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Dangerous Grains
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I just finished the book "Dangerous Grains" by Hoggan and Braly. I thought it was very well-written, totally fascinating and covered topics I hadn't encountered in other books including the "leaky gut" concept. (I also got a lot out of the chapter on various tests.)

I learned that a "leaky gut" caused by gluten intolerance can allow substances to pass through the intestinal wall directly into the bloodstream where they can travel anywhere in the body and cause mischief. In other words "malabsorption" can mean not only NOT getting nutrients you need but also getting various substances that might be harmful when they are at large in your bloodstream. Perhaps this explains the wide range of symptoms in celiacs--any place blood goes might be "visited" by unwelcome intruders!

The take home message for me is that healing the intestine as quickly as possible to plug up the leaks is all important. I suspect that being super, super strict in the earliest days of recovery would be especially helpful. That is, for 3-6 months restrict the diet to whole foods that are non-gluten-free with NO additives. Then, after the majority of healing has occurred you can branch out into more processed, but still gluten-free, foods.

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Hi Yankee,

I am on that type of diet per my nutritionists advice and am starting to feel better. I have been on a very strict diet to start out with, but am gradually adding a few things here and there back in to see how I feel. I highly recommend this to anyone - it helps you detox and break it down to see how it feels to feel better before you add anything back in. When you are so sick all the time it's very difficult to cope, but having a strict diet to follow has helped and I'm at the point where I can start adding things back in and it's liberating :).

Lily

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Yankee, Excellent info on Grains:

Several days ago I tried making spaghetti with Tinkyada brand wheat free / gluten-free brown rice pasta, but it states on the bag, From Whole-Grain, I also made 1.5 lbs of fresh turkey burger, made into 1.5 inch chunks,

but I did use some seasoning, which after a few months of cooking with it seems to have been ok, used garlic, onion, lawry's salts, and some black pepper, then mixed in 1 jar of Classico's Tomato & Basil red sauce, which the company states that all their sauces are 100 percent gluten-free, and it seems I have been reacting to this, I even tried just eating the noodles, but could not tell since I was already reacting.

I thought I've been eating good enough for the past 2 to 3 months as I have been getting better, and getting back to being " Regular " but something is causing me to react again, and I feel as per my testing done by my chiropractors holistic testing, he told me that grains and dairy were my biggest concerns, rather I had a defence to the wheat test, so how do we avoid grains without wheat?

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When you are new it usually helps to take a good quality (high in nos. of organisms) gluten free probiotic to promote healing in the gut, and often some digestive enzymes to help break down your food since it is the longer chain (not broken down) amino acids getting through the leaky gut which create the mischief.

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
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