Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dealing With The Changes
0

9 posts in this topic

Hey,

I've been Gluten Free for over seven months now. It used to bug the hell out of me dealing with the changes associated with the diet. I became very sensitive to all walks of my life. I've had some positive changes in my life recently that have helped me cope. I do still get into ruts however (re-occuring symptoms, tension, sleeplessness).

Would anyone share their coping strategies with me. I'd like to hear some different perspectives on lving and dealing with the changes in their lifestyle due to Celiacs.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Isn't it such a pain sometimes? You envy anyone that can eat whatever they want and not have to think about it. :D

I was diagnosed with celiac disease over 2 years ago and I'm still not quite comfortable with it yet. I'm also incredibly hypoglycemic, so I really have to watch what, when, and how much I'm eating.

I think I've become kind of detatched from food at this point. I'm a very active person, so when I'm hungry, the question isn't "what sounds good". I try to eat foods that will give me sustained energy, without doing any harm to my body. I've found that having a significant reason to stick with such a disciplined lifestyle has made it a lot easier. I used to cheat-now I know the consequences will be sitting in my house and feeling sorry for myself. I feel like a "normal", 100% human being when I stick to the diet. This has been enough reason for me.

Good luck-

Nadia

0

Share this post


Link to post
Share on other sites

I've been diagnosed for 10 years now, and have good years and bad ones. I am having a tough year (just tough in dealing with it) now, although the two before it were fine. Wonder why . . . ? Maybe because I can no longer do dairy, soy, and eggs? Really feeling the limits of diet.

Anyway, I liken it to a 12-step program (no, I'm not making light of alcoholism, which is obviously a far more serious problem than celiac disease), but meaning it's just "one day at a time" for us. Wish I could say that after a while you get used to it and then it's all downhill. :( Also, whenever I change or expand my social or work circle (new job, for example), I have to keep facing all the issues I did at diagnosis all over again. Tired of it all. :P

Well, that's why we have this place, right? At least here there's a group of people who "get it." :D

Hang in there! ;)

Patty

(I live these little faces -- can you all tell?!? :D )

0

Share this post


Link to post
Share on other sites

I've been gluten-free for a little over a year now. I feel a lot better but yes there are some tough days I have to deal with. I take vitamins, enzymes, and probiotics regularly. Those things hep to boost my immune system... celiac is an autoimmune disease and our immune systems tend to be weaker. I notice when I miss a day having these supplements I pay for it the next day. I guess my body needs the extra support.

The longer I have been off of gluten the more reaction I get when I have gluten now. I have a lot worse reaction to gluten now then when I first was diagnosed. I never purposely cheat but I know if something has snuck within a few minutes.

Also make sure your makeup like your lipstick is gluten-free. I had a horrible reaction the other week and I didn't know what it was from. Come to find out the vitamin E in the lipstick they had was made of wheat. It just shows how much we have to be careful.

Good luck with everything :D

0

Share this post


Link to post
Share on other sites

I have a slightly different issues than many of the other people who post here. I have no gastro symptoms and was diagnosed because of low iron. I have been gluten-free about 6 months, but most of the problems I've faced have been psychological. I was totally blindsided by this diagnosis (because of no symptoms) and found it hard to accept that I had to face this lifestyle change. All of the possible complications put me in a tailspin, and the resulting worry and stress have caused me problems with fatigue (result of stress.) I have started to see a therapist to help me work through these problems and try to live one day at a time, rather than worrying all the time about the "what ifs". I tend to feel sorry for myself when I can't just grab a bite to eat at the mall. Eating out is an important part of my family's social life and now it all revolves around where I can eat.

0

Share this post


Link to post
Share on other sites




I try to deal with it in whatever way seems appropriate for the particular stress. For instance, over the holidays, with all the formal work parties (which I was helping organize), I got tired of having to time to make real food I could before or after a party, and sitting there watching others eat. So I didn't go to each and every one I could have. I went to a couple of them - it's still important to be social :) - but I also gave myself permission to say no, just because I wanted to.

I don't know if this is an issue for you or not (it seems to vary by individual), but I learned early on to "be selfish" (in the good way) about my health. Someone may offer me something, but there should be NO guilt in saying no because it's my responsibility to not eat things that are dangerous to me. If someone offered you rat poison, you wouldn't feel guilty for turning it down, and this is a very similar thing. It's tougher, though, because OTHER people think of wheat as food. In the end, it doesn't really matter what they think - it's food for their body (maybe! ;) ) but not for mine! I'm not rude about it, just very matter of fact, as though it were the most basic thing in the world that I can't eat gluten.

Another thing I do when I'm feeling overwhelmed - and it's usually because of time, or the lack of time to make my food (and gluten is the lesser of the problems, dealing with the hypoglycemic tendencies is by far the trickier one - if it was just gluten, I'd keep leftover rice in the fridge at all times! :D ) - I make myself sit back and refocus on what I'm eating. I spend a little extra time (I make the time, because it's important) at the grocery store, finding things I will eat that week that will be good for my body, and generally refocus.

And when all else fails, a piece of Gluten-free Casein-free chocolate. :lol:

0

Share this post


Link to post
Share on other sites

When I was diagnosed (2+ years ago), I'd only had symptoms for several months, but when my doc told me I had Celiac Disease and I read what it can do to your small intestine, I very simply stopped eating wheat/gluten. This may sound dumb... but it never occured to me that I had a choice to "cheat" and hurt myself... I just stopped eatihg wheat/gluten and researched and researched food lists and ways to change existing recipes.

I kept saying, and still say to people... in the scheme of life and with everything that happens to people... this is nothing. There is so much I can eat... my celiac seems to me to be mild... no diary issues, no skin issues... my ONLY symptom was diarrhea and iron deficiency ... no pain, bloating... nothing. I consider myself so lucky to have so few physical symptoms.

It did take a whole year for my digestive system to return to normal... but it's as right as rain now. I still don't see "cheating" as an option... and don't find it hard to stay away from wheat/gluten. If I don't know if there's wheat/gluten, I don't eat it... simple as that.

Now that I've found a bread mix that makes wonderful sandwiches, I am a happy camper!!

0

Share this post


Link to post
Share on other sites

It also helps to have a good support system. My hubby is great; only times he gets frustrated is when we're on vacation and he wants to eat at a nice restaurant. I tell him I will still go with him but it's not the same for him. I refuse to eat out; I simply won't risk cross contamination. Just made that decision about a week ago but I'm sticking to it.

This disease requires you to put thought into something you normally wouldn't; where, when, how you eat. Even dieters don't have this problem. If they're stranded somewhere they can still eat something unhealthy; we, however, would suffer the consequences.

I'm frustrated today because I'm going on a choir competition and I'm the only one carrying a cooler filled with ice and gluten-free foods. Everyone else just gets to stop at McDonalds or Subway and eat. It sucks.

But I would take feeling healthy over ALL of the inconveniences anyday. That's why I'm going this. I could chance it and go to McDonalds myself. But I'm not willing to..I want to feel great when we perform.

We just come here and talk to each other and it helps....I've also simply accepted the fact that no matter how busy I am ( I leave the house at 6:30am and get home around the same time or later, have weekend job committments, etc) I simply MUST take time to cook my meals each week. Sometimes it's frustrating but when the week hits and I already have my meals in the fridge, I'm so proud of myself.

0

Share this post


Link to post
Share on other sites

Jknnej- A strong support system is so helpful! My mom has a severe wheat allergy but my dad does not have any food restrictions and they don't even bring anything containing wheat and gluten in the house. If my dad wants anything he will eat something before he comes home or at work. I definately understand the whole inconvenience thing and completely agree with you it is well worth it to be cautious. :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,881
    • Total Posts
      919,468
  • Topics

  • Posts

    • Eeek confused! Positive biopsy, negative blood test???
      I would hope they would check for the other reasons for the endoscopy results.  A GI might not check for all of those so you may need to check with your regular doctor to start that process.
    • Depression / anxiety issues
      The second link I gave you was to a series of online video courses, you can try those for free to see if its something you think might help. There are also a lot of worksheets you can download, the first link had some I think but there are plenty of others out there if you search online.  Finally I had another look and found this: http://www.getselfhelp.co.uk/step1.htm  Which looks like a decent 7 step program Obviously its not as good as a dedicated session with a CBT counsellor, but the above may give you some tools you can use, especially when your thoughts are spiralling into a destructive circle. You could also search to see if there's any group sessions in Melbourne, that's how the NHS delivers it, they would be cheaper and there's really no need for one on one CBT, because it's more about delivering knowledge of the toolset. I approached it very sceptically but found it of some use, although at the time I was still under the gluten influence so it never tackled the root problem. The game changing aspect of discovering this is that you now know why the psychologist sessions didn't hit the mark, how could they when the root of your depression was your illness? My sessions now are far better and more enjoyable than when I was under a gluten fog.  Aside from all this the other advice holds, eat well, exercise, get sunlight every day and the longer you're on the diet the better you should get.  Oh and at least NI put up a hell of a fight in the Euros, hope you got to see that down under!
    • Depression / anxiety issues
      Funny enough that a naturopath at a mind & body convention that I attended last week said I was also deficient in selenium. You put your finger into a small holder (Similar to having your heart rate checked) she said I'm deficient in b vitiams, selenium vitiam d, she also said Somthing about having a lot of mercury in my body, to be honest it all went over my head as yet another thing to deal with so I haven't looked much further into it as it was all just to much, I have a print out of the results that she gave me tho, I'm going to look into it. Thank you for taking your time to reply to this thread 
    • Depression / anxiety issues
      Thanks for replying, I have not yet tried Cbt, I did meet with a psychologist for 2 months when I was really in the deepest depths of depression but it didn't really help, I couldn't concentrate at all during our sessions my anxiety and negative self talk was trough the roof at the time, and after loosing my job I could no longer afford the $150 sessions, I don't have medical insurance as I am currently waiting on my permanent residence visa to come tru ( originally from Northern Ireland) I might look into some Cbt sessions to see if they help, I'm willing to try anything 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,927
    • Most Online
      1,763

    Newest Member
    Shuayl
    Joined