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I Never Feel Rested

Live2BWell

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sickchick Community Regular
sickchick
Posted

I noticed right away with the brain fog....

about a month I really started to tell with more stamina and physical energy! :)

lovelove

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mslee Apprentice
mslee
Posted

great info! thanks for sharing!

so glad I finally have a diagnosis! and found this site.

* feeling SO much better without the wheat!*

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sickchick Community Regular
sickchick
Posted

GOOD FOR YOU mslee!

very nice to meet you... :)

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mslee Apprentice
mslee
Posted
GOOD FOR YOU mslee!

very nice to meet you... :)

Thanks!

Hello nice to meet you too!

Yes, I can fully understand the "but you don't look sick" :)

glad to be here

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Live2BWell Enthusiast
Live2BWell
  • Author
Posted

It was suggested to me to have a Cortisol Test run (Cortisol is an Adrenal hormone); Apparently it's not a routine test, but it can be requested - and that is often how doctors test for adrenal problems (adrenal fatigue, addison's etc.) Adrenal problems, from what I understand, run hand in hand with Celiac and, interestingly enough - Hashimotos (I am guessing they all work on similar levels, which is why they often run together?)

I am probably going to look into the adrenal capsules, what is your overall experience on them? How did you know how much to take? When did you notice a difference? What differences did you notice?

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sickchick Community Regular
sickchick
Posted

I actually had that adrenal spit test years ago and mine came back totally normal.

Now it's been 13 years so it might actually register as off, but I take those tests with a grain of salt.

First of all, I noticed a little mental clarity, the very first time I took the Adrenal Caps. It took about a month to start to notice my energy increasing

I have been taking 6 a day and what I read (and what other people who I have talked to who have the Adrenal Exhaustion) is that it takes 2 years to get better.

If you are persistant and have the intetion of getting better, you will! :):):)

Be well!

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  • 2 months later...
Nancym Enthusiast
Nancym
Posted

The Hashi's can certainly do that to you. Talk to your doctor and get some thyroid meds, or get an increase. The "normal" range is way too wide, tell your doctor you want to be closer to the bottom end of the TSH range (closer to 1).

Other things that can do this are sleep apnea and there is narcolepsy.

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  • 2 weeks later...
Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted
I am always exhausted. Always. I rarely feel "rested" - it doesn't matter if I get 3 hours of sleep or 13 hours, I feel exhausted.

I almost always want to sleep, and when I do get up I don't want to get up becuase I am so tired. Ofcourse, I do get up because I have to, but that only leads to the perpetual cycle of exhaustion. I feel like I am almost always running on empty.

Also, being that I have Hashimotos and also have ADD and other general anxiety tendencies, I have to "feel" like sleeping, in order to go to sleep (which is so not condusive to feeling well rested!) And, with my energy levels being virtually nil because I feel cruddy all of the time, if I get a burst of energy at 1am, I'll take it when I can get it (also, not condusive to feeling well rested.)

Sleeping isn't always my problem, sleeping well - is !

I know this only adds fuel to the fire.

Anyone relate?

I relate totally to your problem.. I am popping sleeping pills, just to get a good rest.

Sleepless in florida

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  • 6 months later...
rose62bud Newbie
rose62bud
Posted

:unsure:

I CAN TOTALLY RELATE TO NOT EVER GETTING ENOUGH SLEEP, BESIDE HAVING CELIAC DISEASE, I SUFFER FROM IBS AS WELL, AND I HAVE NASH TOO, I WILL NEED A LIVER TRANSPLANT DOWN THE ROAD. I ALSO AM A DIABETIC AND A BOAT LOAD OF PROBLEMS THAT COMES WITH THAT DISEASE, AS IF THIS ISN'T ENOUGHT TO DEAL WITH ..MY MIND NEVER LETS ME REST WHEN I WANT TO. I HAVE TRIED TAKING I MG OF MELATONIN WHICH THE BODY PRODUCES ALREADY SO IT CANT HARM MY LIVER. BUT EVEN IF I TAKE A 3 MGS PILL I STILL CANT SLEEP ENLESS MY MIND STOPS RUNNING LIKE A TRAIN OUT OF CONTROL... :o I SCREAM PLEASE GOD LET ME REST. I FIGHT TO GET MY INTERNAL CLOCK ON TRACT WITH NO SUCCESS. CAN SOMEONE GIVE ME A HELPING HAND

ROSE62BUD

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  • 4 weeks later...
cherishlife Rookie
cherishlife
Posted

In a sad way...after reading all these post, I feel a little better knowing I am not alone. I am beyond exhausted and I just need relief! I did have my adrenals tested and they are messed up. My cortisol levels sky rocket at night, hence, not sleeping well. I took supplements recommended by my ND for two weeks and felt no better. In fact, I felt worse. I stopped taking them. But I know I need to get this issue with my adreanals worked out!

I know a couple people mention they took some different supplements to help, but was it for the same type of issues? If so, how did you determine which kind to take.

I have four young children and I despartely need to get better. I felt much better when I first went gluten free 1 1/2 years ago, but now I am feeling terrible again...even with no gluten.

Please...any suggesetions welcomed!

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  • 2 weeks later...
prisjo Newbie
prisjo
Posted

I am a diagnosed Celiac since 1990. I have suddenly gotten mucho fatigue. I can't wake up in the morning. When I get awake (splashing water on my face) I can go all day but feel like I am in a mental. A pharmacist told me that my idoine level is low. Men need about 150 mcg and women need 120mcg. We celiacs who don't drink milk don't get enough d and c viatmins and the fda has lowered levels of iodine in salt. I have kelp tablets which have about 225 mcgs of iodine. Will let you know hwo this works. Also being low in folic acid increases fatigue.

P

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one more mile Contributor
one more mile
Posted

What works for me is Calcium citrate with vitamin d

Badger sleep balm on my temples and under my nose when I go to sleep

getting my thyroid checked every three months

Echinaccea-Goldenseal an hour after I take my thyroid meds. It supports your immune system so your body can us energy doing other things.

15 minutes a day of outdoor sunlight.

and 18-45minutes of yoga or platitudes in the morning before my shower, but only on the days that I want to feel well. If I want to feel like crap that day I skip the work out. I started this as a joke someone asked me what I my new year resolution was and I told them 18 minutes of yoga a week whether I need it or not. Even a fast drop to the floor and a few streaches makes an amazing difference in my day. And whether I will have back pain and energy that day.

Some of this may sound dumb but I have battled with sleep and sleepiness for years. I have changed my whole live around now because it is easier for me to sleep 12:30 to 8 or 9 then try to feel rested getting up at 7AM. It took me a long time to just accept that I do not work that way.

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Anna and Marie Newbie
Anna and Marie
Posted
I can relate - somewhat.

For me, though, it seems to be sleeping too much and not feeling rested. I can sleep for 14 hours, drag myself out of bed and feel like I need to sleep for 14 more. Once I am up out of bed and moving, I can't sit down anywhere comfortable for more than a few minutes at a time, or I fall asleep. But when it comes time to actually go to bed, my mind doesn't want to shut down - and anxiety often kicks in. It's not a fun cycle. :(

I am so with you!!! I never knew this section even exhisted! I didn't know that so many of us had this problem...

~Anna

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ang1e0251 Contributor
ang1e0251
Posted

I have battled insomnia for many years. I have several things that each help a little and help me get most of the rest I need. Sticking to a set bedtime and wake up time 6 days a week is a big stablizer for me. One day a week I need to sleep in. I really suffer if I don't get that. I have taken melatonin for years starting with 1/2 milligram and now am up to 6 mg's. I always read until sleepy. Then if my mind is still racing, it's about the story and not my life. That seems to be OK with my mind.

Lately I upped my magnesium level to about 650 mg's. That also helped my sleep. I even slept through the night once!! wow, can't even remember the last time that happened.

If you have any other vitamin difiencies, address those and it could help your sleep.

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Serversymptoms Contributor
Serversymptoms
Posted
I have battled insomnia for many years. I have several things that each help a little and help me get most of the rest I need. Sticking to a set bedtime and wake up time 6 days a week is a big stablizer for me. One day a week I need to sleep in. I really suffer if I don't get that. I have taken melatonin for years starting with 1/2 milligram and now am up to 6 mg's. I always read until sleepy. Then if my mind is still racing, it's about the story and not my life. That seems to be OK with my mind.

Lately I upped my magnesium level to about 650 mg's. That also helped my sleep. I even slept through the night once!! wow, can't even remember the last time that happened.

If you have any other vitamin difiencies, address those and it could help your sleep.

I did self diagnose for being celiac, and things seem to be improving. Though I also think I have a thyroid problem, one symptom which is fatigue/ sleepless. I experience it all the time, you may also want to get your thyroids look at.

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grainfree Newbie
grainfree
Posted

Hello.

This past Friday night I ate a meal of penne pasta with vegetables (from frozen). At 9 p.m. I felt as if someone had flipped a switch and I literally passed out. This morning I made an appointment with my doctor. I had had it with feeling like I would drop on the spot - it had happened too many times and I finally said enough. Too many times of hearing "it'll pass", "you're just stressed", "you are just overtired". I had wondered previously about my bread consumption and fatigue but always just brushed it off. I have probably posted in the wrong topic section but after reading some posts I see I am not the only person to have had this happen to them. Looking forward to the GP visit to hopefully get some relief.

Thank you

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Becci Enthusiast
Becci
Posted

I have the same problem. If I go to bed at 10 and wake up at 10 the next day, I will still feel like I haven't slept at all.

I hate this feeling! I can never sleep enough.

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  • 4 weeks later...
Tabasco Apprentice
Tabasco
Posted
Do you have dark circles under your eyes and are you sensitive to light by chance? I have severe Adrenal Exhaustion and I have been taking. Sounds like you've burned out your little adrenals.

Raw Adrenal Caps (I use Solaray) 2 every morning, noon and bedtime (LOVE these)

Magnesium Stearate (200 mg) 1 in morning, 1 at noon

1000 Vit C moning, noon and bedtime

It can take a year to heal mild, 2 for severe.

I have never heard of adrenal exhaustion. I have dark circles and puffy eyes. My eyes always look "tired". I figured it was genetic. I am also very light sensitive. I have green eyes, though. i though light eyed people were naturally sensitive to bright light.

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ohsotired Enthusiast
ohsotired
Posted

Tabasco - you might want to check out these links, just to see if any of the other symptoms fit you.

Open Original Shared Link

Open Original Shared Link

Good luck!

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pchick Rookie
pchick
Posted

wow ~ everyday I'm learning something new here! This is a great forum.

Anyway, I too am TIRED all the time.... I've been told my adrenal function is low (by my acupuncturist) and my ND told me my DHEA/Cortisol levels are unbalanced. But that doesn't really explain much.

I had a very stressful/traumatic lifestyle till about 10 years ago ~ Now I've got my life somewhat together and of course, NOW my health seems to be falling apart.

I'm getting a good mutli-vitamin on Monday... and I'm hoping that taking that will help in my exhaustion, light sensitivity, dizziness etc.

Hopefully someday I'll be able to get on this forum and GIVE good advice instead of always NEEDING it. Thanks to all who are writing ~ it really helps :D

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Nancym Enthusiast
Nancym
Posted

You should probably get a sleep study done, although your hashi's could cause this if you're not getting enough thyroid hormone. Sleep apnea makes you feel unrested and it's very dangerous too.

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ohsotired Enthusiast
ohsotired
Posted
wow ~ everyday I'm learning something new here! This is a great forum.

Anyway, I too am TIRED all the time.... I've been told my adrenal function is low (by my acupuncturist) and my ND told me my DHEA/Cortisol levels are unbalanced. But that doesn't really explain much.

I had a very stressful/traumatic lifestyle till about 10 years ago ~ Now I've got my life somewhat together and of course, NOW my health seems to be falling apart.

I'm getting a good mutli-vitamin on Monday... and I'm hoping that taking that will help in my exhaustion, light sensitivity, dizziness etc.

Hopefully someday I'll be able to get on this forum and GIVE good advice instead of always NEEDING it. Thanks to all who are writing ~ it really helps :D

LISTEN to your acupuncturist and your ND. Have you had any testing done for adrenal fatigue?

It sounds like you have two practitioners that know what they're talking about. You might want to explore that further!

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ang1e0251 Contributor
ang1e0251
Posted

A multi V is great for maintenance but when your levels are low you will need additional supplements. Talk to your ND about what to add to that.

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  • 1 month later...
Korwyn Explorer
Korwyn
Posted
wow ~ everyday I'm learning something new here! This is a great forum.

Anyway, I too am TIRED all the time.... I've been told my adrenal function is low (by my acupuncturist) and my ND told me my DHEA/Cortisol levels are unbalanced. But that doesn't really explain much.

I had a very stressful/traumatic lifestyle till about 10 years ago ~ Now I've got my life somewhat together and of course, NOW my health seems to be falling apart.

I'm getting a good mutli-vitamin on Monday... and I'm hoping that taking that will help in my exhaustion, light sensitivity, dizziness etc.

Hopefully someday I'll be able to get on this forum and GIVE good advice instead of always NEEDING it. Thanks to all who are writing ~ it really helps :D

I just received back all my lab work for my hormone workups and I am suffering from moderate to severe adrenal fatigue. So I'm researching adrenal supplements right now. :) I'm a believer in non-western, traditional, and alternative medicine (acupuncture, etc), but before you go trying to treat adrenal issues I would strongly suggest you get a lab workup for your hormone levels - a full panel which will require multiple samples to get your levels through the day. If you mis-treat or treat non-existent adrenal issues you can create other lifelong problems, like causing your adrenal glands to basically go to sleep. This would be bad. :o If your ND did a full panel (testosterone, progesterone, estrogen, dhea, estradiol, cortisol and all precursors) and gave you this diagnosis then run with it. Otherwise, request a full hormone panel before you start trying to tackle it. Please.

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    • trents
      Waiting for urgent referral.

      By trents · Posted

      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Zackery Brian
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    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Joint swelling when ill even on gluten-free diet

      By Moodiefoodie · Posted

      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

      By knitty kitty · Posted

      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
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