Posted 17 March 2004 - 09:57 AM
Posted 17 March 2004 - 11:40 AM
Thanks for the reply! I need to ask my doc what happens if this endo is "normal". He was quick to think I have celiac disease--he said it is much more prevalent than what was once thought (obviously), but he said if I had it I don't have to "do" anything if I don't want. After researching, I am thinking how could he say that? I am a poster child for osteoporosis as it is--why would I not waqnt to do something to help myself? I am already iron deficient now--I was just surprised he was so cavalier about it. If my endo is normal then it is going to be up to me I guess to go gluten-free to see if it helps, but is their a blood test that is diagnostic when you are consuming gluten? I had a celiac panel, but doc says it alone is not diagnostic.
Posted 17 March 2004 - 10:44 PM
I belong to a huge health system here in NW washington, and their big thing right now is endo endo endo. They are waaaaaay behind in knowledge as far as celiac disease is concerned. It was just a few months ago that they were still running on the idea that all people with celiac disease were emaciated and wasted. I've found doctors to be very cavalier about it.
So, it really is, i think in most cases, up to us to do what we know we need to do.
Posted 18 March 2004 - 02:32 PM
Posted 18 March 2004 - 02:46 PM
Some doctors think that biopsies can yield a "false negative" which means it looks like you DON'T have celiac disease when actually you do. Interpretation of results is subjective. Also, there is the chance they won't sample your intestine at a spot where there is damage. So, even if your biopsy is negative and your doctor says you don't have celiac disease, you might STILL want to try a gluten-free diet to see how you feel.
The world of medicine is much murkier than I would like to believe.
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