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Here's A Site With Photos Of Mild Dh!


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#1 anerissara

 
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Posted 05 February 2005 - 08:27 PM

I just found a site that has pictures of mild dh and dh in areas other than arms and legs! I had been wondering if what I had on my hands was really dh and the photos on this site look exactly like what I've got. Ah ha! It's a relief to see that not all cases look like the "worst case senerio" photos I've seen until now.

Here's the site: http://dermatlas.med...osis=-577236584
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"I will say of the Lord, 'He is my refuge and my fortress, my God, in whom I trust.'" -Psalm 91

gluten-free since January 26th, 2005
Feeling up and down, but better!

Mommy of a gluten-free 8 yr old, a 6 yr old who (much to her dismay) will be gluten-free soon and a 2 yr old who is so far symptom-free. Contemplating putting the whole family on the gluten-free diet since crumbs have become my nemisis!

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#2 gf4life

 
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Posted 05 February 2005 - 11:15 PM

I have the DH mainly on my scalp. This is the first place it occured and was there off and on for years. I would occasionally get a few spots on my arms. When I was doing the gluten challenge for the intestinal biopsy (after being gluten free) I got it really bad on my palms. It was horrible. This was the best photo I have seen of it on the palm, and it looks exactly like mine was. I know when I have gotten gluten because along with the tumm7y troubles I break out along the hair line on my neck! I probably would have a diagnosis now if I had been able to get to a dermatologist. I was so sick though and couldn't wait to get gluten free again! I couldn't wait for the referral and then wait months to be seen and biopsied. I knew what was wrong with me and so I went on the diet. I am so glad that I did. So far things have been fine without the "official" diagnosis. I've also heard that for insurance reasons it is sometimes good NOT to have a diagnosis. I just would have been happy to rub my GI doctors faces in the diagnosis. They all swear that I am not Celiac! Yet you have to be Celiac to have DH. Go figure.

Thanks for posting the site link. :)
God bless,
Mariann
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~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

#3 Professor

 
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Posted 06 February 2005 - 08:41 AM

I've had DH on the back of my neck often (at the hairline), backs of my knees, and once even on my stomach! This was after inpatient surgery, back when I used to be really clueless and believe that hospital dieticians DID know how to keep my meals gluten-free. So, even though my tummy was killing me, I still went to a dermatologist, who did a biopsy of the skin (2 more stitches for my tummy! :P ), and it came back DH. Then I knew I'd been "glutened."

It can be ANYWHERE! And miserable -- all that burning and itching! Argh! :(

Patty
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I am a doctor, but not that kind, and I don't play one online anyway!

#4 BabySnooks

 
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Posted 21 August 2005 - 08:30 AM

Hi,
I was diagnosed in July. I am having colon surgery to remove a large polyp on Tuesday. Today I noticed the inside of my belly button is very red and hurts when I touch it. Does anyone know if it could be related to Celiac?

I will be calling the doctor in the morning.

Thanks :(
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[size=3]BabySnooks
Diagnosed with celiac disease July 8, 2005 by endoscopy and colonoscopy.
Rediagnosed with Celiac Sprue August, 2006 with positive duodenal and small bowel biopsies.

#5 ravenwoodglass

 
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Posted 21 August 2005 - 04:54 PM

Hi,
I was diagnosed in July.  I am having colon surgery to remove a large polyp on Tuesday.  Today I noticed the inside of my belly button is very red and hurts when I touch it.  Does anyone know if it could be related to Celiac?

I will be calling the doctor in the morning.

Thanks :(

<{POST_SNAPBACK}>

I get this sometimes if I am using tolietries or detergents with gluten.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 Rachel--24

 
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Posted 21 August 2005 - 06:02 PM

I get this sometimes if I am using tolietries or detergents with gluten.

<{POST_SNAPBACK}>


Toiletries have gluten? What kind of toiletries? Do we have to worry about stuff like toilet paper too! Sheeesh....does it ever end?
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Rachel

#7 cgilsing

 
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Posted 22 August 2005 - 01:44 PM

I had never seen a picture of df. I had suspected that the itchy, painful bumps I got on my hand and on my elbows was df, considering that they seem to correspond with my digestive woes, but I wasn't sure. But oh yeah...that's it! I get it really bad on just one little triangular spot above my left ring finger. When I got married (before I was diagnosed) I was afraid to show people my wedding ring because my hand looked so bad! :rolleyes: Thanks for the pictures! Hey does anybody know why it affects certain areas of skin and not others? It seems strange to me that my left hand gets it and my right one doesn't...
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#8 JLK

 
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Posted 22 August 2005 - 02:23 PM

I found these pictures particularly helpful.

http://www.dermnet.c....cfm?moduleID=5

I have been lucky with this manifestation of celiac. Only 2-3 small blisters on my legs (maybe just my right leg -- wasn't paying close attention earlier on) that have come and gone over the summer. I thought they were insect bites until recently, even though I had never been bitten by anything in the past that left a blister, and I couldn't remember being bitten as I usually do. It's the watery then crusty blister which convinced me. And they lasted longer than an insect bite would, a couple weeks, even without scratching. I used witchhazel solution on them which helped enormously for the itch...but now I wonder about the witchhazel because it has 15% alcohol in it. Alcohol from what source? I am getting paranoid!


Judi
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