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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Swollen Ankles And Feet
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31 posts in this topic

with all my other symptoms there is one that stands out and that is swollen ankles and feet. I have heard this is due to malabsorbtion. Is this true? I also wake up in the middle of the night sometimes feeling sweaty.

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with all my other symptoms there is one that stands out and that is swollen ankles and feet. I have heard this is due to malabsorbtion. Is this true? I also wake up in the middle of the night sometimes feeling sweaty.

My Dr. told me that can be from protein malabsorption.

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My Dr. told me that can be from protein malabsorption.

I have read that swollen ankles / feet can be due to an allergic reaction to something. I have that problem often and especially if I have had gluten in something. A doctor once told me that it can be a sign of heart disease, due to poor circulation.. I think in my case it is allergic reactions/symptoms.

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I have read that swollen ankles / feet can be due to an allergic reaction to something. I have that problem often and especially if I have had gluten in something. A doctor once told me that it can be a sign of heart disease, due to poor circulation.. I think in my case it is allergic reactions/symptoms.

Hopefully I will get my test results back the early part of this week. I ve been through all kinds of testing. The last test is Sprue. If this is negative than my dr wants to run tests on the heart. They swell so bad sometimes my shoes do not fit.

I have found that going out to eat is very hard. By the time I am done eating I have to run to the bathroom. Cooking at home is alot better.. But lately I havent felt like cooking. I get nauseated just smelling the food. Once I start eating it is not so bad.

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I also wake up sweaty. I have a thyroid condition related to celiac called Hashimoto's Thyroiditis. I sometimes get sweaty after eating also. Anyway, you might want to ask your doc to do a thyroid panel..

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I also wake up sweaty. I have a thyroid condition related to celiac called Hashimoto's Thyroiditis. I sometimes get sweaty after eating also. Anyway, you might want to ask your doc to do a thyroid panel..

alright, sounds like good advice.. Tonight my grandfather which is 81yrs old and doesnt look a day over 70 asked me to take him to golden corral which is a buffet. Reluctantly I took him and ate a salad with ranch dressing and a potato and green beans. 30 minutes later I bent my key in the door trying to get to my bathroom. At the time it wasn't funny but..ha I didnt think that would hurt, but it did.

Thanks for talking

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alright, sounds like good advice.. Tonight my grandfather which is 81yrs old and doesnt look a day over 70 asked me to take him to golden corral which is a buffet. Reluctantly I took him and ate a salad with ranch dressing and a potato and green beans. 30 minutes later I bent my key in the door trying to get to my bathroom. At the time it wasn't funny but..ha I didnt think that would hurt, but it did.

Thanks for talking

Stupid flimsy keys! :P Well, it sure sounds like you had a reaction to something you ate. I used to have constant problems with digestion, before going gluten free. They say the blood tests need to be done prior to going off the gluten, or the results may be wrong. They can do a gene test for it also, although that only shows the possibility of having celiac, not everyone with the genes develops celiac. It was nice of you to go out with the granddad though. Maybe you can find a gluten-free friendly restaraunt next time. Like PF Chang's, or Outback Steak House. I hope you find out soon what the issue is, and start feeling better!.

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Stupid flimsy keys! :P Well, it sure sounds like you had a reaction to something you ate. I used to have constant problems with digestion, before going gluten free. They say the blood tests need to be done prior to going off the gluten, or the results may be wrong. They can do a gene test for it also, although that only shows the possibility of having celiac, not everyone with the genes develops celiac. It was nice of you to go out with the granddad though. Maybe you can find a gluten-free friendly restaraunt next time. Like PF Chang's, or Outback Steak House. I hope you find out soon what the issue is, and start feeling better!.

Same thing happen this morning when I had breakfast. I had eggs (2) and fruit. Got sick and I am starving and nauseated at the same time. doesnt make sense.

thanks for replying

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Same thing happen this morning when I had breakfast. I had eggs (2) and fruit. Got sick and I am starving and nauseated at the same time. doesnt make sense.

thanks for replying

Maybe you aren't a fruit and eggs person eh? Just kidding. Well, nausea might be caused by gas. At times I have started eating and after a bite or 2 couldn't even swallow anymore, due to stomach gas going crazy. Sometimes I thought my stomach would explode or something equally gross and spectacular. Head popping off and shooting into space or something. So far it hasn't happened, at least not literally.

I am taking a tough look at yeast and sulfites right now. Taking some time off from any gluten-free beers, wines etc to see if my feet swelling reduces. So far it seems to help. If you get through with the docs and still don't have an answer, you might want to try an elimination diet.

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Maybe you aren't a fruit and eggs person eh? Just kidding. Well, nausea might be caused by gas. At times I have started eating and after a bite or 2 couldn't even swallow anymore, due to stomach gas going crazy. Sometimes I thought my stomach would explode or something equally gross and spectacular. Head popping off and shooting into space or something. So far it hasn't happened, at least not literally.

I am taking a tough look at yeast and sulfites right now. Taking some time off from any gluten-free beers, wines etc to see if my feet swelling reduces. So far it seems to help. If you get through with the docs and still don't have an answer, you might want to try an elimination diet.

Maybe your right with the fresh fruit thing. All my limbs are swollen and I really havent eaten too much of anything the past two days. Gosh I sound like a chronic complainer. My grocery store has a whole section dedicated to gluten free stuff. I was totally oblivious to that aisle. Bought a crap (ha-ha) load of things to try. But like you said this might be something else.

A question: When you go out for breakfast, the scrambled eggs are definitely not shell eggs, they must be some kind of already mixed egg. Do you think that has weird ingredients in it? :unsure:

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with all my other symptoms there is one that stands out and that is swollen ankles and feet. I have heard this is due to malabsorbtion. Is this true? I also wake up in the middle of the night sometimes feeling sweaty.

My father has the same symptom you share above - it went away after MONTHS of Gluten free eating. In his case, swollen ankles and feet was caused by his kidney failing - free proteins in the bloodstream can cause nephritis in the kidneys. I would DEFINITELY recommend you getting checked out for kidney problems (if you haven't been checked for this - it is very very serious)!!! Since staying completely gluten free, my father's symptoms have subsided - it took MONTHS though to get better.

Swollen ankles/feet is a sign of fluid retention and usually have something to do with protein problems in the blood stream. The kidneys filter the proteins out of your blood and it makes them work extra hard. I would also check your protein intake and try to limit it and try more fruits/vegetables if you can. I would also highly recommend avoiding ALL Alcohol until you get your fluid retention problem under control because alcohol makes the problem worse - especially if it's your kidney which is having problems - i.e. alcohol stresses the kidney even more filtering it out of your blood too!

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My father has the same symptom you share above - it went away after MONTHS of Gluten free eating. In his case, swollen ankles and feet was caused by his kidney failing - free proteins in the bloodstream can cause nephritis in the kidneys. I would DEFINITELY recommend you getting checked out for kidney problems (if you haven't been checked for this - it is very very serious)!!! Since staying completely gluten free, my father's symptoms have subsided - it took MONTHS though to get better.

Swollen ankles/feet is a sign of fluid retention and usually have something to do with protein problems in the blood stream. The kidneys filter the proteins out of your blood and it makes them work extra hard. I would also check your protein intake and try to limit it and try more fruits/vegetables if you can. I would also highly recommend avoiding ALL Alcohol until you get your fluid retention problem under control because alcohol makes the problem worse - especially if it's your kidney which is having problems - i.e. alcohol stresses the kidney even more filtering it out of your blood too!

Gosh, I've had so many different blood tests. Would the kidneys show up in a regular panel or should I ask for something particular? I very rarely drink alcohol. I had enough of that when I was younger. (too much trouble) Meats have really disgusted me lately. (nausea) Eggs are really the only thing protein wise I can tolerate.

Thanks for the advice I will ask my Dr.

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Gosh, I've had so many different blood tests. Would the kidneys show up in a regular panel or should I ask for something particular?

You should ask your doctor for a simple urine test to see if there is protein in it. If so, the doctor should know which tests to run next to test for kidney problems. My first sign of kidney disease was swollen feet, ankles and lower legs. I'm completely fine now though after being fanatically gluten-free.

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You should ask your doctor for a simple urine test to see if there is protein in it. If so, the doctor should know which tests to run next to test for kidney problems. My first sign of kidney disease was swollen feet, ankles and lower legs. I'm completely fine now though after being fanatically gluten-free.

Thank you, I will ask my Dr. and hopefully she will allow the tests.

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Thank you, I will ask my Dr. and hopefully she will allow the tests.

If you are releasing alot of proteins in the urine, look when you urinate at it. Not to be too graphic, if you have 'proteinuria' then you will have excessive foaming of the urine when you go to the bathroom. You can look about this on the net and find out information. You still need a urine test but it's something you can do.

I have a similar problem as my dad but it wasn't bad enough to cause protein in my urine, it just caused my excruciating back pain. gluten-free and Casein free I've been completely free of any back pain!

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If you are releasing alot of proteins in the urine, look when you urinate at it. Not to be too graphic, if you have 'proteinuria' then you will have excessive foaming of the urine when you go to the bathroom. You can look about this on the net and find out information. You still need a urine test but it's something you can do.

I have a similar problem as my dad but it wasn't bad enough to cause protein in my urine, it just caused my excruciating back pain. gluten-free and Casein free I've been completely free of any back pain!

Always looks fine but I will ask for the test. I am truly appreciative of all the great advice I am receiving.

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I have heard that sometimes some places will put pancake batter in eggs. So that would be a possible source of gluten in scrambled eggs.. Heck, I used to do that myself at home. Mix pancake batter (Bixquick) in the eggs adn they fluff up much more when cooking omelettes.

Interesting info about the kidneys there. Thanks for that!

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I have heard that sometimes some places will put pancake batter in eggs. So that would be a possible source of gluten in scrambled eggs.. Heck, I used to do that myself at home. Mix pancake batter (Bixquick) in the eggs adn they fluff up much more when cooking omelettes.

Interesting info about the kidneys there. Thanks for that!

That is interesting! They are probably alot better. Today all I had was a salad and again barely made it to the bathroom without getting sick. Nausea all day.

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That is interesting! They are probably alot better. Today all I had was a salad and again barely made it to the bathroom without getting sick. Nausea all day.

If you eat out and get salads - make sure they dont mix the salad in the same bowl they mixed salad's with CROUTONS. It would defeat the whole gluten free thing.

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If you eat out and get salads - make sure they dont mix the salad in the same bowl they mixed salad's with CROUTONS. It would defeat the whole gluten free thing.

What about salad dressings. This salad didn't come with croutons. carrots spinach lettuce tomato bacon tbs ranch dressing

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What about salad dressings. This salad didn't come with croutons. carrots spinach lettuce tomato bacon tbs ranch dressing

You'd have to ask which Ranch dressing they used. 1/2 of the Ranch dressing contain gluten and I would bet that was where the problem was.....

You can also (maybe) carry your own salad dressing packets if you find the places you go to eat have salad dressing that you like that contains gluten.

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You'd have to ask which Ranch dressing they used. 1/2 of the Ranch dressing contain gluten and I would bet that was where the problem was.....

You can also (maybe) carry your own salad dressing packets if you find the places you go to eat have salad dressing that you like that contains gluten.

I never think of that stuff. I wish I wasn't so ignorant about this gluten-free, it is all brand new.

\thanks

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Hi Mirabella,

Yep, it probably was the salad dressing. I made that mistake a few weeks ago, myself. I am trying a yeast free diet now and see if that helps the swelling. So far it seems to be helping me. Lets see, gluten free, dairy free yeast free, GFCFYF. Maybe that's the ticket?

Here's a link to an article about baker's yeast antibodies showing up in Crohn's patients. My younger brother had Crohn's. Can't hurt to try it I guess. I am stopping my favorite snack which is peanuts because they are a goitrogen, plus the dry roasted ones have yeast added.

http://www.pubmedcentral.nih.gov/articlere...gi?artid=501007

I hope you feel better soon. Did they get the test results back yet?

Cookie free, wine free, beer free, me, GFinDC

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Hi Mirabella,

Yep, it probably was the salad dressing. I made that mistake a few weeks ago, myself. I am trying a yeast free diet now and see if that helps the swelling. So far it seems to be helping me. Lets see, gluten free, dairy free yeast free, GFCFYF. Maybe that's the ticket?

Here's a link to an article about baker's yeast antibodies showing up in Crohn's patients. My younger brother had Crohn's. Can't hurt to try it I guess. I am stopping my favorite snack which is peanuts because they are a goitrogen, plus the dry roasted ones have yeast added.

http://www.pubmedcentral.nih.gov/articlere...gi?artid=501007

I hope you feel better soon. Did they get the test results back yet?

Cookie free, wine free, beer free, me, GFinDC

Yes the test results came back normal. Im waiting for them to send my results to me. So I can see if they did the correct one. I will post them on this forum when they come in. Today I ate a baked potato, cole slaw and got sick in about an hour. Later in the evening had laCaretta which is mexican and I am feeling fine. What is up with that??

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I found that limiting proteins helped a lot to reduce the swollen ankles and such. Thankfully it's much better now than it was.

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