Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Long Till Improvement Shows?
0

5 posts in this topic

My dd is 11 and we just started her on a trial gluten free diet. She gets upset stomch, very, very easy. She runs to the bathroom after almost every meal. We do know she is somewhat lactose intolerant, can't eat choclate or quite a few artificial sweetners. But her problems seem to be getting worse, no matter how closely we watch what she eats.

I am also getting concerned with her weight. She is 4' 9"or 10" and only 68lbs.

I told the ped. that my mother was celiac, but she didn't seem very concerned about her problem being celiac. The only test she is sending her for right now is a lactose test, too see if her intolerance is worse than we thought.

But she did say to do 3 different trial elimination diets: gluten, dairy, fruit.

We opted to do gluten first, to me that was the easiest! I grew up with it! LOL

Today was only day 2. After breakfast she comes to me all smiles. Telling me she didn't feel sick after eating. She usually gets somewhat crampy after almost every meal.

We get to our meeting and she is all smiles telling Grandma, how good she feels. I never realized that she felt that bad before! :(

My dd who quite frequently has moody, tempermental spells. Was all smiles! It was wonderful!

But it has only been 2 days. How can 2 days make a difference? I'm half afraid, it was just a fluke and we will go back to normal tomorrow. On the other hand I'm half afraid it isn't, and I will have to put her on a gluten free diet. I know its much easier now, than it was when my mom went gluten free almost 30 yr. ago, but still??

Any thoughts, ideas or just encouragement would be greatly appreciated!

Thanks from a newbie!! :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello..

Well the stomach problems are the ones that get better first. It makes sense. once you exclude the guilty food you stop running to the bathroom.When we say that it takes time for celiac symtpoms to go away , we mean that It takes time for the energy to come back and for the loss of vitamins.

So I hope that celiac is the answer to your dd's problems...

Keep us infromed about her progress. I hope she keeps on smiling every single day....! :)

Meline

0

Share this post


Link to post
Share on other sites

For the first few gluten free days my son had an upset stomach (which he did not really have pre-dx) and had to run to the bathroom frequently. Then, everything was fine. It has been 4 months and he has gained 7 pounds and all of his jeans hit him on his shins. I told him today he has grown more in the last 4 months than he has in the last 4 years! This is my opinion only, but, I would insist on testing for Celiac before your daughter goes gluten free. Once she is gluten free there is a big chance the test would be a false negative if you were to test her later. My son has Celiac but neither I or his dad have it. So, we are thinking he got it from either my mom or his mom (both have major symptoms). It can skip a generation.

0

Share this post


Link to post
Share on other sites

Or if she keeps responding pos. to the diet, then you can get the genetic tests. To me....if she has the genes and the diet works...then she is Celiac and no need for an endoscopy or worry over "false negatives". But that is just me.

0

Share this post


Link to post
Share on other sites

OMG! I have been researching gluten all over the internet. I just found out that it can manifest in tooth problems. My dd has had so many dental problems over the years. No one could ever suggest a reason. I have gotten so frustrated over the years, I knew her teeth were being brushed well. I did it myself, to be sure for years. Used flouride rinses etc.. But in all her years of going to the dentist we have only gone one or 2 visits without having to go back for fillings. She has ended up with pulled teeth, a retainer, caps, coatings. She barely has a teeth in her mouth that hasn't had work done on it. I'm not even sure anymore how many, have fillings. As I only let them use white fillings on her permenant teeth.

If this diet works, I could care less about tests! LOL My mom has been gluten free for almost 30yr. without an "official" diagnosis. I don't think it existed back them. Doctor just said if you feel better than, go with it!

My dh just came back from McD with her and my youngest. She likes the chipolte wraps, so I told her to get the filling without the wrap. I know the sauce may be bad, but its a start. She also got french fries. She came home so excited, she still feels good and didn't have to go the bathroom at McD's!!

She doesn't even like McD's because she usually ends up feeling yucky, and running to the bathroom. We have been chalking it up to greasy food. McD is all junk anyway, so I don't even like to go there anyway! But dh loves it, he is still a kid at heart! LOL

Thanks!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,535
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,640
    • Most Online
      3,093

    Newest Member
    Kasia2016
    Joined