child can deny. This disease can be depressing at times and I can see arguing with my parents as a teenager about whether or not I actually had the disease if they did not have the biopsy proof. (I was diagnosed as an adult.) Even with a biopsy disgnosis, I have had my family question the need to be 100% gluten-free all of the time.

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I want to thank you all for such great advice....We have decided to have the endoscopy done.

My sweetie is a real trouper and isn't putting up a fuss.

You have all made such great point! I am glad I asked and I love to have someone to ask!!!

Thanks,

w

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I just hope that the scope is scheduled to be done really soon, as otherwise your daughter will get sicker as she has to eat gluten until the scope can be done.

If you have to wait more than two weeks, personally, I would skip the scope and put the child on the diet. A positive blood test and a mother who has celiac disease (and therefore the same genes) would be enough for me. The gluten-free diet itself is diagnostic too, if she has a positive response to it.

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    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
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