Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Washington State?


hacilar666

Recommended Posts

hacilar666 Newbie

Hello, I'm in Bellevue, WA anyone from the area?

Link to comment
Share on other sites
  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PaulaJ Newbie

Hi Hacilar - I am from Seattle, WA. Good to know that there are at least two of us in WA that have this problem ;) How long have you been at this and how are you getting along? I've only been "confirmed" since June of this year, so I have some mental adjusting to this to do yet.

Link to comment
Share on other sites
cruelshoes Enthusiast

We are in South King County just north of Tacoma. There are several from the Evergreen State here. :)

Link to comment
Share on other sites
Jestgar Rising Star

Bainbridge island, but I work in Seattle

Link to comment
Share on other sites
tarnalberry Community Regular

I'm in Newcastle, just south of Bellevue. :)

Link to comment
Share on other sites
Juliebove Rising Star

Bothell here.

Link to comment
Share on other sites
Generic Apprentice

I'm in the Puget Sound area but prefer not to give an exact location.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star
I'm in the Puget Sound area but prefer not to give an exact location.

:lol: :lol: :lol: this response totally suits your name!

Link to comment
Share on other sites
rick-spiff Rookie

:( Nobody by us.

Good 'ol Tri-Cities.

Not much celiac action on this side of the mountain.

Link to comment
Share on other sites
sickchick Community Regular

Born & Raised

Link to comment
Share on other sites
BallardWA Rookie

As my tag implies, I am indeed a Seattelite in Ballard, WA. Please, please, please contact me with any and all news re: gluten free in this town. The Flying Apron is an abomination in my opinion. Impromptu is wonderful but pricey. PF Changs - good but not for more than once a month. I recently was in Portland and was amazed at the choices available. It's not that I eat out every night, but when we do go out, I want to eat. You had to see the gluten-free menu Red Robin presented to me yesterday. The entire front page was a disclaimer. I left, telling the befuddled waiter that I was going to get sick if I ate in his restaurant. I'd really love to have someone locally who can help me navigate these waters, so message me! I was finally diagnosed in March via a genetic test. I had been sick since childhood, but no-one had ever put all of the pieces together. Hope to hear from you.

Karen, in Lovely Ballard

Link to comment
Share on other sites
lonewolf Collaborator

I'm from South King County.

Karen - sorry I can't help with the restaurant question. I only eat out at the local health food store deli and Outback (very occasionally). You might want to take a trip to Kent to try out Haley's Corner bakery. I think their stuff is way better than the Flying Apron.

Link to comment
Share on other sites
tarnalberry Community Regular

I like the stuff at Flying Apron in Fremont. (The packaged stuff in the store isn't as good, imho. But the fresh stuff, including just going their for lunch, is good.)

There's Open Original Shared Link in the u-district (the soy cheese isn't very good, but the rest of it's fine ;) ).

There's Open Original Shared Link between Fremont and the U-District.

There's DaVinci's bakery (I don't know the neighborhood), which I don't like as much as Flying Apron myself, which mostly demonstrates that you just have to figure out what *you* like, since gluten-free foods can be so different.

There's Sunlight Cafe just west of Ravenna that has a number of options.

I like the sushi options at Rolls & Rolls Sushi Plus in Bellevue.

I haven't been to Cafe Flora, but I hear it's good, if expensive.

There's regularly a few things I get at Thai Ginger, one in Bellevue, Redmond, or Seattle.

There's a Pizza Works in Bothell.

I hear Portage Bay Cafe has gluten-free options as well.

And there's Sunny Valley Wheat Free in Maple Valley, which I haven't been to yet.

Of course, there's often a number of gluten-free options at the Whole Foods hot bar too. ;) (The one in Ravenna is my favorite, the one near REI is good too.)

The stuff at Haley's Corner in Kent is good too.

Z'Tejas has a gluten free menu as well, and I've enjoyed a couple of meals there.

Remember that a lot of places don't necessarily have "gluten free menus" but may still know about gluten and can help you - at least, this can be the case in small places that are picky about their ingredients.

Link to comment
Share on other sites
  • 4 weeks later...
gfseattle Newbie

I am newly diagnosed and new to the board of course, :D I live in Mill Creek.

I am only into week three of figuring this all out so any help would be greatly appreciated!

Link to comment
Share on other sites
Generic Apprentice

Madame K's in Ballard offers a gluten-free rice tortillia crust pizza and some gluten free pasta. (I haven't been in a long time so you may want to call and confirm they still have it). Garlic Jim's in Mukilteo on Mukilteo Speedway has a gluten free pizza crust. Manna Mills health food store in Montlake Terrace has a huge selection of gluten-free stuff, including rolls, doughnuts, pastas, crackers, cookies, etc.

Link to comment
Share on other sites
Generic Apprentice
:lol: :lol: :lol: this response totally suits your name!

<_< I've have an e-stalker issue and try to remain annonymous. It sucks

Link to comment
Share on other sites
Juliebove Rising Star
I am newly diagnosed and new to the board of course, :D I live in Mill Creek.

I am only into week three of figuring this all out so any help would be greatly appreciated!

Hi neighbor! Central Market has a lot of gluten-free stuff. Also Tru Health in Bothell. The owner has celiac. They are very good to special order things if they don't have them in stock.

Link to comment
Share on other sites
Juliebove Rising Star
I like the stuff at Flying Apron in Fremont. (The packaged stuff in the store isn't as good, imho. But the fresh stuff, including just going their for lunch, is good.)

There's <a href="Open Original Shared Link Advertisement/biz/pizza-pi-vegan-pizzeria-seattle" target="external ugc nofollow">Pizza Pi</a> in the u-district (the soy cheese isn't very good, but the rest of it's fine ;) ).

There's Open Original Shared Link between Fremont and the U-District.

There's DaVinci's bakery (I don't know the neighborhood), which I don't like as much as Flying Apron myself, which mostly demonstrates that you just have to figure out what *you* like, since gluten-free foods can be so different.

There's Sunlight Cafe just west of Ravenna that has a number of options.

I like the sushi options at Rolls & Rolls Sushi Plus in Bellevue.

I haven't been to Cafe Flora, but I hear it's good, if expensive.

There's regularly a few things I get at Thai Ginger, one in Bellevue, Redmond, or Seattle.

There's a Pizza Works in Bothell.

I hear Portage Bay Cafe has gluten-free options as well.

And there's Sunny Valley Wheat Free in Maple Valley, which I haven't been to yet.

Of course, there's often a number of gluten-free options at the Whole Foods hot bar too. ;) (The one in Ravenna is my favorite, the one near REI is good too.)

The stuff at Haley's Corner in Kent is good too.

Z'Tejas has a gluten free menu as well, and I've enjoyed a couple of meals there.

Remember that a lot of places don't necessarily have "gluten free menus" but may still know about gluten and can help you - at least, this can be the case in small places that are picky about their ingredients.

I like some of the stuff from Flying Apron. And shame on Central Market for no longer carrying their stuff! Daughter liked the triangular scones and the round berry pastries. Also the cupcakes. More recently we went to PCC in Edmonds. I got her some kind of apricot pastry and she liked it all but the apricots on the top. Got 3 other things that were different than what they used to sell at Central Market, but no report back on those yet.

We have ordered birthday cakes from there several times. They are crumbly, but... We do have additional food allergies and they are the only thing that fit our diet. I couldn't make any better myself. I don't normally like or eat cake, but I do like those. We have only ever gotten the chocolate. Once with mint frosting. I think that was a mistake! But it was good.

I have not actually been to the bakery, but my parents have and they brought us back some stuff. A couple of pizzas. I loved them. Daughter hated. Some sort of thing that I thought would be a cookie, but it was thick and hard. Not so good. And a loaf of bread that was like a brick. They have bought the cinnamon rolls and said they were good but very crumbly.

Link to comment
Share on other sites
gfseattle Newbie

Thank you all so much! This really helps, I am a bit lost.

Link to comment
Share on other sites
Jestgar Rising Star
Thank you all so much! This really helps, I am a bit lost.

So were we all once too. It does get easier.

Link to comment
Share on other sites
gfseattle Newbie
Hi neighbor! Central Market has a lot of gluten-free stuff. Also Tru Health in Bothell. The owner has celiac. They are very good to special order things if they don't have them in stock.

That is awesome to know thanks so much!

Link to comment
Share on other sites
  • 5 weeks later...
G-man Newbie

Hello All,

I live on the Kipsap Peninsula, and have not yet been diagnosed. My mom has had some tests come back positive, and since doing all my follow up work, I am amazed with all the things that could be explained that I have experienced. My local doctors blow! I have had to re-schedule an appt. twice due to thier neglegence. Could anyone recommend a good doctor that I could visit and skip all the back-country practitioners out here in no-man's land? I am sooooo frustrated right now. I have been seen by incompetent doctors starting in 1990! when I was in the Navy. I managed to escape from the Navy with the loss of only one organ! (Appendectomy) Any and all help would be greatly appreciated. My mom did give me the info on the tests I need......... I will rant more if someone out there is interested! no need to bore most of you with the details, just be assured I have been miserable just like many of you.

Thanks in advance

Link to comment
Share on other sites
Jestgar Rising Star

Are you willing to haul your tushy to Seattle? You have the most options in the big city.

Link to comment
Share on other sites
G-man Newbie

I would, especially if it means cutting to the chase! I feel like I am wasting alot of my time with the care availible out here. :lol:

Link to comment
Share on other sites
Jestgar Rising Star

Open Original Shared Link

This guy runs the gluten intolerance group in Seattle (on Capitol Hill).

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...