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Here's A Site With Photos Of Mild Dh!
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I just found a site that has pictures of mild dh and dh in areas other than arms and legs! I had been wondering if what I had on my hands was really dh and the photos on this site look exactly like what I've got. Ah ha! It's a relief to see that not all cases look like the "worst case senerio" photos I've seen until now.

Here's the site: http://dermatlas.med.jhmi.edu/derm/result....osis=-577236584

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I have the DH mainly on my scalp. This is the first place it occured and was there off and on for years. I would occasionally get a few spots on my arms. When I was doing the gluten challenge for the intestinal biopsy (after being gluten free) I got it really bad on my palms. It was horrible. This was the best photo I have seen of it on the palm, and it looks exactly like mine was. I know when I have gotten gluten because along with the tumm7y troubles I break out along the hair line on my neck! I probably would have a diagnosis now if I had been able to get to a dermatologist. I was so sick though and couldn't wait to get gluten free again! I couldn't wait for the referral and then wait months to be seen and biopsied. I knew what was wrong with me and so I went on the diet. I am so glad that I did. So far things have been fine without the "official" diagnosis. I've also heard that for insurance reasons it is sometimes good NOT to have a diagnosis. I just would have been happy to rub my GI doctors faces in the diagnosis. They all swear that I am not Celiac! Yet you have to be Celiac to have DH. Go figure.

Thanks for posting the site link. :)

God bless,

Mariann

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I've had DH on the back of my neck often (at the hairline), backs of my knees, and once even on my stomach! This was after inpatient surgery, back when I used to be really clueless and believe that hospital dieticians DID know how to keep my meals gluten-free. So, even though my tummy was killing me, I still went to a dermatologist, who did a biopsy of the skin (2 more stitches for my tummy! :P ), and it came back DH. Then I knew I'd been "glutened."

It can be ANYWHERE! And miserable -- all that burning and itching! Argh! :(

Patty

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Hi,

I was diagnosed in July. I am having colon surgery to remove a large polyp on Tuesday. Today I noticed the inside of my belly button is very red and hurts when I touch it. Does anyone know if it could be related to Celiac?

I will be calling the doctor in the morning.

Thanks :(

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Hi,

I was diagnosed in July.  I am having colon surgery to remove a large polyp on Tuesday.  Today I noticed the inside of my belly button is very red and hurts when I touch it.  Does anyone know if it could be related to Celiac?

I will be calling the doctor in the morning.

Thanks :(

<{POST_SNAPBACK}>

I get this sometimes if I am using tolietries or detergents with gluten.

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I get this sometimes if I am using tolietries or detergents with gluten.

<{POST_SNAPBACK}>

Toiletries have gluten? What kind of toiletries? Do we have to worry about stuff like toilet paper too! Sheeesh....does it ever end?

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I had never seen a picture of df. I had suspected that the itchy, painful bumps I got on my hand and on my elbows was df, considering that they seem to correspond with my digestive woes, but I wasn't sure. But oh yeah...that's it! I get it really bad on just one little triangular spot above my left ring finger. When I got married (before I was diagnosed) I was afraid to show people my wedding ring because my hand looked so bad! :rolleyes: Thanks for the pictures! Hey does anybody know why it affects certain areas of skin and not others? It seems strange to me that my left hand gets it and my right one doesn't...

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I found these pictures particularly helpful.

http://www.dermnet.com/moduleIndex.cfm?moduleID=5

I have been lucky with this manifestation of celiac. Only 2-3 small blisters on my legs (maybe just my right leg -- wasn't paying close attention earlier on) that have come and gone over the summer. I thought they were insect bites until recently, even though I had never been bitten by anything in the past that left a blister, and I couldn't remember being bitten as I usually do. It's the watery then crusty blister which convinced me. And they lasted longer than an insect bite would, a couple weeks, even without scratching. I used witchhazel solution on them which helped enormously for the itch...but now I wonder about the witchhazel because it has 15% alcohol in it. Alcohol from what source? I am getting paranoid!

Judi

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    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
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