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hvacceliac

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hvacceliac Rookie

I live in Northern Indiana and am in need of a doctor who knows more about celiac than just looking up the word when I mention it to them. I have been diagnosed with celiac about 8-9 months ago and have been doing my level best to stay on a gluten free diet. I am having side effects on top of side effects but can't seem to get answers from my doctors..

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922 Newbie

Dr. Herbstman is a gastrointerologist in Munster that has patients with Celiac.

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Lesliean Apprentice

I've been doing a lot of research using the new scholar.google.com search engine. One study involved gluten-free celiac patients with symptoms. 86% were improved when gluten-free products were removed as they are federally allowed to contain .03% gluten which caused the symptoms. You already know you may have difficulty breaking down dairy becuase of the current intestinal damage. You may be having different side-effects. If so, what? Good luck!

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    • B1rdL0ver
    • shadycharacter
      Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.
    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
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