Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Provigil?


munchkinette

Recommended Posts

munchkinette Collaborator

What's the deal with Provigil? I just got a prescription for it today, but some of my searches indicate that it has gluten. What are some alternatives? What responses have come back so far from the manufacturer?

Link to comment
Share on other sites
  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



evansmommie Newbie

I called the manufacturer of Provigil last July (2007, so it's been a while). They told me it has 54mg of gluten. So, my doctor wouldn't give it to me. I take ritalin and it does help some. I think you can also take adderall, which is a lot like ritalin. It took me a few days to adjust to the medicine, but I don't notice any side effects now.

Link to comment
Share on other sites
  • 2 months later...
one more mile Contributor
What's the deal with Provigil? I just got a prescription for it today, but some of my searches indicate that it has gluten. What are some alternatives? What responses have come back so far from the manufacturer?

I told CVS that I am need Gluten free meds and they now check for me.

Link to comment
Share on other sites
Mtndog Collaborator

CVS is pretty good about it- still wish Provigil was gluten-free- I called last week and it's not. Argh!

Link to comment
Share on other sites
  • 1 month later...
april22 Newbie
I called the manufacturer of Provigil last July (2007, so it's been a while). They told me it has 54mg of gluten. So, my doctor wouldn't give it to me. I take ritalin and it does help some. I think you can also take adderall, which is a lot like ritalin. It took me a few days to adjust to the medicine, but I don't notice any side effects now.

OMG- didn't even occur to me that medications have gluten in it! Thank you! My doctor recommended I consider Provigil. I am temporarily on Xyrem- which I am fairly convinced has no gluten, as I feel great. I was on ritalin for years and later on dexedrine. Ritalin is far better of the two. How much Ritalin do you take?

I think Dexedrine messed me up. I quit cold turkey when I graduated school. Gained 45 lbs in two months and have had a few miserable years. It has taken me years to realize that the main cause of my narcolepsy attacks is gluten and possible msg. None of that - no narcolepsy. The repair of my metabolism has been slow and painful...so my advise to you is that if you ever plan on coming off of it- follow the orders of tapering off slowly, maybe you can avoid my struggles.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,457
    • Most Online (within 30 mins)
      7,748

    Kitty-Kat001
    Newest Member
    Kitty-Kat001
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
×
×
  • Create New...