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I have just gone gluten-free after years of feeling crummy--bloating, pain, constant D and itchy rashes etc. etc. I'm not technically dx'd with celiac disease because my doctor didn't think I could have it since I've never lost 15 pounds for no reason :angry: But I'm pretty sure that's the problem because I have felt great since going gluten-free!

Anyway, I have 3 kids, 8, 5 and 2. The older 2 are both thin and prone to rashes, and occationally both kids will complain of tummy aches. My 5 yr old has always had strange tummy issues, she had what we finally figured out was probably reflux as a toddler and would throw up for no reason about once or twice a month after going to bed--no fever, no warning. She was tiny (still is) and weighed about only 16 lbs at a year old. She was put on reglan for the reflux, and then gained quite a bit of weight (went from not even on the growth chart to 15th %tile in 3 months!). The dr. didn't think much of it because she was otherwise very healthy and developing normally. She is still very thin and is somewhat short for her age, and also her skin is very pale--almost transclucent. My coloring is similar, but what worries me more is the dark circles under her eyes. Could this be celiac disease? She also has been grouchier than normal lately.

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Weight loss only happens to some people with Celiacs. Many are overweight or at perfect weights. You should be tested and your children, too. Celiacs can be passed down. My mother gave it to me and my brother.

Good luck!

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There's no set description, same as there isn't one type of adult celiac, but often the celiac child is very thin (from malnutrition) or on the shorter side. Of course, gastric symptoms can also lead you to the celiac.

Because celiac is also often passed on through genetics, I think it's very likely that she has celiac. Low weight, low height, unexplained vomiting--classic celiac symptoms....moody, circles under the eyes, pale complexion are just added things that would lead me to think celiac--I'd definitely get her tested.

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Celiac is a genetic autoimmune disorder. If you have it all of your kids should be tested. There is a chance that they do infact have it and the sooner they are tested the better. They would be very fortunate to find out young. From what you are saying there are signs of celiac and since you have it it makes me suspect it more.

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:D My five year old had very similiar symptoms as your daughter when she was 4 years old. My doctor sent me to a pediatrician who said my daughter (as well as celiac and casein intolerance) had an iron deficiency. She was low energy, cranky and poor apetite. She has been taking an iron supplement since then and went from the 10th percentile to the 40th percentile in size for her age. She was only 6 lbs 11 oz at birth so this is pretty good. Her appetite and mood have both improved since the added iron. Finding a gluten-free and C/F childs multivitan with iron was challenging but I found a great pharmacist who did a lot of legwork for me.

Donna

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DEFINITELY have your children tested, it sounds classic to me. And I am the mother of a 3 year old diagnosed last June who's only symptom was "failure to thrive"....weight loss, rashes that could not be controlled, etc....

If it's not celiac disease no harm no foul, but if it is you can save them a lot of hardships. And if your doctor "doesn't believe in it" then tell him it's your money, your children, and you demand they be tested. And tell him you want the TTG test run, and that it must be sent to a very specific laboratory for accurate results (I believe promethius and Mayo are the only two in the country who do this test) And if they STILL give you a hard time go armed with this: http://www.naspghan.org/PDF/PositionPapers...e_2004_jpgn.pdf it is the guidelines for diagnosing Celiac set forth by the The Celiac Disease Guideline Committee of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition.

Bridget

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If your children come out positive for celiac disease, then that only goes toward confirming your own diagnosis. I've never tested positive but both of my sons have celiac disease (they are identical twins, so it's not as alarming as it sounds statstically for offspring being positive. :-)

My 'oldest' twin complained of bone pain, was weak, pale, tired, no appetite, so thin it was distressing, but tall for his age. He tested positive on the antibody test at 3 1/2

My younger twin was MOODY! I was tempted to just turn around and leave him in the grocery store one time when he was having one of his almighty tantrums. He had elevated antibodies at 4 1/2 but didn't have a positive biopsy until he was 6. He cheats on his diet (as I knew he would, because of his temperment. :rolleyes: ) When he cheats he gets migrains. So I always know

Both boys threw up as babies and toddlers. I can remember holding one and having him throw up all down my night gown and just as I was setting him down, the other threw up all over the living room carpet. Both were grossly thin, I mean it was painful to look at them. But they did not test positive until the ages I indicated above. At that time they had gained some weight and didn't seem so fragile. They had stopped throwing up so much (but still did more that normal I think.) My older twin actually learned to throw up in a trashcan or sink at 2 1/2 It was just a matter of practical experience.

So to point to all this is, get your kids tested but if they don't come out positive, don't write off the possibility of celiac disease. Get them tested periodically just to be safe.

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I am still unsure about the knowing. I have a son who tested positive for celiac through a blood test, but the biopsy was negative. I was told that I should not go on a gluten free diet. His main symptom is behavioral. One main difference in his bahavior was when he was taken off milk. I am confused as to what is what and have read that there is such thing as gluten sensitivitiy without celiac. ANy thoughts? I am right now going with moderate diet, high in protein and veggies, and low on gluten and dairy products. Some days are better than others. My blood test was done at a Quest. DO we trust QUest? I welcome any thoughts on the matter.

Gretchen

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flowers-if the blood test was positive I would not rule out celiac disease. If there is not enough damage to the intestine a biopsy will not catch it. Many people don't even have symptoms with celiac. Celiac is very underdiagnosed.I would also find a doctor who is knowledgable in celiac in your area. If you go to the homepage of this site there is a link to doctors and you may be able to find them where you live.

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    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
    • I have confirmed that Member's Mark Ibuprofen are gluten free in three ways: the list of ingredients matches the list of gluten-free excepients from the Gluten Intolerance Group's list, I called the customer service number on the bottle (they confirmed it is gluten-free), and I found another website in which a dr claims it is gluten-free.
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