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Ezekiel Bread
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Hey everyone!!!!!

Ezekiel bread..........the 2 most confusing words ever to someone with celiac. some people say its gluten free.....others not!!!!!! i personally dont know if i have celiac or gluten sensitivity b/c the docter gave us a hard time......for the test you have to have gluten in ur system.......but after we found out gluten made us sick.......we didnt want to eat it for the test and get sick..........so my mom didnt do the test but its obvious she has celiac.......when me and my sisters went to get tested.......the docters refused to test us because my mom didnt have a firm enough diagnosis.......but we think me and 1 of my sisters has the true celiac because gluten sensitivity is not hereditary but celiac is.....and since my mom has it....well you get the picture!

anyway back to ezekiel bread......i eat it....but when my sister ate it it gave her a rash....and once my mom got a wheat grass drink but it was sprouted wheat just like ezekiel bread so she thought she could handle it...she couldnt..........why can i have ezekiel bread and my family cant???

:huh:

Anna Louise

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but we think me and 1 of my sisters has the true celiac because gluten sensitivity is not hereditary but celiac is

Ummm....Gluten sensitivity is hereditary. There are other genes different from Celiac. But our parents most certainly pass them on to us.

We all respond to gluten differently. Some Celiacs have NO SYMPTOMS at all, but are damaging their bodies nonetheless.

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If you have a gluten sensitivity or celiac disease, you should not eat ezekiel bread, it has gluten.

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I have been eating Ezekial Bread for many years, being mildly allergic to wheat and gluten, and was happy to see that I could eat a "normal" bread without gastric symptoms. The large alternative medical center where I work has been recommending it for as many years as it has been in existence, because of the fact that SOME patients who are MILDLY wheat and gluten sensitive might be able to get away with eating a low sugar, flourless, SPROUTED grain bread without any deleterious effects. However, way back when, I do not believe that "organic wheat gluten" was in the list of ingredients, as it is today. Also, the bread seems to toast darker on the same setting as it used to, and seems to have a much more airy consistency. I don't think anyone at the center noticed the addition of the wheat gluten - I only did so this morning, while planning a healthier diet for myself. I will certainly be bringing this to the practitioners' attention, since the patients who were able to tolerate it before, might not be able to do so now, and may have been wondering why they have been feeling poorly. It is true that Food for Life Breads do have true wheat-free and gluten-free alternatives. However, I do hope that they will consider removing the added "organic wheat gluten" from their recipe, so that many thousands of folks can go back to using it again.

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As many have said before, wheat, sprouted or not, contains gluten. Sprouted wheat is not safe for celiac patients. Apparently there is some kind of enzymatic process that reduces the amount of gluten, but the gluten is still there. The benefit of ezekiel bread is that it is more nutrient rich; however, this benefit won't do any of us with celiac disease any good.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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