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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Till Improvement Shows?
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5 posts in this topic

My dd is 11 and we just started her on a trial gluten free diet. She gets upset stomch, very, very easy. She runs to the bathroom after almost every meal. We do know she is somewhat lactose intolerant, can't eat choclate or quite a few artificial sweetners. But her problems seem to be getting worse, no matter how closely we watch what she eats.

I am also getting concerned with her weight. She is 4' 9"or 10" and only 68lbs.

I told the ped. that my mother was celiac, but she didn't seem very concerned about her problem being celiac. The only test she is sending her for right now is a lactose test, too see if her intolerance is worse than we thought.

But she did say to do 3 different trial elimination diets: gluten, dairy, fruit.

We opted to do gluten first, to me that was the easiest! I grew up with it! LOL

Today was only day 2. After breakfast she comes to me all smiles. Telling me she didn't feel sick after eating. She usually gets somewhat crampy after almost every meal.

We get to our meeting and she is all smiles telling Grandma, how good she feels. I never realized that she felt that bad before! :(

My dd who quite frequently has moody, tempermental spells. Was all smiles! It was wonderful!

But it has only been 2 days. How can 2 days make a difference? I'm half afraid, it was just a fluke and we will go back to normal tomorrow. On the other hand I'm half afraid it isn't, and I will have to put her on a gluten free diet. I know its much easier now, than it was when my mom went gluten free almost 30 yr. ago, but still??

Any thoughts, ideas or just encouragement would be greatly appreciated!

Thanks from a newbie!! :)

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Hello..

Well the stomach problems are the ones that get better first. It makes sense. once you exclude the guilty food you stop running to the bathroom.When we say that it takes time for celiac symtpoms to go away , we mean that It takes time for the energy to come back and for the loss of vitamins.

So I hope that celiac is the answer to your dd's problems...

Keep us infromed about her progress. I hope she keeps on smiling every single day....! :)

Meline

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For the first few gluten free days my son had an upset stomach (which he did not really have pre-dx) and had to run to the bathroom frequently. Then, everything was fine. It has been 4 months and he has gained 7 pounds and all of his jeans hit him on his shins. I told him today he has grown more in the last 4 months than he has in the last 4 years! This is my opinion only, but, I would insist on testing for Celiac before your daughter goes gluten free. Once she is gluten free there is a big chance the test would be a false negative if you were to test her later. My son has Celiac but neither I or his dad have it. So, we are thinking he got it from either my mom or his mom (both have major symptoms). It can skip a generation.

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Or if she keeps responding pos. to the diet, then you can get the genetic tests. To me....if she has the genes and the diet works...then she is Celiac and no need for an endoscopy or worry over "false negatives". But that is just me.

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OMG! I have been researching gluten all over the internet. I just found out that it can manifest in tooth problems. My dd has had so many dental problems over the years. No one could ever suggest a reason. I have gotten so frustrated over the years, I knew her teeth were being brushed well. I did it myself, to be sure for years. Used flouride rinses etc.. But in all her years of going to the dentist we have only gone one or 2 visits without having to go back for fillings. She has ended up with pulled teeth, a retainer, caps, coatings. She barely has a teeth in her mouth that hasn't had work done on it. I'm not even sure anymore how many, have fillings. As I only let them use white fillings on her permenant teeth.

If this diet works, I could care less about tests! LOL My mom has been gluten free for almost 30yr. without an "official" diagnosis. I don't think it existed back them. Doctor just said if you feel better than, go with it!

My dh just came back from McD with her and my youngest. She likes the chipolte wraps, so I told her to get the filling without the wrap. I know the sauce may be bad, but its a start. She also got french fries. She came home so excited, she still feels good and didn't have to go the bathroom at McD's!!

She doesn't even like McD's because she usually ends up feeling yucky, and running to the bathroom. We have been chalking it up to greasy food. McD is all junk anyway, so I don't even like to go there anyway! But dh loves it, he is still a kid at heart! LOL

Thanks!

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