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What Is Wrong With Me?
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My symptoms became very severe around July of this year. I have what I call an "attack". I start feeling dizzy, cramping, diarrhea. My blood pressure shoots up and I become very emotional and tired. The foggy head will last for hours. I am almost positive it is a reaction to food of some kind. My whole body seems to want to get rid of it. I dont get them if I only eat chicken and white rice. I am now seeing a GI. I have had ultrasound of gallbladder, thyroid tests, colonoscopy, parasite tests, blood tests, liver panel, etc. Everything is normal. I aked for a Celiac panel and he agreed. They said it came back negative. I asked for a copy and everything said normal but IgG was slightly elevated, 33. I had been staying away from wheat products just in case and after I heard it was ok I began to eat breads. Within 2 hours I started with the dizzy spells and foggy head. Then Friday my stomach was acting up and I took Immodium and Bentyl to counteract any problems. By 9am my head was spinning so bad I could not walk. I went to the ER not knowing what was happening. He basically treated me like a "nervous female", gave me antivert and sent me home. My blood pressure was 170/119 by the way, I was in tears and off balance. After things subsided my blood pressure went down to 108/69. Has anyone had similar symptoms? This is becoming very debilitating and I dont know what to do next.

Thanks so much

Janine

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Hi Janine,

I just had to respond to you because your symptoms sound just like mine did

almost a year ago. For several years my eyes would burn and sting.Every

doctor agreed it was allergy. I tested positive for trees, grass,etc. but skin test for wheat was NEG. I always thought I had a problem w/wheat but they just poo-

pooed what I thought and just prescribed more pills. Then last March I began

having spells. I felt as though I was going to faint, got nauseous, and developed

right sided pain followed by diarrhea, along with eyes burning. I was so scared

my blood pressure rose too, i have had hypertension since taking birth control

pills years ago.I had a multitude of tests, scans and scopes.Last Oct my GI doctor

tested me for celiac disease but the genetic test came back NEG..The only abnormal

reading was a very slight allergy to wheat. He told me to try the celiac disease diet, never sent me to a nutritionist, just told me to avoid wheat, barley, rye, and distilled

vinegar. He said nothing about gluten or all of the other things we need to

avoid. On Nov/03 I started the gluten free diet, I came to read the postings

on this board every day. I have learned so much, and you will too

When I was at my worst, I was afraid to drive because I was afraid of getting

sick. I forgot to mention I had brain fog really bad, then I gave up dairy and it went away....

If I were you I would try this diet for a while, watch your sodium intake

and take it easy for a while.It takes a lot of time and patience with this diet

but you will start feeling better every day. Feel free to ask questions on this

board,it is very user friendly and helpful..hope this helps..

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Thanks for your reply Judy. I just don't know what to do anymore. I am afraid of food, I am down 15 lbs and starting to lose again. If I only knew what to avoid and what I can have.

When I stopped eating sandwiches for lunch, the afternoon brain fog went away. I always thought it was more from bad air in the building I work in. The ventillation is not very good. Now I know that is not it. Now I have turkey or chicken breast with rice or potato and I feel ok in the afternoon.

Would going to an allergist help? What about a nutritionist? My appt with my doctor is Wed. I haven't talked to him yet about the celiac panel so I don't know what the higher IgG means.

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Hi, let me try this again. I realize how you are feeling. I think that you may be

allergic to food of some type which is causing the brain fog.I had to do an elimination type diet. I only ate one thing at a time to see what kind of reaction it would cause. It helps to keep a journal, which you can look back on to see what food you have eaten. It took a long while for me to realize I couldn't eat tomatoes

either. I don't know if food allergies can cause intestinal damage as wheat or milk

can, but I'm learning to listen to what my body is trying to tell me, as it has for

years. I knew there was something wrong, just couldn't figure out what it was.

Thank God I started to have GI symptoms and was able to get a diagnosis.

If I were you I would hold off on seeing an allergist until you see your MD.

If it is food allergy, the best treatment is to stop ingesting what you are allergic to.

There are RAST test which can determine what you are allergic to, but it is better if you can identify them.Please remember you are going to get well,just

eat non processed food for a while, like rice,meat, potatoes,bananas. try to cut out all dairy,eggs[yolks] cheese and yogurt. You can add these later as you begin to heal. Good luck to you...

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    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
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