Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

What's Wrong With Me!


okgrace

Recommended Posts

okgrace Apprentice

Hi Everyone,

I need help and to vent! My stomach is killing me all the time. I ate a gluten free Namste spice cake with cream cheese frosting (homemade) last Tuesday and was horribly ill for 2 days. My stomach was finally feeling 100% Monday and Today I am having D again. The pains I was having last week were awful, sharp and stabbing. My massage therapist thinks it's my gallbladder or related to nerve impingment in my neck since they all run on the same nerve. (Not that she can diagnosis this stuff).

Does anyone else get overheated quickly and have D and headaches that become migranes if they aren't treated quickly?

I stumbled on to the gluten free thing through my dd who was diagnosed in Jan. I stopped eating gluten to be supportive of her. We have also stopped nightshades, soy, dairy, and some lectins.

I feel like I can't eat anything that I don't prepare from scratch at home. I need to know what I should do next. My dd is doing really well and is not experiencing the same symptoms. My husband is convinced it's the water or in my head because who develops food allergies at 29.

Thanks

Kristan

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
My husband is convinced it's the water or in my head because who develops food allergies at 29.

I became intolerant to pretty much *everything* at 31.

Foods, chemicals, environmental triggers, etc. Prior to that....I had no problems with anything.

I have several issues contributing....although I do not have Celiac.

Link to comment
Share on other sites
tom Contributor
Namste spice cake with cream cheese frosting (homemade)

I'm dairy-free too and don't know if I've seen a DF version of a cream-cheese frosting.

What's in it?

Link to comment
Share on other sites
MyMississippi Enthusiast

You need to see a doctor if your stomach is killing you all the time. :o

Or you can start an elimination diet to see if a particular food is the culprit. Or,You might want to just drink water for a 24 hour period and NO food at all - (if you have good health) and see what happens.

I got multiple food allergies when I was in my 40's --- so it can happen anytime.

Link to comment
Share on other sites
okgrace Apprentice

The cream cheese frosting wasn't dairy free. This was the first time I had allowed dairy in several months becuase I want my dd gut to heal. She was experiencing symptoms that weren't going away so I cut out all the typical triggers. I never had a problem with dairy before this. I have only been experiencing this for a few months.

This is gross, but when other people get D does it seem to be unstopable without an anti-D. Is it good to take and anti-D or just let it run it's course (which could be 24 hours or longer)?

Thanks for the response, I really appreciate it.

Kristan

Link to comment
Share on other sites
okgrace Apprentice

I was just thinking.... Some of you mentioned that you have environmental allergies. How do you go about figuring out what those are. I work for a hospital and most of the time I work out patient at schools and childcare centers, but about once a week I work inpatient. I am usually ill after working inpatient shortly after I get home or even before i leave work. I am constantly using handsanitizers and washing my hands. I have wondered if there soap makes me sick, but I am sure there are lots of other chemicals that I am exposed to there. I have also wondered if it's just in my head since I enjoy working with the patient's, but acute care isn't really my thing.

Just don't know anymore,

Kristan

Link to comment
Share on other sites
Marleigh Rookie

Several things come to mind for me...if the cake was sugar-free also (by any chance), the artificial sweeteners will give me violent D reactions like you described. Not necessarily Splenda and things that you put in drinks, but the "sugar alcohols" (malitol, etc) that they put in sugar-free baked goods.

Another idea is MSG or a preservative, or high fructose corn syrup. Either one of those will cause intestinal symptoms for me, in the right doses.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
I was just thinking.... Some of you mentioned that you have environmental allergies. How do you go about figuring out what those are. I work for a hospital and most of the time I work out patient at schools and childcare centers, but about once a week I work inpatient. I am usually ill after working inpatient shortly after I get home or even before i leave work. I am constantly using handsanitizers and washing my hands. I have wondered if there soap makes me sick, but I am sure there are lots of other chemicals that I am exposed to there. I have also wondered if it's just in my head since I enjoy working with the patient's, but acute care isn't really my thing.

Just don't know anymore,

Kristan

I have a customer with extreme mold sensitivity. She was on disability for a couple of years before she got enough of her health back that she could return to work.

For some reason (she told me but I can't remember) she recently wound up in a local ER where upon her condition got worse :o instead of better! The reason (confirmed by the attending ER physician) was the *mold in the ceiling caused by leaky pipes!* The tiles were actually sagging and discolored.

Not only that, but he said that because of lack of maintenance it was common in hospitals! :angry:

Just thought I'd pass that on to give you a place to start looking.

Link to comment
Share on other sites
Rosewynde Rookie
My husband is convinced it's the water or in my head because who develops food allergies at 29.

Anyone can develop food allergies at any time. All it takes is to have something trigger it and you get stuck with it. My trigger was a difficult pregnancy. I've read enough on here to know that many of us developed these problems latter in life. I hope you can convince your husband of that. If your feeling rotten there is some cause and it is not all in your head. Do be aware though that worrying about things only makes the feelings worse as it stresses your body.

Link to comment
Share on other sites
okgrace Apprentice

Thanks for the input from all of you. Our hospital has gone through some major renovations in the last couple of years. It is a small community hospital that is growing quickly so unlike most hospitals it seems to have had money to maintain itself fairly well. Parts of the hospital are old and I am sure are not up to par. I wonder about the air quality system. How often are the filters changed etc. I have no idea how it works, but I feel like the air is part of the issue.

The cake mix does not have artificial sweetners, although my sister may have used xylitol to sweeten the frosting, not sure. The cake mix is free of gluten, wheat, soy, nuts, potato, corn, dairy, and casein. It is sweetened with cane juice. I just thought about the fact that my sister uses xylitol frequently to sweeten things and I have a hard time with gum that is sweetened with it. Very interesting!

I am trying not to worry to mych and now that I am feeling better it's a bit easier. My husband asked this evening if I had pickrd up a water test kit. Arrrrrrrrhhhhhh!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy

    2. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy

    3. - trents replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy

    4. - shadycharacter replied to Linedancegal's topic in Introduce Yourself / Share Stuff
      5

      25 year biopsy confirmed/ate pizza with no ill effects?

    5. - Tlbaked13 replied to djmu's topic in Related Issues & Disorders
      5

      Peripheral Neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,467
    • Most Online (within 30 mins)
      7,748

    MorticiaCat
    Newest Member
    MorticiaCat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Tibaked If you are diagnosed with coeliac disease, you may find that all sorts of symptoms will be alleviated by a gluten free diet.  GERD and lactose intolerance can be greatly reduced if not eliminated once the gluten-free diet is adopted.  However, if you want to be tested and officially diagnosed you will need to have been consuming gluten until your blood test/endoscopy.   Although I don't have the same sensations you describe before my diagnosis, I frequently woke up with numb arms and numb fingers.  I could feel pins and needles in my extremities.  Weirdest of all, the sensation that drops of cold water, like rain, were falling on me, even though the sun was shining or I was indoors. It took time but things got much better after after following a gluten free diet for a while. Of course,  some neuropathy is caused by malnutrition, common in coeliacs when first diagnosed,  so make sure the doctor checks your vitamin (particularly B12) and iron levels. Cristiana
    • Tlbaked13
      Not officially diagnosed yet I goto the doctor a week from today but I'm 110% that will be the diagnosis I honestly can't believe my doctors/health care team hasn't put it together before I mean I'm basically the live and walking definition straight from the book haha I don't think I've ever been so sure on anything before I'm just reqly concerned for this diet I will be living on or diets I guess due to type 1 diabetes, gastroparesis, gerd, celiac disease, and lactose intolerance...what is left? A sand salad with a side of rain water?!? I definitely see a tough future
    • trents
      Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes. 
    • shadycharacter
      Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. 
    • Tlbaked13
      I am COMPLETELY new to this celiac disease however I have had the same feelings and then some with my feet for years now and been diagnosed with peripheral neuropathy myself but they blamed and attempted to treat due from my type 1 diabetes and none of the treatment has helped at all so far so possible from celiac disease? Just sharing MY thoughts on this I've had zero confirmation 
×
×
  • Create New...