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Reactor And Nonreactor

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A question keeps coming to mind whenever I read about the different reactions we are having to the same foods. Like today, when one post was recommending McGann's Irish Oatmeal because the poster never has a reaction to it and therefore considers it safe, and another post quickly offered the observation that she had a severe and unmistakable reaction soon after eating the oatmeal and so for her it was off limits.

The usual explanation--correct me if I'm wrong--is that we are different. Some can tolerate what others cannot. I'm not sure what this means, but I'm guessing that it means our digestive systems are different, that is, more or less damaged by the gluten, and possibly by food allergies, and so we can have a more or less (or no) reaction to the questionable food, or ingredient. If the condition is a food allergy I can understand one not bothering too much about the possible damage that is being done because our antibodies are doing supposedly their job. And apart from an elavated rise in antibodies there is no damage being done to the body, outside of, I would guess, a certain amount of wear and tear. (Is this so?)

My real concern is about those of us, probably most of us, who have celiac disease. Being an autoimmune disorder, isn't it slowly, and maybe not so slowly for some, wrecking havoc with our insides, whether we know it or not? And no matter how little gluten gets into our bodies? Or so I have been led to believe by reading the posts on this Board. If this is so, how can we be sure when ingesting a food that most would consider risky, like oatmeal--at least to the extent that nothing conclusive has been found either way--that we are not damaging our bodies? Especially if you're mostly a non-reactor, with only minor reactions. And isn't it possible for those who normally are very sensitive to gluten, or to certain forms of it, like in wheat, to be less sensitive to the form of gluten in other grains so that they are not visibly reacting but may be doing damage nonetheless. Is it possible to get a definitive answer to this? Or is it just one more troubling uncertainty that we will have to live with, along with everything else? --Aldo


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I don't know the answers to the questions you have posed (although I will say that your understanding of allergies concurs with mine), but I did have a thought to share. I wonder if celiacs who react to oats have the less common gene for celiac disease (or even a third, as a recent post here indicated DOES exist!). It would be really interesting to see this factor addressed in a future study. In the meantime, I am choosing to avoid oats for now. Back in the days when I was wheat-free but not gluten-free, I had huge reactions to barley but none (that were obvious, at least) to oats. Possibly, after a few years on the gluten-free diet and after a stool test from Enterolab indicates that I am doing acceptably well, I may decide to test oats and see what happens to my antibody levels. I hope I can eventually have them because I really enjoy them, but I am certainly doing fine without them.

I hope you're doing well!


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My body seems to have a love/hate relationship with oatmeal. Granted, the only kind I've been able to find here consistently (Korea) is the giant Costco pack of instant flavoured oatmeal. I gave it up for a while but after two months straight of brown rice flakes for breakfast, decided to give it another try since they had a different variety of flavours when I was at Costco last week. It's my suspicion that the cinnamon&spice variety was the culprit, since I haven't had any reaction yet. If it starts causing trouble again, I guess I'll have to resign myself to the brown rice flakes (a.k.a cardboard bits) till I move back to Canada.... :huh:


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    • Yes, there are other grains that have gluten but they don't have the TYPE of gluten that affects celiacs. Celaics can not have the gluten in wheat, barley, & rye. Corn has gluten but it is not the kind of gluten we react to. I actually use corn gluten in my garden as it prevents weed seeds from sprouting. LOL! Hey, it works great! Read these: Gluten is the name for the protein in grains. All grains contain protein that is theoretically gluten but people with celiac disease and most other gluten allergies only react to the form of gluten found in wheat (including spelt, kamut, triticale and all varieties of wheat), barley, and rye. From:   I've run across another gluten urban legend that needs to be dispelled: the idea that people with celiac disease and non-celiac gluten sensitivity actually react to gluten in all grains, not just wheat, barley, rye and sometimes oats. This just isn't true, despite what you might have heard or read. People who react to the gluten protein found in wheat, barley and rye don't automatically need to avoid rice, corn, millet, sorghum and other grains. From:   There are some unsavory sites out there in internet land that will tell you celiacs cross react to all grains. They generally have something to sell, a book, a video, some vitamins or other things. They use scare tactics to sell what they are selling. These claims simply are not true. If they were, then all the people on this site who have gotten well while not eating wheat, barley & rye but continuing to eat rice, quinoa, corn & so forth would not have gotten well; they would be dead by now & there would be no "old timers" on this site because they would have eventually died from eating grains other than wheat, barley & rye. Celiacs can develop sensitivities to other foods, even foods like cabbage or lettuce or potatoes or even rice or maybe only brown rice but that does not mean they are reacting b/c of gluten in those things. You may be doing great since eliminating rice from your diet and that is wonderful that you figured out that it affects you but that does not mean the rice contains the kind of protein that celiacs can not tolerate.  
    • Working a modifying a recipe to be both Vegan and Grain free. I am a bit low on funds right now and can not test it. Feed back is welcome and if you do it perhaps  get me a grams breakdown for duplication. 1 cup almond flour
      ½ cup unsweetened shredded coconut
      1 teaspoons cinnamon
      1 teaspoons apple pie spice
      1 teaspoon baking soda
      ½ teaspoon salt
      ¾ cup unsweetened applesauce
      ½ cup almond butter
      ½ cup Maple/Agave
      2 Tablespoons soft coconut oil
      2 Tablespoons Ground Flax Seed combined with 5 table spoons water whisked and set aside
      1 medium apple, diced small (about 1¼ cups)
      1 cup chopped pecans
      ¼ cup flax seeds

      Preheat oven to 350° F and grease a 9 x 13 inch baking pan.
      In a mixing bowl, whisk together the almond flour, coconut, cinnamon, baking soda, and salt.
      Add the applesauce, almond butter, honey, coconut oil, and ground flax mixture. Beat with a mixer until everything is incorporated.
      Stir in the diced apple, pecans, and flax seeds.
      Spread the batter in the prepared pan and bake for 25min
    • Sorry - didnt realize you couldnt see it. Talked about all grains having gluten.  
    • We can't see the video carle.  The site is banned from celiac com for spamming. Not having seen it, I'd guess they are selling something?
    • Sorry Doit, Ok, I think I see what you are talking about.  The serum IgA test?  The serum IgA is to verify if your body does make IgA antibodies.  Not all of us make that particular antibody type.  you do make IgA antibodies though, and your reading is fairly high.  the way I understand it, the serum IgA is not specific to celiac disease.  It does indicate a level of antibody activity though.  So perhaps you are fighting an infection or something?  Or it is celiac and for some reason your blood levels of antibodies are not high enough to detect right now. The below info on serum IgA is from Quest Labs. ******************************************************************** Test Highlight IgA, Serum    Clinical Use Diagnose IgA deficiencies Determine etiology of recurrent infections Diagnose infection Diagnose inflammation Diagnose IgA monoclonal gammopathy Clinical Background IgA is the first line of defense for the majority of infections at mucosal surfaces and consists of 2 subclasses. IgA1 is the dominant subclass, accounting for 80% to 90% of total serum IgA and greater than half of the IgA in secretions such as milk, saliva, and tears. IgA2, on the other hand, is more concentrated in secretions than in blood. IgA2 is more resistant to proteolytic cleavage and may be more functionally active than IgA1. IgA deficiency is the most prevalent isotype deficiency, occurring in 1/400 to 1/700 individuals. Many patients with IgA deficiency are asymptomatic, while others may develop allergic disease, repeated sinopulmonary or gastroenterologic infections, and/or autoimmune disease. Individuals with complete absence of IgA (<5 mg/dL) may develop autoantibodies to IgA after blood or intravenous immunoglobulin infusions and may experience anaphylaxis on repeat exposure. Elevated serum IgA levels are associated with infection, inflammation, or IgA monoclonal gammopathy. Method In this nephelometric method, anti-human IgA binds to IgA in the patient sample, forming an insoluble complex. The amount of light scattered by this insoluble complex is proportional to the concentration of IgA present in the sample.   ********************************************************************
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