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Dull Ache / Burning / Pain In Testicles Associated With Celiac?
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Has anyone had a dull ache / burning / pain in testicles associated with Celiac Disease? I was diagnosed with Chronic Epididymitis but, there's no cure for that and it's really just a symptom. (Inflammation of the Epididymis). Anybody have these symptoms and then find them to be due to Celiac?

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No testicles here (I'm female), but I did have some tender/painful spots near my hip and groin on one side that have improved on the diet. In my case, I think that my gluten intolerance was contributing to the inflammation caused by another condition, endometriosis. I don''t really know if there is a direct causal relationship, but I do think that it's good to avoid gluten if you are intolerant to it.

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No testicles here (I'm female), but I did have some tender/painful spots near my hip and groin on one side that have improved on the diet. In my case, I think that my gluten intolerance was contributing to the inflammation caused by another condition, endometriosis. I don''t really know if there is a direct causal relationship, but I do think that it's good to avoid gluten if you are intolerant to it.

Same here. My daughter kept complaining of ovary pain when she was not on her period. She had extreme pms. I saw many endometriosis symptoms in her. She was diagnosed allergic to gluten.

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Well, I'm new here and am not sure that I have a Gluten-allergy or just a wheat-intolerance (trying an elimination diet this month). But, one of the issues that I've been having over the years (Doctor's have had no answer for), is a dull ache in my left testicle. Seems to come on with stress maybe, hard to say. Comes and goes, but there is occasional burning as well. One of the symptoms with wheat intolerance is constant yeast issues in that area, I believe that to be part of my problem. I have been tested for everything I could think of and doctor's keep telling me it's in my head. I'll know more after a month of my diet, but I believe that the pain is related to my suspected wheat (maybe gluten) intolerance.

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Well, I'm new here and am not sure that I have a Gluten-allergy or just a wheat-intolerance (trying an elimination diet this month). But, one of the issues that I've been having over the years (Doctor's have had no answer for), is a dull ache in my left testicle. Seems to come on with stress maybe, hard to say. Comes and goes, but there is occasional burning as well. One of the symptoms with wheat intolerance is constant yeast issues in that area, I believe that to be part of my problem. I have been tested for everything I could think of and doctor's keep telling me it's in my head. I'll know more after a month of my diet, but I believe that the pain is related to my suspected wheat (maybe gluten) intolerance.

That's good to hear. Well not good, obviously, but, comforting to know that someone is in the same boat as me. Don't let doctors tell you it's all in your head! You'll know when you're 100% healthy and when you're not. Just like that woman with Cancer on "Lost" when she went to the island and said she feels better and she just knows.

One thing to note. Did you ever get a testicular sonogram? You could just have a varicocele and that could be causing the slight pain in one testicle. I had two of them and got the surgery to get them repaired.

If that's not the case, then I'm doing the same thing you're doing. I've been on the diet for a little over a week now and things have gotten slightly better but, I don't feel like the woman on "Lost" (all-healed) you know? That's interesting what you say about the yeast though.

I hope everything works out for you, and thanks for the other two posts as well.

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make sure you get your male hormone levels checked. Makes a big difference in energy and testicular pain.

Even after 2 years of being gluten-free you still need to monitor levels of testosterone.

ken

That's good to hear. Well not good, obviously, but, comforting to know that someone is in the same boat as me. Don't let doctors tell you it's all in your head! You'll know when you're 100% healthy and when you're not. Just like that woman with Cancer on "Lost" when she went to the island and said she feels better and she just knows.

One thing to note. Did you ever get a testicular sonogram? You could just have a varicocele and that could be causing the slight pain in one testicle. I had two of them and got the surgery to get them repaired.

If that's not the case, then I'm doing the same thing you're doing. I've been on the diet for a little over a week now and things have gotten slightly better but, I don't feel like the woman on "Lost" (all-healed) you know? That's interesting what you say about the yeast though.

I hope everything works out for you, and thanks for the other two posts as well.

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I'll be getting my hormone levels checked next Wednesday. Thanks for the tip.

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make sure you get your male hormone levels checked. Makes a big difference in energy and testicular pain.

Even after 2 years of being gluten-free you still need to monitor levels of testosterone.

ken

Hi all this is my first post and im glad i found this place, seems to be lots of information around here. And ive been lacking.

So u have had testicular pain and low hormone levels assiciated with gluten?

3-4 years ago i was having some difficulty after eating and it took a year to find out it was gluten intolerance or celiac.

I also had immense testicle pain and prostatitis from time to time and very low energy levels, i even had to quit my job and dident know what was going on. I sort of had a crash one day and from that point its been uphill most of the time.

Now since about a year ago and going on a strict diet im much better, but still im struggeling with low energy and low libido stamina and insomnia or 15 hour straight sleep..

I checked my hormone levels when i had this crash and my Testosterone was low beynond normal range for population and that includes all ages of men and im only 30! I tested them on and off but they were always low.

Now on diet about 3 month ago i tested again. Testosterone had actually doubled and was now rather high.

Then i was convinced by some1 i could eat oats so i ate some porridge. Bad idea, intensive pain bloating etc etc, and testicle pain also came back within an hour, prostate acting up again. 1 day later i get tested again (cause i was scheduled) and now my testosterone is low again and my cortisol is also low at this test.

This was only 1 week ago and im still suffering cold dull pain in genitals.

Is it possible that gluten is behind all the hormonal issues im having? I dont know what to think right now and i feel abit lost as what to do. Or is it more likely that my hormonal levels are causing my intolerance to gluten?

Id hate to be on hormone replacement for life but i also cant have this rollercoaster and low energy levels anymore. I feel my former healthy body is taking to much of a beating right now and all kind of symptoms are developing.

B4 all of this i had zero health issues in my life and was a bike messenger for 8 hour / day so i was in very good shape.

Today i work as a bike messenger again but i feel like my body cant take it and im running on fumes.

All feedback appreciated

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Hi, I think it's diet related. Since diagnoses I never cheated on the diet although there have been some accidental glutenings.

When accidents happen i do get pain and I can feel the difference. After a week of being strictly gluten free and using a testosterone patch, I'm usually back to normal. Don't need anything after a week and using the patches 2 or 3 times.

This has happened maybe 5 or 6 times in the past few years. With the diet you dont have to be on hormones for life but you do have to stay on the gluten-free diet for life.

I don't think being in shape has anything to do with it. Although my son is your age, I research tropical fruit and climb mountains in Hawaii looking for wild bananas and a lot of farming. We also have a football hall of fame member on the forum with the same problems.

Bottom line is you have to stay gluten free and find the gluten-free foods you enjoy.

Good luck

Ken

Hi all this is my first post and im glad i found this place, seems to be lots of information around here. And ive been lacking.

So u have had testicular pain and low hormone levels assiciated with gluten?

3-4 years ago i was having some difficulty after eating and it took a year to find out it was gluten intolerance or celiac.

I also had immense testicle pain and prostatitis from time to time and very low energy levels, i even had to quit my job and dident know what was going on. I sort of had a crash one day and from that point its been uphill most of the time.

Now since about a year ago and going on a strict diet im much better, but still im struggeling with low energy and low libido stamina and insomnia or 15 hour straight sleep..

I checked my hormone levels when i had this crash and my Testosterone was low beynond normal range for population and that includes all ages of men and im only 30! I tested them on and off but they were always low.

Now on diet about 3 month ago i tested again. Testosterone had actually doubled and was now rather high.

Then i was convinced by some1 i could eat oats so i ate some porridge. Bad idea, intensive pain bloating etc etc, and testicle pain also came back within an hour, prostate acting up again. 1 day later i get tested again (cause i was scheduled) and now my testosterone is low again and my cortisol is also low at this test.

This was only 1 week ago and im still suffering cold dull pain in genitals.

Is it possible that gluten is behind all the hormonal issues im having? I dont know what to think right now and i feel abit lost as what to do. Or is it more likely that my hormonal levels are causing my intolerance to gluten?

Id hate to be on hormone replacement for life but i also cant have this rollercoaster and low energy levels anymore. I feel my former healthy body is taking to much of a beating right now and all kind of symptoms are developing.

B4 all of this i had zero health issues in my life and was a bike messenger for 8 hour / day so i was in very good shape.

Today i work as a bike messenger again but i feel like my body cant take it and im running on fumes.

All feedback appreciated

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Hi, I think it's diet related. Since diagnoses I never cheated on the diet although there have been some accidental glutenings.

When accidents happen i do get pain and I can feel the difference. After a week of being strictly gluten free and using a testosterone patch, I'm usually back to normal. Don't need anything after a week and using the patches 2 or 3 times.

This has happened maybe 5 or 6 times in the past few years. With the diet you dont have to be on hormones for life but you do have to stay on the gluten-free diet for life.

I don't think being in shape has anything to do with it. Although my son is your age, I research tropical fruit and climb mountains in Hawaii looking for wild bananas and a lot of farming. We also have a football hall of fame member on the forum with the same problems.

Bottom line is you have to stay gluten free and find the gluten-free foods you enjoy.

Good luck

Ken

Hey.

Just thinking there might be hope makes me feel sooo much better.

Celiac is tough and all but no libido is killing my relationship so this is very good news.

I tried Testosterone and was better on it, but then i stopped and things went back to worse again. Im not even sure i was following a diet at that point so that could have been the missing link.

Thank you for lifting my spirit!

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Stick with the patches for a few weeks and I'm sure you'll be fine. At my worst I had to have 2 injections of hormones but that was before they figured out the celiac. It does get keep getting better and better if you stick to the diet.

good luck

Ken

Hey.

Just thinking there might be hope makes me feel sooo much better.

Celiac is tough and all but no libido is killing my relationship so this is very good news.

I tried Testosterone and was better on it, but then i stopped and things went back to worse again. Im not even sure i was following a diet at that point so that could have been the missing link.

Thank you for lifting my spirit!

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I'll be getting my hormone levels checked next Wednesday. Thanks for the tip.

Hello,

My 23 year old son had your issues a few months ago and it was on his left side too. He looked it up online and got super scared over things he read and stayed up all night. I urged him to call the doctor right away and he got in that day. The doctor didn't see anything to be concerned with and told him, for some reason that can just sometimes happen, hormones or lifting something heavy etc. He signed him up for a sonogram just incase and everything turned out fine. The pain went away in about a week and it hasn't returned since. Hope yours clears up just as easy.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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