Help
So I just went back to the doctor because I feel like hell. I just had a really bad glutening, but I was feeling really tired and lethargic for a month before that anyway.
First, she ran some tests, including testing my vitamin D level. Does anyone else have problems with this? I looked into it, and it turns out that using any kind of laxative is bad for this. She told me I could use docusate sodium every day and that it was safe, since it isn't like exlax or fiber/gluten based. Still, is this worse than I thought? She gave me the prescription because I'm taking and eating a lot of iron, which really backs me up. I can't stop taking/eating iron, and I can't eat enough vegies to counteract the amount of iron I'm taking.
She also ran other tests like blood count and B vitamins, but these have all been normal in the last two years so I don't expect those to be different.
-------
Rant: I had to twist her arm to get tests for other fatigue issues like autoimmune problems. This woman still thinks I'm imagining things. If I'm willing to pay for it and I have a strong family history, why the heck shouldn't she test for it? I'm having trouble making it up the stairs without muscle fatigue even though I've been a runner for 10 years, and she just tells me to "try swimming because it uses different muscles," "try walking 15 minutes a day and working up," and "get back on the Prozac for energy."
What. The. @#$&. I'm not even 30. Prozac? Yeah. I made an appointment with a doctor at Stanford as soon as I finished getting my labs done, when I was still in the parking lot.
Page 1 of 1
Malabsorption - Thoughts? Experiences?
especially Vitamin D
Rate Topic:
#1
munchkinette 
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Posted 28 June 2008 - 12:02 PM
Gluten free since Feb 2006, Dairy and Soy free since 2009
Anemic off and on since 2003
Negative tTG Ab, IgA, Gliadin Ab IgA, wheat allergy (IgE) blood tests (Feb 2006)
Positive wheat allergy skin test(Apr 2006)and dietary response (Feb 2006)
Celiac grandmother (Dx in 1940s, "grew out of it")
Training for my first triathlon to support the Crohn's and Colitis Foundation of America.
~Amy
Anemic off and on since 2003
Negative tTG Ab, IgA, Gliadin Ab IgA, wheat allergy (IgE) blood tests (Feb 2006)
Positive wheat allergy skin test(Apr 2006)and dietary response (Feb 2006)
Celiac grandmother (Dx in 1940s, "grew out of it")
Training for my first triathlon to support the Crohn's and Colitis Foundation of America.
~Amy
#2
ShayFL
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Posted 28 June 2008 - 04:22 PM
I have low Vit D and iron as well. Taking extra vit C (like 2000 mg a day) and taking magnesium (at least 500 mg per day) can help with the C. You should take calcium and magnesium when you take Vit D or it can actually deplete you of calcium.
You could try 1000 calcium and 500 magnesium plus Vit D (my doctor has me on 5000 IU a day till I catch up). Should retest every 3-4 weeks to make sure you dont go over.
It is safe to take 2000 mg Vit C a day and it also helps you absorb the iron.
You could try 1000 calcium and 500 magnesium plus Vit D (my doctor has me on 5000 IU a day till I catch up). Should retest every 3-4 weeks to make sure you dont go over.
It is safe to take 2000 mg Vit C a day and it also helps you absorb the iron.
GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)
Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!
Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!
#3
frec
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Posted 22 July 2008 - 04:15 PM
I am having malabsorption problems as well. My D level is still low even though I've been on 5000 IU for a year now. (Make sure it is D3, and that you take it with some kind of fat for better absorption. I use peanut butter.) Some celiacs have bacterial overgrowth in their small intestines and that can cause continued digestive and absorption problems even on a gluten free diet. Many celacs also have thyroid problems which can cause fatigue. You also could have other food intolerances--soy or dairy are two of the main culprits. I think I've found all my food intolerances so I am trying the Candida diet for a possible overgrowth problem.
Have you tried a naturopath? They are really good on nutrition issues. Good luck with the doctor at Stanford.
PS I am REALLY tired of people telling me to swim. Want world peace? Try swimming laps...
Have you tried a naturopath? They are really good on nutrition issues. Good luck with the doctor at Stanford.
PS I am REALLY tired of people telling me to swim. Want world peace? Try swimming laps...
diagnosed with celiac disease in 2002--all test numbers off the charts
dairy free since 2000, soy free since 2007
other food intolerances: citrus, sesame, potatoes, corn, coffee
fibromyalgia, osteoporosis
dairy free since 2000, soy free since 2007
other food intolerances: citrus, sesame, potatoes, corn, coffee
fibromyalgia, osteoporosis
#4
Nancym
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Posted 23 July 2008 - 07:41 AM
Vit. D deficiency is epidemic in this country. Good site to read up on it: http://vitamindcouncil.org
#5
babysteps
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Posted 23 July 2008 - 12:14 PM
I just read this online at the Wall Street Journal - if I paste in a link it only works for 7 days (60 I think if you are a subscriber). So the general world is perhaps getting more aware!
HEALTH JOURNAL
By MELINDA BECK
Defending Against Disease --
With Vitamin D
New Studies Suggest
It Isn't Just Bones
That Might Benefit
July 15, 2008; Page D1
Sunlight, as a source of vitamin D, is free and abundant, at least in most of the world. Supplements are almost as cheap. Yet a growing number of experts think that many people aren't getting enough vitamin D -- particularly those who work and play indoors and slather on sunscreen. And the more experts learn about what D does, the more worrisome a deficiency seems.
It's long been known that D is crucial for strong bones. But new research suggests that it also protects against a wide variety of diseases. A study in the Archives of Internal Medicine last month found that men with low D had a higher risk for heart attacks. Other studies have linked low D with cancer of the breast, ovary, prostate, stomach, bladder, esophagus, kidney and lung. Low levels of D also have been associated with high blood pressure, stroke, diabetes, periodontal disease, rheumatoid arthritis, multiple sclerosis, macular degeneration, mental illness and chronic pain.
"It sounds crazy -- until you realize that vitamin D turns into a steroid hormone that's involved in the maintenance of over 200 human genes," says John J. Cannell, founder of the nonprofit Vitamin D Council in Atascadero, Calif.
The strongest source, by far, is ultraviolet B rays from the sun, which convert a form of cholesterol into vitamin D in the skin. A person sitting outside in a bathing suit in New York City gets more vitamin D in 20 minutes than from drinking 200 glasses of milk. But UVB rays vary greatly depending on latitude, cloud cover, time of year and time of day. Above 42 degrees north latitude (a line from the northern California border to Boston), the sun's rays don't provide sufficient D from November through February. Researchers looking at latitude and disease rates have found some intriguing patterns. Type 1 diabetes, for example, is much rarer in countries like Cuba than in either New Zealand and Sweden.
Dark-skinned and elderly people don't process vitamin D from the sun as efficiently as younger, fair-skinned people. UVB rays also don't penetrate glass or sunscreen with a factor of 8 or more.
GETTING YOUR D
Sunlight:
• 20 minutes of noontime sun in New York City in July: 20,000
Foods:
• Cod Liver Oil, 1 Tbs: 1,360
• Salmon, 3.5 oz: 360
• Tuna, canned, 3 oz: 200
• Milk, D-fortified, 1 cup: 98
• Egg yolk, 1: 20
• Liver, 3.5 oz: 15
Supplements:
• Most multivitamins: 400
• Others: 200 to 10,000
Note: In international units
Source: National Institutes of Health, Office of Dietary Supplements
It's difficult to get much D through diet. Few foods contain it naturally -- mainly fatty fish like salmon, mackerel and tuna, as well as liver and egg yolks. Since the 1930s, most milk in the U.S. has been fortified with D to prevent rickets, a bone-softening disease.
It's widely accepted that most people need some supplemental D -- the question is, how much? Current U.S. guidelines, issued in 1997, call for 200 international units from birth through age 50; 400 IUs from 51 through age 70 and 600 IUs from 71 on. But many experts and the American Medical Association are urging the government to revisit those numbers in light of the latest research, and the Institute of Medicine is in discussions to do so.
Some groups aren't waiting. The American Academy of Pediatrics says breast-fed infants should get 400 IUs of supplemental D daily. The National Osteoporosis Foundation urges adults over age 50 to get at least 800 to 1,000 IUs to prevent fractures. Look for D3, which is more potent than D2.
You can learn your vitamin D level with a blood test, which costs about $100. It should measure 25-hydroxyvitamin D, not 1,25-dihydroxyvitamin D. A concentration of less than 20 nanograms per milliliter is considered deficient. Many cancer-prevention benefits have been seen at levels of 30 ng/ml or more. Alan Pocinki, an internist in Washington, D.C., has been testing his patients -- mostly white-collar workers with indoor jobs -- and found about half are below 20 ng/ml.
It's not possible to overdose on vitamin D from the sun; it degrades in the skin at high levels. For supplements, the Institute of Medicine set an upper limit of 2,000 IUs per day, but some experts think that's too low. Vitamin D toxicity can involve kidney stones and heart arrhythmias, but cases are very rare.
Does all this D-iscussion leave you D-izzy? "Many people are confused by the conflicting messages," says Len Lichtenfeld, deputy chief medical officer for the American Cancer Society, which suggests getting D from supplements, not the sun. "We need to know more about what the health benefits are, and what the right level is. We're a country of different ethnicities and locations and sensitivities. We probably can't make a one-size-fits-all recommendation."
• Email HealthJournal@WSJ.com
Copyright © 2008 Dow Jones & Company, Inc. All Rights Reserved
DowJones
HEALTH JOURNAL
By MELINDA BECK
Defending Against Disease --
With Vitamin D
New Studies Suggest
It Isn't Just Bones
That Might Benefit
July 15, 2008; Page D1
Sunlight, as a source of vitamin D, is free and abundant, at least in most of the world. Supplements are almost as cheap. Yet a growing number of experts think that many people aren't getting enough vitamin D -- particularly those who work and play indoors and slather on sunscreen. And the more experts learn about what D does, the more worrisome a deficiency seems.
It's long been known that D is crucial for strong bones. But new research suggests that it also protects against a wide variety of diseases. A study in the Archives of Internal Medicine last month found that men with low D had a higher risk for heart attacks. Other studies have linked low D with cancer of the breast, ovary, prostate, stomach, bladder, esophagus, kidney and lung. Low levels of D also have been associated with high blood pressure, stroke, diabetes, periodontal disease, rheumatoid arthritis, multiple sclerosis, macular degeneration, mental illness and chronic pain.
"It sounds crazy -- until you realize that vitamin D turns into a steroid hormone that's involved in the maintenance of over 200 human genes," says John J. Cannell, founder of the nonprofit Vitamin D Council in Atascadero, Calif.
The strongest source, by far, is ultraviolet B rays from the sun, which convert a form of cholesterol into vitamin D in the skin. A person sitting outside in a bathing suit in New York City gets more vitamin D in 20 minutes than from drinking 200 glasses of milk. But UVB rays vary greatly depending on latitude, cloud cover, time of year and time of day. Above 42 degrees north latitude (a line from the northern California border to Boston), the sun's rays don't provide sufficient D from November through February. Researchers looking at latitude and disease rates have found some intriguing patterns. Type 1 diabetes, for example, is much rarer in countries like Cuba than in either New Zealand and Sweden.
Dark-skinned and elderly people don't process vitamin D from the sun as efficiently as younger, fair-skinned people. UVB rays also don't penetrate glass or sunscreen with a factor of 8 or more.
GETTING YOUR D
Sunlight:
• 20 minutes of noontime sun in New York City in July: 20,000
Foods:
• Cod Liver Oil, 1 Tbs: 1,360
• Salmon, 3.5 oz: 360
• Tuna, canned, 3 oz: 200
• Milk, D-fortified, 1 cup: 98
• Egg yolk, 1: 20
• Liver, 3.5 oz: 15
Supplements:
• Most multivitamins: 400
• Others: 200 to 10,000
Note: In international units
Source: National Institutes of Health, Office of Dietary Supplements
It's difficult to get much D through diet. Few foods contain it naturally -- mainly fatty fish like salmon, mackerel and tuna, as well as liver and egg yolks. Since the 1930s, most milk in the U.S. has been fortified with D to prevent rickets, a bone-softening disease.
It's widely accepted that most people need some supplemental D -- the question is, how much? Current U.S. guidelines, issued in 1997, call for 200 international units from birth through age 50; 400 IUs from 51 through age 70 and 600 IUs from 71 on. But many experts and the American Medical Association are urging the government to revisit those numbers in light of the latest research, and the Institute of Medicine is in discussions to do so.
Some groups aren't waiting. The American Academy of Pediatrics says breast-fed infants should get 400 IUs of supplemental D daily. The National Osteoporosis Foundation urges adults over age 50 to get at least 800 to 1,000 IUs to prevent fractures. Look for D3, which is more potent than D2.
You can learn your vitamin D level with a blood test, which costs about $100. It should measure 25-hydroxyvitamin D, not 1,25-dihydroxyvitamin D. A concentration of less than 20 nanograms per milliliter is considered deficient. Many cancer-prevention benefits have been seen at levels of 30 ng/ml or more. Alan Pocinki, an internist in Washington, D.C., has been testing his patients -- mostly white-collar workers with indoor jobs -- and found about half are below 20 ng/ml.
It's not possible to overdose on vitamin D from the sun; it degrades in the skin at high levels. For supplements, the Institute of Medicine set an upper limit of 2,000 IUs per day, but some experts think that's too low. Vitamin D toxicity can involve kidney stones and heart arrhythmias, but cases are very rare.
Does all this D-iscussion leave you D-izzy? "Many people are confused by the conflicting messages," says Len Lichtenfeld, deputy chief medical officer for the American Cancer Society, which suggests getting D from supplements, not the sun. "We need to know more about what the health benefits are, and what the right level is. We're a country of different ethnicities and locations and sensitivities. We probably can't make a one-size-fits-all recommendation."
• Email HealthJournal@WSJ.com
Copyright © 2008 Dow Jones & Company, Inc. All Rights Reserved
DowJones
gluten-free (except unintentionally) from 7 Dec 2007
3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)
suspect mother was celiac (also, cousin suspects my mother's twin is celiac)
Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies
Staying off gluten - dietary reaction is compelling for me!
"Hi, I'm the gluten-free diner at your table."
3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)
suspect mother was celiac (also, cousin suspects my mother's twin is celiac)
Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies
Staying off gluten - dietary reaction is compelling for me!
"Hi, I'm the gluten-free diner at your table."
#6
darlindeb25
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Posted 23 July 2008 - 05:54 PM
As in all vitamins, there is good Vit D, and not so good. When buying Vit D, you should always get Vit D as Cholecalciferol. I just found out that my Vit D is low too. I found Spring Valley Vit D at Walmart, it was $8.97 for 200 coated 2000 IU.
Vit B12 is another vitamin that comes in different forms. The best, and easiest for your body to absorb is methylcobalamin in an sublingual form. Cynacobalamin is much harder for our bodies to process.
Vit B12 is another vitamin that comes in different forms. The best, and easiest for your body to absorb is methylcobalamin in an sublingual form. Cynacobalamin is much harder for our bodies to process.
Deb
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
#7
munchkinette
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- Posts: 443
- Joined: 31-January 06
Posted 27 July 2008 - 07:28 AM
Thanks for pasting that article, babysteps. It got me thinking about sun. I'm paranoid about because I'm so fair, and I get sunburnt so easily. (Yesterday, for example.) A lot of us are probably good about staying out of the sun, because gluten intolerance is so much more common in the countries with pale people. We are probably the ones who need it the most. Maybe I should get more sun.
---------
Follow up: The new doctor at Stanford is awesome, mainly because she is open minded, recognizes that diets and other non-drug treatments are good, and admits that she has limited expertise, meaning she is willing to refer me to as many specialists as I need. I scheduled my physical with her.
---------
Follow up: The new doctor at Stanford is awesome, mainly because she is open minded, recognizes that diets and other non-drug treatments are good, and admits that she has limited expertise, meaning she is willing to refer me to as many specialists as I need. I scheduled my physical with her.
Gluten free since Feb 2006, Dairy and Soy free since 2009
Anemic off and on since 2003
Negative tTG Ab, IgA, Gliadin Ab IgA, wheat allergy (IgE) blood tests (Feb 2006)
Positive wheat allergy skin test(Apr 2006)and dietary response (Feb 2006)
Celiac grandmother (Dx in 1940s, "grew out of it")
Training for my first triathlon to support the Crohn's and Colitis Foundation of America.
~Amy
Anemic off and on since 2003
Negative tTG Ab, IgA, Gliadin Ab IgA, wheat allergy (IgE) blood tests (Feb 2006)
Positive wheat allergy skin test(Apr 2006)and dietary response (Feb 2006)
Celiac grandmother (Dx in 1940s, "grew out of it")
Training for my first triathlon to support the Crohn's and Colitis Foundation of America.
~Amy
#8
babysteps
- Advanced Community Member
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- Group: Advanced Members
- Posts: 299
- Joined: 20-December 07
Posted 27 July 2008 - 03:36 PM
munchkinette, on Jul 27 2008, 11:28 AM, said:
Thanks for pasting that article, babysteps. It got me thinking about sun. I'm paranoid about because I'm so fair, and I get sunburnt so easily. (Yesterday, for example.) A lot of us are probably good about staying out of the sun, because gluten intolerance is so much more common in the countries with pale people. We are probably the ones who need it the most. Maybe I should get more sun.
---------
Follow up: The new doctor at Stanford is awesome, mainly because she is open minded, recognizes that diets and other non-drug treatments are good, and admits that she has limited expertise, meaning she is willing to refer me to as many specialists as I need. I scheduled my physical with her.
---------
Follow up: The new doctor at Stanford is awesome, mainly because she is open minded, recognizes that diets and other non-drug treatments are good, and admits that she has limited expertise, meaning she is willing to refer me to as many specialists as I need. I scheduled my physical with her.
good on the doctor progress munckinette!
I am very fair, but generally don't burn super-easily (burn in water or on snow, not usually otherwise). However I used to feel the sun on my skin as an immediate low level burn even if there was no change in color. Now that I am gluten-free, I swear that I am *less* sensitive to the sun.
I have been exposing myself to a bit more - nothing crazy (and no burns yet!), most days just say 10 minutes in the morning or evening or a few minutes at mid-day - no sunblock involved. I think it is helping. We'll see for sure the next time I get my vitD checked.
I do wear 'sunblock' clothing from Sun Precautions - that way I don't have to find a sunblock that my skin tolerates, and when I take off my wrap or jacket I can soak in some vitD producing rays at full volume
gluten-free (except unintentionally) from 7 Dec 2007
3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)
suspect mother was celiac (also, cousin suspects my mother's twin is celiac)
Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies
Staying off gluten - dietary reaction is compelling for me!
"Hi, I'm the gluten-free diner at your table."
3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed)
suspect mother was celiac (also, cousin suspects my mother's twin is celiac)
Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies
Staying off gluten - dietary reaction is compelling for me!
"Hi, I'm the gluten-free diner at your table."
#9
Wendy Cohan R.N.
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Posted 13 November 2009 - 07:59 AM
munchkinette, on Jun 28 2008, 12:02 PM, said:
So I just went back to the doctor because I feel like hell. I just had a really bad glutening, but I was feeling really tired and lethargic for a month before that anyway.
First, she ran some tests, including testing my vitamin D level. Does anyone else have problems with this? I looked into it, and it turns out that using any kind of laxative is bad for this. She told me I could use docusate sodium every day and that it was safe, since it isn't like exlax or fiber/gluten based. Still, is this worse than I thought? She gave me the prescription because I'm taking and eating a lot of iron, which really backs me up. I can't stop taking/eating iron, and I can't eat enough vegies to counteract the amount of iron I'm taking.
She also ran other tests like blood count and B vitamins, but these have all been normal in the last two years so I don't expect those to be different.
-------
Rant: I had to twist her arm to get tests for other fatigue issues like autoimmune problems. This woman still thinks I'm imagining things. If I'm willing to pay for it and I have a strong family history, why the heck shouldn't she test for it? I'm having trouble making it up the stairs without muscle fatigue even though I've been a runner for 10 years, and she just tells me to "try swimming because it uses different muscles," "try walking 15 minutes a day and working up," and "get back on the Prozac for energy."
What. The. @#$&. I'm not even 30. Prozac? Yeah. I made an appointment with a doctor at Stanford as soon as I finished getting my labs done, when I was still in the parking lot.
First, she ran some tests, including testing my vitamin D level. Does anyone else have problems with this? I looked into it, and it turns out that using any kind of laxative is bad for this. She told me I could use docusate sodium every day and that it was safe, since it isn't like exlax or fiber/gluten based. Still, is this worse than I thought? She gave me the prescription because I'm taking and eating a lot of iron, which really backs me up. I can't stop taking/eating iron, and I can't eat enough vegies to counteract the amount of iron I'm taking.
She also ran other tests like blood count and B vitamins, but these have all been normal in the last two years so I don't expect those to be different.
-------
Rant: I had to twist her arm to get tests for other fatigue issues like autoimmune problems. This woman still thinks I'm imagining things. If I'm willing to pay for it and I have a strong family history, why the heck shouldn't she test for it? I'm having trouble making it up the stairs without muscle fatigue even though I've been a runner for 10 years, and she just tells me to "try swimming because it uses different muscles," "try walking 15 minutes a day and working up," and "get back on the Prozac for energy."
What. The. @#$&. I'm not even 30. Prozac? Yeah. I made an appointment with a doctor at Stanford as soon as I finished getting my labs done, when I was still in the parking lot.
#10
Wendy Cohan R.N.
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Posted 13 November 2009 - 08:05 AM
Hi,
I know this post is quite old, but wanted to mention the article I wrote a few months ago for celiac.com called "For Persistent Fatigue on a Gluten Free Diet, Consider Adrenal Fatigue". Also, you should know that guar gum is a good bulk forming laxative, although it's not a bowel stimulant. There's a difference. It definitely will promote regular bowel patterns. You can use guar gum in replacement of xanthan gum in all your baked goods. Guar gum is also cheaper. I also wrote an article that talks more about this, called "Xanthan Sensitivity May be Complicating Your Recovery" last year on celiac.com. I'm not writing to promote myself, but I honestly think these two articles have important information that may aid in your recovery. I've suffered from malabsorption, adrenal fatigue, and constipation, although for some reason I'm rarely anemic.
It sounds like you're doing much better now. I hope you're able to keep up the running...
Wendy Cohan, RN
I know this post is quite old, but wanted to mention the article I wrote a few months ago for celiac.com called "For Persistent Fatigue on a Gluten Free Diet, Consider Adrenal Fatigue". Also, you should know that guar gum is a good bulk forming laxative, although it's not a bowel stimulant. There's a difference. It definitely will promote regular bowel patterns. You can use guar gum in replacement of xanthan gum in all your baked goods. Guar gum is also cheaper. I also wrote an article that talks more about this, called "Xanthan Sensitivity May be Complicating Your Recovery" last year on celiac.com. I'm not writing to promote myself, but I honestly think these two articles have important information that may aid in your recovery. I've suffered from malabsorption, adrenal fatigue, and constipation, although for some reason I'm rarely anemic.
It sounds like you're doing much better now. I hope you're able to keep up the running...
Wendy Cohan, RN
munchkinette, on Jun 28 2008, 12:02 PM, said:
So I just went back to the doctor because I feel like hell. I just had a really bad glutening, but I was feeling really tired and lethargic for a month before that anyway.
First, she ran some tests, including testing my vitamin D level. Does anyone else have problems with this? I looked into it, and it turns out that using any kind of laxative is bad for this. She told me I could use docusate sodium every day and that it was safe, since it isn't like exlax or fiber/gluten based. Still, is this worse than I thought? She gave me the prescription because I'm taking and eating a lot of iron, which really backs me up. I can't stop taking/eating iron, and I can't eat enough vegies to counteract the amount of iron I'm taking.
She also ran other tests like blood count and B vitamins, but these have all been normal in the last two years so I don't expect those to be different.
-------
Rant: I had to twist her arm to get tests for other fatigue issues like autoimmune problems. This woman still thinks I'm imagining things. If I'm willing to pay for it and I have a strong family history, why the heck shouldn't she test for it? I'm having trouble making it up the stairs without muscle fatigue even though I've been a runner for 10 years, and she just tells me to "try swimming because it uses different muscles," "try walking 15 minutes a day and working up," and "get back on the Prozac for energy."
What. The. @#$&. I'm not even 30. Prozac? Yeah. I made an appointment with a doctor at Stanford as soon as I finished getting my labs done, when I was still in the parking lot.
First, she ran some tests, including testing my vitamin D level. Does anyone else have problems with this? I looked into it, and it turns out that using any kind of laxative is bad for this. She told me I could use docusate sodium every day and that it was safe, since it isn't like exlax or fiber/gluten based. Still, is this worse than I thought? She gave me the prescription because I'm taking and eating a lot of iron, which really backs me up. I can't stop taking/eating iron, and I can't eat enough vegies to counteract the amount of iron I'm taking.
She also ran other tests like blood count and B vitamins, but these have all been normal in the last two years so I don't expect those to be different.
-------
Rant: I had to twist her arm to get tests for other fatigue issues like autoimmune problems. This woman still thinks I'm imagining things. If I'm willing to pay for it and I have a strong family history, why the heck shouldn't she test for it? I'm having trouble making it up the stairs without muscle fatigue even though I've been a runner for 10 years, and she just tells me to "try swimming because it uses different muscles," "try walking 15 minutes a day and working up," and "get back on the Prozac for energy."
What. The. @#$&. I'm not even 30. Prozac? Yeah. I made an appointment with a doctor at Stanford as soon as I finished getting my labs done, when I was still in the parking lot.
#11
trents
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Posted 15 November 2009 - 10:26 PM
"Some groups aren't waiting. The American Academy of Pediatrics says breast-fed infants should get 400 IUs of supplemental D daily. The National Osteoporosis Foundation urges adults over age 50 to get at least 800 to 1,000 IUs to prevent fractures. Look for D3, which is more potent than D2."
And since most with celiac disease are not absorbing vitamins and minerals as well as other folks these recommendations are probably not excessive.
And since most with celiac disease are not absorbing vitamins and minerals as well as other folks these recommendations are probably not excessive.
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