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Yet Another "cinderella" Story?


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37 replies to this topic

#1 FaithInScienceToo

 
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Posted 11 February 2005 - 03:10 PM

[FONT=Arial][SIZE=1][COLOR=blue]

Here I sit, hopeful that I have foud the answer to many questions...

Hi, all - I wanted to introduce myself, and thank you all for the posts I have been reading...

My name is Gina, and I live in Northern Cal. I have been on a self-imposed gluten-free diet now for 6 weeks, and have had excellent results, although I still have some symptoms, but I believe it is because I hadn't yet found all of the sources of hidden gliadin in my diet, and also because I may be dairy-intolerant, too.

I just sent off for a stool test kit, even though I have an appt. with a new gastroenterologist in about 10 days. I plan to do my own 'testing,' though, as I alredy know that there is no way that I will eat gluten again intentionally...and the doc will not be able to do conclusive blood testing on me at this point...and I am afriad of the invasive test...I've had enough invasive tests...besides, after all I've read, I simply won't eat gluten again, no matter what the tests results...My family is full of 'digestive problems' and my mom's 100% Irish...and my history is SO classic of gluten-intolerance, it's both scary and a relief...

Anyway...I was reading some of the posts here, and I had tears of joy come to my eyes...so, I HAD to write and say thank you...thanks for sharing, and I feel I have found a place to find many answers...from kindred spirits. I also wanted to share my story...

My history:

Many stomach pains as a kids, dismissed by my parents...they had 6 of us to deal with..
Very skinny as a kid - siblings joked about it...friends, too...
Thin still as a adult, no matter what I ate - became the envy of other women...but I always said in return that I hated 'being a weakling'...

Diagnosed with IBS in grad school. often doubled-over in pain in tears...
Was prescribed Librium...
Worked in South Central LA as a teacher, pre and post 'the riots'...
My condition got MUCH worse during those stressful years...did not see another doc...just felt secretly embarassed and 'broken'...

Followed by incurable anal fissures - I bled on a daily basis. had pasty stools that would not entirely pass...finally sought help again...
Followed by MANY invasive diagnostic tests (some painful) by gastroenterologists, to rule out everything BUT Celiac Disease, of course...
Followed by 2 Lateral Internal Sphincterotomies (to enlarge opening)- as I was finally told by one that I was 'anatomically small'...

Followed by small 'leakage' off and on ever since...and continued 'pasty stools'...
Which I have hidden from others ever since...by wearing mini pads daily...
Had 'only' one horrible 'accident' in a store since then (age 43)...WAS TRULY HORRIBLE, but I actually hide that from others, too, as I had on long pants, and went right to restroom, and miraculously cleaned myself before anyone came in...

Additional history...
Diagnosed at age 38 with ADD...
Followed by diagnosis of Fibromyalgia at age 39, by a rheumatologist after referral by a dentist after I complained about jaw pain, and my bite x-rays were normal...(I was positive on 14 of 18 tender points, and negative on all control points)

Saw a Nutrition-oriented Internal Medicine doc to get help with the 'fibromyalgia'...who told me to never ever eat gluten again...I didn't understand why...he didn't explain it...I didn't ask...I only thought his request was not 'a liveable situation in all practicality'....and that he was 'too much of a health nut'...so after 6 weeks gluten and allergy food free and feeling GREAT, I went back to 'normal foods'...

Followed by continued fatigue/pain/minor depression/pasty stools, 'minor' leakage now and then...

Followed by onset of intense night sweats...VERY intense...
Followed by trial of Revival soy supplements daily, after researching perimenopause...
Followed by more intestinal discomforts...(I now wonder if I am soy intolerant, too, or if I just can't digest it well right now...)...got no real help from the soy...

Followed by increase in Paxil Rx from 12.5 mg for minor depression and ADD to 25 mg QD by my GYN for the night sweats...

Moved since then after divorcing, and sweats came back...
Followed by prescription for birth control pills by current GYN...
Followed by SOME abatement of sweats...I 'only' get them pre-period now...

THEN, about 6 weeks ago now, I realized that I will be 48 this year, and that I CANNOT allow this year to pass unless I TRY MY BEST to take care of my health...I was SICK of 'feeling' SICK...

Followed by my remembering what the Internal Medicine doc told me to do - "stop all guten forever" (Dr. Hernandez, in San Antonio) ...
Followed by my getting on-line and trying to figure out why the doc told me 'no more gluten'...

Followed by shock at how many people are affected by gluten, and how damn scary it is...followed by HOPE!

Followed by my learning as much as possible about all of this...deciding I MUST see if it helps me to be gluten-free...followed by trying to be gluten-free...and sharing the decision with my family and my boyfriend...

Well...Last night, I finally looked at EVERYTHING in my litchen and checked all ingredients against 'forbidden and suspect' lists I had found on-line...

Needless to say, I imagine, you all know that half of what I had thought was "OK" was not, or was suspect...

Now...I can't wait to get the stool tests...
And get on with it all..no matter what the gastroenterologist has to say...
based on past experience with them, and with reading all of your posts, I don't expect to see a very well-informed doc...but I will hope...

Anyway...My other happy thing to share is that I now have a lovely man in my life. Paul, who is completely supportive of my doing what I need to do, diet-wise, to feel better...I still haven't told him about ALL of my symptoms...it's all too damn embarassing...but most are 'going away' with the gluten-free diet...so, I now have a lot of hope...[i may copy and past this for him, though,,,so he'll know exactly what I've been going through]...

So...That's my story...

Thanks for listening. I have been, and will be, lsitening to you, too...
Love, Gina
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#2 FaithInScienceToo

 
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Posted 11 February 2005 - 03:28 PM

sorry for all of the typos...missed the preview option...G :unsure:
  • 0
"Get busy living
or get busy dying."


From: The Shawshank Redemption
--------------------------------------------------------------
gluten-free since Jan 1 '05
Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:
Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA
via blood testing 53 days after I began the gluten-free diet on my own:
Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9
Since 30+ = positive for Celiac Disease when ingesting gluten, my doc
diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point
-------------------------------------------
Endoscopy with biopsies, AND colonoscopy with biopsies were done,
only to rule out other possible GI problems (especially intestinal
lymphoma) - My doctor told me the results indicated "no current damage
found" - and that as long as I stay gluten-free, I don't need another
biopsy for ten years.

Follow-up blood testing was done about one year later, by the same
Gastro doc, in Nov '05:
Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)
He then told me my tests results were back to normal, and "Keep up the
good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am
staying gluten-free.
------------------------------------------------------------------------------------------
ADDTIONALLY:
I was also diagnosed as positive for antibodies and autoimmune
response to gliadin by Enterolab, via stool specimen taken 56 days
gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit
---------------------------------------------------------------------
I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:
"positive" for casein antibodies from Enterolab (in Feb '05)
and
"positive" for casein IgG (Elisa) via York Labs' finger-prick blood
test, Sept '05
and continued 'stomach pains,' although nothing compared to before
going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!
**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood
Frequent childhood stomach aches, underweight, picky eater
Tooth enamel problems/excessive cavities in childhood
Diagnosed in 20's with non-allergic rhinitis
Two spontaneous abortions (childless)
IBS diagnosis at age 28 (all better post going gluten-free and casein-free)
["Horrible" digestive problems from ages 32-47 - excess gas,
diarrhea gone post gluten-free!]
Reflux diagnosis at age 35 ('reflux' gone post gluten-free)
ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)
Broke elbow in 2 places, age 39
Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -
taking Calcium and Vit D now)
Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)
Minor depression with anxiety diagnosed at age 42 (taking Paxil)
Skin cancer - squamous at age 43 and pre-melanoma at age 45
Adult acne (this, too, went away, but only after going dairy-free)
Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46
(That's gone now, too!)
Excessive bruising of skin began at age 45:
I was told by derm doc AND family physician "That's just thin, aging
skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual
bruising POST going gluten-free! I can now wear skirts and shorts
again!)


SO many years of being sick...
Hopefully, others will benefit from Science, and the increasing media
attention being given to Celiac Disease and gluten-based illnesses,
and will not have to go through what I, and others on here, have had
to go through.

#3 KaitiUSA

 
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Posted 11 February 2005 - 04:13 PM

That is good to hear :D I'm glad we can help..Also, have you also checked your makeup(esp. lipstick) and other products?It's so great that you are seeing results already I wish you all the best of luck :D
  • 0
Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#4 FaithInScienceToo

 
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Posted 11 February 2005 - 04:31 PM

Thanks for your support, Kaiti :)

Yes, I have been copying and pasting as much info about lipsticks/glosses, etc as I can find on the Net, and on here...

I am happy to say that I have lots of Ecco Bella products already...

Even though I didn't take the doc's advice to go gluten-free 3 years back, I did at least become 'more of a health nut'...I have been taking many good supplements, and I already use many food and cosmetic items that are turning up to be safe...although there are others (including favorites!) that have to be thrown out...
But...a small price to pay for a happier and healthier life...

Best,

Gina...

Ps: Sorry, I voted for and gave money to both Gore and Kerry. Must have been the brain fog from the gluten... (Just joking) ;)
  • 0
"Get busy living
or get busy dying."


From: The Shawshank Redemption
--------------------------------------------------------------
gluten-free since Jan 1 '05
Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:
Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA
via blood testing 53 days after I began the gluten-free diet on my own:
Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9
Since 30+ = positive for Celiac Disease when ingesting gluten, my doc
diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point
-------------------------------------------
Endoscopy with biopsies, AND colonoscopy with biopsies were done,
only to rule out other possible GI problems (especially intestinal
lymphoma) - My doctor told me the results indicated "no current damage
found" - and that as long as I stay gluten-free, I don't need another
biopsy for ten years.

Follow-up blood testing was done about one year later, by the same
Gastro doc, in Nov '05:
Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)
He then told me my tests results were back to normal, and "Keep up the
good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am
staying gluten-free.
------------------------------------------------------------------------------------------
ADDTIONALLY:
I was also diagnosed as positive for antibodies and autoimmune
response to gliadin by Enterolab, via stool specimen taken 56 days
gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit
---------------------------------------------------------------------
I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:
"positive" for casein antibodies from Enterolab (in Feb '05)
and
"positive" for casein IgG (Elisa) via York Labs' finger-prick blood
test, Sept '05
and continued 'stomach pains,' although nothing compared to before
going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!
**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood
Frequent childhood stomach aches, underweight, picky eater
Tooth enamel problems/excessive cavities in childhood
Diagnosed in 20's with non-allergic rhinitis
Two spontaneous abortions (childless)
IBS diagnosis at age 28 (all better post going gluten-free and casein-free)
["Horrible" digestive problems from ages 32-47 - excess gas,
diarrhea gone post gluten-free!]
Reflux diagnosis at age 35 ('reflux' gone post gluten-free)
ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)
Broke elbow in 2 places, age 39
Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -
taking Calcium and Vit D now)
Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)
Minor depression with anxiety diagnosed at age 42 (taking Paxil)
Skin cancer - squamous at age 43 and pre-melanoma at age 45
Adult acne (this, too, went away, but only after going dairy-free)
Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46
(That's gone now, too!)
Excessive bruising of skin began at age 45:
I was told by derm doc AND family physician "That's just thin, aging
skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual
bruising POST going gluten-free! I can now wear skirts and shorts
again!)


SO many years of being sick...
Hopefully, others will benefit from Science, and the increasing media
attention being given to Celiac Disease and gluten-based illnesses,
and will not have to go through what I, and others on here, have had
to go through.

#5 KaitiUSA

 
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Posted 11 February 2005 - 04:40 PM

:lol: It's ok your still cool.

You seem to be really on the right track and if you have any questions don't hesitate to ask.

I had to throw out alot of my makeup too...but as you said just a small price to pay for a happier and healthier life.

Talk to you soon and best of luck :D God bless
  • 0
Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#6 celiac3270

 
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Posted 11 February 2005 - 06:14 PM

Welcome, Gina! You sound very celiac to me--ADD is relatively common with untreated celiac. Also, doctors often say "IBS" when they can't figure out what the problem is. The Irish descent further verifies it and your symptoms sound very much like that of a celiac. Any bloodwork (or an endoscopy, but that's invasive) that you do now will come back negative. You can, however, still get accurate testing without eating gluten. Check out http://www.enterolab.com. People who have used Enterolab have loved it and you can get accurate testing, even if you've been off of gluten for months. Anyway, fire away with any questions you have :)
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#7 flagbabyds

 
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Posted 11 February 2005 - 06:25 PM

Welcome! what part of N. Calif do you live in? I'm in Bay Area
  • 0
Molly

#8 FaithInScienceToo

 
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Posted 11 February 2005 - 08:19 PM

Hi celiac3270 and FlagBabyDS:

celiac3270: Yes, EnteroLab is the lab I found on-line, via an article on here. I'll let you know the results when I get them - and I'll let the doc know, too...I hope he doesn't laugh at me when I tell him I am doing the stool testing...I understand that it is not yet fully accepted by the medical community as 'valid.' But, I have a Master of Science degree - mainly research design and methodolgy, and all that Dr. Fine wrote about the testing seems very logical to me, so I do hope the tests will prove to be 'worthwhile.'

FlagBaby: I live in Lafayette currently, but I am moving in with 'my lovee' soon. He lives in East Oakland - Glenview area, next door to Piedmont. Where are you located? i see you are quite young...but diagnosed as a 'baby'...wow...

...I imagine that you already know of all the best resources for goodies around here...but, just in case you hadn't heard, I learned that the Piedmont area now has a Gluten-free bakery called 'Mariposa' (you can google for their web site) - It was started by a chef from the Calif. Culinary Insitute, in San Fran...You can only order on-line right now, or look for their stuff in 'area specialty stores,' though...

I ordered some gluten-free brownies from 'PatsyPie' (another site I found on-line) - they are on their way...I hope they are good :-) I also bought some brownie mixes...I have now ordered from about 6 on-line sites...am trying to re-stock the pantry :)

But, for the first time in my life, I am putting on weight with 'normal eating'...I guess that means I am beginning to absorb food more efficiently...I am 5'9" and WAS 124...I think I am about 130 now...only took 6 weeks...I better start emphasizing the vegies...AND getting my rear end back to the gym!

It's funny to have to be concerned about putting on 'too much weight' now...a VERY ODD feeling for me, especially when I am happy about it!
  • 0

#9 FaithInScienceToo

 
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Posted 11 February 2005 - 08:22 PM

:lol: It's ok your still cool.

Kati: THanks, You're still cool, too, even though... ;)
  • 0

#10 pixiegirl

 
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Posted 12 February 2005 - 04:54 AM

Hi Gina! Welcome to the list.. I think a lot of us have somewhat similar stories in that we have been diagnosed with everything else first other then celiac. I too had the IBS and lactose intolerance thing and my blood work for Celiac came back saying I do not have Celiac. I just didn't believe that because immediately after having the blood drawn I went totally gluten-free and in days 90% of my symptoms were gone, and like you, I had years worth of symptoms...

My doctor apparently relies on the blood test because he specifically told me, start to eat grains again you need them. Well I switched doctors (my new one is somewhat better in regards to the celiac thing) and I paid for the EnteroLab testing. It came back that I have the two "main" genes for celiac. NO KIDDING, I knew this. My current doctor wanted to do the invasive tests to be sure, but I don't need that. I know this is what I have.

Every time I've accidently ingested gluten since going gluten-free I'm sick as a dog, so its pretty clear. So don't feel badly if doctors don't support you in this, if going gluten-free cures your symptoms then to me thats the answer. I finally talked my mom into going gluten-free, she has had the runs for years and has seen doctor after doctor and guess what, 5 days after going gluten-free they were gone. But she cheats because she can't live without bread, sigh.

This weekend I'm making her some Manna by Anna bread, I ordered a case of it and its unreal! The best gluten-free bread I've ever had and better then many regular (flour) breads I've eaten. So if you need bread or sandwiches, try this stuff, its awesome!

good luck, Susan :D
  • 0

#11 KaitiUSA

 
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Posted 12 February 2005 - 07:12 AM

FaithInScienceToo-Thanks :D

If you need help with anything let me know and if you have any questions just ask away :D
  • 0
Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#12 FaithInScienceToo

 
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Posted 12 February 2005 - 08:26 AM

PixieGirl:
Thanks for the kind welcome, for sharing your story, and for the info about Manna bread, Susan - I will definitely try the stuff!

Kaiti (AKA, to me, I can't believe you voted for 'you know who' and I can't bring myself to write your ID...haha):
I love ya already! I have a feeling that I will be asking ?s along the way...

I have gotten SO much info already from reading posts on here, but there seems to always be another ?

When I was making breakfact this morning, I realized that I forgot to check out all of the many brands and types of teas I have (I LOVE tea)...I found myself saying outloud to myself, "I see this is going to be one of those never -ending things..." and then thought...yep...there will always be a new product to have to check out...always something more to learn... UNLESS 'they' come up with a way to block those awful proteins...Maybe by the time I am in a nursing home, there will be a drug I can take, so I won't have to worry that 'they' will poison me to death...haha...

Yes, believe it or not, I am ALREADY concerned about: "What ifs"...like, what if I become disbabled and cannot feed myself...Do I now need my medic alert bracelet to also say, "Gluten-intolerant?" (I think I am a bit worried about this because I don't have kiddos that could tell 'them' I can't have gluten, and because I have worked in a hospital...and 'they' make loads of mistakes...).

Hey! There's another question, I guess?! :-)

Best to all -
Gina
  • 0
"Get busy living
or get busy dying."


From: The Shawshank Redemption
--------------------------------------------------------------
gluten-free since Jan 1 '05
Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:
Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA
via blood testing 53 days after I began the gluten-free diet on my own:
Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9
Since 30+ = positive for Celiac Disease when ingesting gluten, my doc
diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point
-------------------------------------------
Endoscopy with biopsies, AND colonoscopy with biopsies were done,
only to rule out other possible GI problems (especially intestinal
lymphoma) - My doctor told me the results indicated "no current damage
found" - and that as long as I stay gluten-free, I don't need another
biopsy for ten years.

Follow-up blood testing was done about one year later, by the same
Gastro doc, in Nov '05:
Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)
He then told me my tests results were back to normal, and "Keep up the
good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am
staying gluten-free.
------------------------------------------------------------------------------------------
ADDTIONALLY:
I was also diagnosed as positive for antibodies and autoimmune
response to gliadin by Enterolab, via stool specimen taken 56 days
gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit
---------------------------------------------------------------------
I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:
"positive" for casein antibodies from Enterolab (in Feb '05)
and
"positive" for casein IgG (Elisa) via York Labs' finger-prick blood
test, Sept '05
and continued 'stomach pains,' although nothing compared to before
going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!
**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood
Frequent childhood stomach aches, underweight, picky eater
Tooth enamel problems/excessive cavities in childhood
Diagnosed in 20's with non-allergic rhinitis
Two spontaneous abortions (childless)
IBS diagnosis at age 28 (all better post going gluten-free and casein-free)
["Horrible" digestive problems from ages 32-47 - excess gas,
diarrhea gone post gluten-free!]
Reflux diagnosis at age 35 ('reflux' gone post gluten-free)
ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)
Broke elbow in 2 places, age 39
Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -
taking Calcium and Vit D now)
Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)
Minor depression with anxiety diagnosed at age 42 (taking Paxil)
Skin cancer - squamous at age 43 and pre-melanoma at age 45
Adult acne (this, too, went away, but only after going dairy-free)
Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46
(That's gone now, too!)
Excessive bruising of skin began at age 45:
I was told by derm doc AND family physician "That's just thin, aging
skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual
bruising POST going gluten-free! I can now wear skirts and shorts
again!)


SO many years of being sick...
Hopefully, others will benefit from Science, and the increasing media
attention being given to Celiac Disease and gluten-based illnesses,
and will not have to go through what I, and others on here, have had
to go through.

#13 tarnalberry

 
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Posted 12 February 2005 - 08:36 AM

Thanks for the heads up on Mariposa (my in-laws live in your home town, so when we're up there for the holidays, I'll have to check it out).

As for the medalert idea... we've had a couple discussions on here about that, and the general concensus is "probably not the best idea, but everyone has to do what they feel is best for them." The strongest argument was that, since celiac is not _immediately_ life threatening, you don't want a paramedic who doesn't know what celiac is to avoid giving you life-saving medicine because he/she is uncertain if the medicine will kill you. Since you have others in your life who would find their way to your hospital room in the event of an emergency, and really, you wouldn't be fed solid food unless you were concious, it's something that could be taken into account after the emergency passes. But I encourage you to go read the links, there were a variety of opinions and arguments (I mean argument in the debate sense, not in the heated argument sense :-) ) that may help you make the right decision for you, whichever way that is.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#14 flagbabyds

 
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Posted 12 February 2005 - 08:43 AM

I'm in Stanford, there is a great coffee shop in mountain view which makes gluten free sandwiches, and they are really good, GLobal Blends of Castro street.
I do wear a medic alert because I also have a wheat allergy as well as gluten intolerance.
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Molly

#15 KaitiUSA

 
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Posted 12 February 2005 - 08:58 AM

FaithInScienceToo-Actually I didn't vote for him. I would have if I could have but I am only 17. I will be 18 in 5 months. That's cool if you call me by my name. I have alot of friends who don't think the same thing I do and I have no problem with that.
I agree that since it is not life threatening it probably wouldn't be the best to have a medic alert bracelet. If someone with celiac goes to the hospital I think the doctors should know about celiac so they don't give us any medications with gluten in it. I think all doctors should have to go back to medical school and take a special course on celiac disease because many of them don't know how much stuff contains gluten.
I know more about celiac then probably most of the doctors :lol: thats sad because they went through medical school and I just started college not too long ago.

Talk to you all soon :D
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Kaiti
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Gluten-free since January 2004
Arkansas

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