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What To Do After Accidentally Eating Gluten?
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I've been diagnosed and gluten-free for a little under a year, but I still have some trouble eating 100% gluten-free. I try very hard to make sure everything I eat is gluten-free, but sometimes I still get sick. I assume it's because of cross-contamination or some ingredient I didn't know had gluten in it. Does anyone have any advice for how to feel better after accidentally eating gluten?

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For feeling better: I drink Yogi Tea Green tea Kombucha, with Yogi Tea being the brand. I put honey in it, and then I heat up a heating pad -- like for muscles -- and wrap it over my abdomen. That helps a lot.

The best thing you can do is know that it will be over soon, and ride it out. Watch TV or do something that passes the time, and use distractions as best you can.

Okay, for staying away from gluten: There's a couple things you should take a look at. You didn't give a lot of detail, so I apologize if I go over ground you already have. =)

First, make sure the products -- not just the food -- you are using are gluten free. Shampoos, soaps, lotions, make-up, even dishwash detergent. Your pans and toaster and breadboards are all replaced, right? Colanders, non-stick pans, things like that, should have been replaced right away -- not everyone needs to, but I tend to be super-sensitive, so I had to.

Then look at every aspect of your day. What about your chapstick? Lipstick? Are you prone to putting your fingers in or around your mouth, or chewing on pens? (if you are, stop that! I did both, and would get sick a lot more than I do-- er, did until recently.)

Do you have an SO? If so, is your So gluten free too? My husband had to go gluten-free because not only was he starting to show rash symptoms with gluten, but he'd cheat, then touch me or kiss me, and I'd get sick! If your family or SO is not gluten free and they get their gluteny fingers on you or your stuff, you could get sick if your fingers or those items go by your mouth.

I hope this helps at all!!

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For feeling better: I drink Yogi Tea Green tea Kombucha, with Yogi Tea being the brand. I put honey in it, and then I heat up a heating pad -- like for muscles -- and wrap it over my abdomen. That helps a lot.

The best thing you can do is know that it will be over soon, and ride it out. Watch TV or do something that passes the time, and use distractions as best you can.

Okay, for staying away from gluten: There's a couple things you should take a look at. You didn't give a lot of detail, so I apologize if I go over ground you already have. =)

First, make sure the products -- not just the food -- you are using are gluten free. Shampoos, soaps, lotions, make-up, even dishwash detergent. Your pans and toaster and breadboards are all replaced, right? Colanders, non-stick pans, things like that, should have been replaced right away -- not everyone needs to, but I tend to be super-sensitive, so I had to.

Then look at every aspect of your day. What about your chapstick? Lipstick? Are you prone to putting your fingers in or around your mouth, or chewing on pens? (if you are, stop that! I did both, and would get sick a lot more than I do-- er, did until recently.)

Do you have an SO? If so, is your So gluten free too? My husband had to go gluten-free because not only was he starting to show rash symptoms with gluten, but he'd cheat, then touch me or kiss me, and I'd get sick! If your family or SO is not gluten free and they get their gluteny fingers on you or your stuff, you could get sick if your fingers or those items go by your mouth.

I hope this helps at all!!

Thank you so much! The heating pad & tea are a great idea.

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I drink peppermint tea or traditional medicinals eater's digest. It has peppermint and other hebs that are calming.

WhimisKay: Please read the labels on Yogi tea. I was debating whether to buy Yogi tea or Traditional Medicinals. I was looking at the ones for liver detox...and one of theirs had wheat in it! Since my stomach was already gurgling I went for the brand that has no wheat in any one. (I used traditional medicinals mother's milk tea while nursing.)

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I take Immodium if things go on for too long--otherwise I figure it's best to get rid of everything. I drink a lot of water to help sort of rinse out the toxins and to replace the fluids I, uh, lose. I eat very conservative safe foods for a few days like bananas and rice, Then I take extra acidophilus for about a week to get my intestinal flora back in order. I got glutened big time last week while on vacation and was continent enough to travel the next day.

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I think if you know you have been glutened the best thing is to get rid of it as fast as possible. I think of gluetening as kind of like having a poison in your system. So, I think it is best to get the "poison" out fast and limit the damage. So, instead of an anti-diahrea product a laxative might be a better choice. Certainly not an option when out and about traveling or whatever though.

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My reaction to gluten is extreme gas, pain and I feel like I should make a BM. but nothing happens. After 3 days of agony, I get D. I find that taking a laxative helps things move along. I don't always have 6-12 hours with nothing to do but wait for the pills to kick in. If I pop the pills early on, it shortens the sickness by about 3 days, but there is a danger of becoming dependent on laxatives, so don't go overboard!

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tea is my cure all...the heating pad is a great idea though I'll have to try that

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I'm actually in the middle of my first experience getting glutened. I'm watching TV and just riding it out tonight, but was curious if there's anything people recommend I do or take for the pain. I'm drinking lots of water and using a heating pad, but what I'd really like is something to dull the stomach pains I'm having. Does anyone know if something like xanax would relax my insides? I think I'll try making some green tea, if I have some that is wheat free...

I was diagnosed only 2 days ago and have been trying to be gluten-free for the last week. I'm having a follow up with my primary doc next week and was curious if there's any Rx I could ask for to help with these episodes, when they do happen...

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Try some Pepto Bismol. I take Pepto and plain old aspirin. I also take DPP-4 and I think it helps some. Lots of water and rest if you can. L-glutamin is supposed to help also. I never noticed any affect from it myself. There is also marshmallow root which is supposed to be soothing. If you are gassed up in the stomach peppermint is supposed to help relax the muscles. This does help me for gassy stomach issues. Altoids peppermints are ok. You also might do well to try some pro-biotics.

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I asked my GI about the Immodium conundrum. He said to go ahead and take it. It makes life after glutenation more manageable, and by the time the symptoms show the damage has been done.

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I'm actually in the middle of my first experience getting glutened. I'm watching TV and just riding it out tonight, but was curious if there's anything people recommend I do or take for the pain. I'm drinking lots of water and using a heating pad, but what I'd really like is something to dull the stomach pains I'm having. Does anyone know if something like xanax would relax my insides? I think I'll try making some green tea, if I have some that is wheat free...

I was diagnosed only 2 days ago and have been trying to be gluten-free for the last week. I'm having a follow up with my primary doc next week and was curious if there's any Rx I could ask for to help with these episodes, when they do happen...

To help ease stomach cramps, well the pain, i use rose massage oil, i was slightly skeptical but it really helped me, i just rubbed it (warm!) clockwise on my abdomen until it turned slightly pink then replaced my heating pad :)

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Try activated charcoal to absorb it so it just passes through your gut!!

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It seems everyone reacts a little differently. I was diagnosed with Celiac 9 months ago and had my first "glutened" experience about a week ago. It took about 12 hours after eating something from Chili's gluten-free menu to get sick. It was a severe reaction. The whole experience lasted 7 days. Just getting better today. I took something called "gluten flam" which I ordered online to help my digestive system. All I can say is, it wasn't fun and not eating out for a long time.

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It seems everyone reacts a little differently. I was diagnosed with Celiac 9 months ago and had my first "glutened" experience about a week ago. It took about 12 hours after eating something from Chili's gluten-free menu to get sick. It was a severe reaction. The whole experience lasted 7 days. Just getting better today. I took something called "gluten flam" which I ordered online to help my digestive system. All I can say is, it wasn't fun and not eating out for a long time.

I also had a terrible experience at Chilli's. I ordered off of their gluten free menu and discussed it with the waiter and then my meal came with a piece of toast laying right on top of half of my steak!!! Needless to say I don't think they understand or care about the severity of gluten to people on a gluten-free diet.

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The longest I have been sick for was 1 month when I ate gluten infested chicken fingers in Seoul. It was one of the hardest months of my life. I tried laxatives, tea and lots of sleep but nothing helped. To bad there wasn't a pill we could take so that we could enjoy gluten again.

I'm also lactose intolerant and it's nice to just take a pill whenever I want a glass of milk.

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Try some Pepto Bismol. I take Pepto and plain old aspirin. I also take DPP-4 and I think it helps some. Lots of water and rest if you can. L-glutamin is supposed to help also. I never noticed any affect from it myself. There is also marshmallow root which is supposed to be soothing. If you are gassed up in the stomach peppermint is supposed to help relax the muscles. This does help me for gassy stomach issues. Altoids peppermints are ok. You also might do well to try some pro-biotics.

 Altoids are not gluten free they contain wheat so they are not ok to eat

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 Altoids are not gluten free they contain wheat so they are not ok to eat

 

Hi

 

In the USA the peppermint Altoids are gluten-free.  They may not be gluten-free in other countries though.  So that is something to watch out for.

 

http://www.wrigley.com/global/brands/altoids.aspx#panel-3

 

INGREDIENTS:SUGAR, GUM ARABIC, ARTIFICIAL FLAVOR, GELATIN, CORN SYRUP, NATURAL FLAVOR, RED 40.

Wrigley's goal is to keep our online nutrition information up-to-date and accurate. However, we always recommend that you check our labels, or call 1-800-WRIGLEY, for the most up-to-date ingredient and nutritional information.

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I have a really bad coping mechanism: I drink a glass or two of wine. Most of my initial symptoms are more psychological in nature (dizziness, tingling limbs, disorientation, etc.) so to keep myself from over-thinking everything that's happening and making it worse by becoming psychosomatically ill (illness without physical causes, based in psychology), I kind of induce the same symptoms through a little bit of alcohol. I also get rid of or away from whatever the culprit was.

 

For the rest of the time until my body decides it's done with the gluten and I need a bathroom ASAP, I try to do things to help alleviate the pain from bloating and keep my anti-spasms on me in case of a colon-spasm attack, which sometimes happens. Also, crappy movies and warm blankets help. It's really about waiting out the storm. 

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    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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