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How Long Till Improvement Shows?


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4 replies to this topic

#1 my3monkees

 
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Posted 20 July 2008 - 09:44 AM

My dd is 11 and we just started her on a trial gluten free diet. She gets upset stomch, very, very easy. She runs to the bathroom after almost every meal. We do know she is somewhat lactose intolerant, can't eat choclate or quite a few artificial sweetners. But her problems seem to be getting worse, no matter how closely we watch what she eats.
I am also getting concerned with her weight. She is 4' 9"or 10" and only 68lbs.
I told the ped. that my mother was celiac, but she didn't seem very concerned about her problem being celiac. The only test she is sending her for right now is a lactose test, too see if her intolerance is worse than we thought.
But she did say to do 3 different trial elimination diets: gluten, dairy, fruit.
We opted to do gluten first, to me that was the easiest! I grew up with it! LOL
Today was only day 2. After breakfast she comes to me all smiles. Telling me she didn't feel sick after eating. She usually gets somewhat crampy after almost every meal.
We get to our meeting and she is all smiles telling Grandma, how good she feels. I never realized that she felt that bad before! :(
My dd who quite frequently has moody, tempermental spells. Was all smiles! It was wonderful!
But it has only been 2 days. How can 2 days make a difference? I'm half afraid, it was just a fluke and we will go back to normal tomorrow. On the other hand I'm half afraid it isn't, and I will have to put her on a gluten free diet. I know its much easier now, than it was when my mom went gluten free almost 30 yr. ago, but still??
Any thoughts, ideas or just encouragement would be greatly appreciated!
Thanks from a newbie!! :)
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#2 MELINE

 
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Posted 20 July 2008 - 10:32 AM

Hello..


Well the stomach problems are the ones that get better first. It makes sense. once you exclude the guilty food you stop running to the bathroom.When we say that it takes time for celiac symtpoms to go away , we mean that It takes time for the energy to come back and for the loss of vitamins.

So I hope that celiac is the answer to your dd's problems...


Keep us infromed about her progress. I hope she keeps on smiling every single day....! :)

Meline
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Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008

#3 Amyleigh0007

 
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Posted 20 July 2008 - 11:30 AM

For the first few gluten free days my son had an upset stomach (which he did not really have pre-dx) and had to run to the bathroom frequently. Then, everything was fine. It has been 4 months and he has gained 7 pounds and all of his jeans hit him on his shins. I told him today he has grown more in the last 4 months than he has in the last 4 years! This is my opinion only, but, I would insist on testing for Celiac before your daughter goes gluten free. Once she is gluten free there is a big chance the test would be a false negative if you were to test her later. My son has Celiac but neither I or his dad have it. So, we are thinking he got it from either my mom or his mom (both have major symptoms). It can skip a generation.
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Amy

1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.

#4 ShayFL

 
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Posted 20 July 2008 - 11:38 AM

Or if she keeps responding pos. to the diet, then you can get the genetic tests. To me....if she has the genes and the diet works...then she is Celiac and no need for an endoscopy or worry over "false negatives". But that is just me.
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GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

#5 my3monkees

 
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Posted 20 July 2008 - 12:16 PM

OMG! I have been researching gluten all over the internet. I just found out that it can manifest in tooth problems. My dd has had so many dental problems over the years. No one could ever suggest a reason. I have gotten so frustrated over the years, I knew her teeth were being brushed well. I did it myself, to be sure for years. Used flouride rinses etc.. But in all her years of going to the dentist we have only gone one or 2 visits without having to go back for fillings. She has ended up with pulled teeth, a retainer, caps, coatings. She barely has a teeth in her mouth that hasn't had work done on it. I'm not even sure anymore how many, have fillings. As I only let them use white fillings on her permenant teeth.
If this diet works, I could care less about tests! LOL My mom has been gluten free for almost 30yr. without an "official" diagnosis. I don't think it existed back them. Doctor just said if you feel better than, go with it!

My dh just came back from McD with her and my youngest. She likes the chipolte wraps, so I told her to get the filling without the wrap. I know the sauce may be bad, but its a start. She also got french fries. She came home so excited, she still feels good and didn't have to go the bathroom at McD's!!
She doesn't even like McD's because she usually ends up feeling yucky, and running to the bathroom. We have been chalking it up to greasy food. McD is all junk anyway, so I don't even like to go there anyway! But dh loves it, he is still a kid at heart! LOL
Thanks!
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