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Endoscopy?


rachisrunning

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rachisrunning Newbie

Hi, I'm new here, and I just had a question about diagnosis. I got very sick about four weeks ago. I couldn't stop going to the bathroom. I got blood work done, but my doctor recommended a gluten free diet in the mean time as my father has celiac and he thought that could be the source of my discomfort. I've been gluten-free for nearly two weeks and I feel so much better, but my blood work came back negative. My doctor suggested an endoscopy, but I'm not sure I want to get sick again.... Any suggestions?

Rachel

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ShayFL Enthusiast

It all depends if you want an "official"diagnosis. I didnt need one. After suffering for 12 years, I am happy the diet is helping me. Im not going to go back to migraines just for a Dx. But that is just me.

But I do feel that if you do not go for the "gold standard" biopsy, that you need to basically accept you have it and adhere to a gluten-free diet for life. At some point if you add it back in and dont get symptoms, you could be damaging yourself without knowing it which can lead to cancers and diabetes just to name a few. So if you dont get the Dx, you might have a "false" sense of security and start eating it again someday. I you cannot trust yourself to stay gluten-free for life, then you might NEED a biopsy to give you the reason.

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    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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