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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Enterolab Tests
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6 posts in this topic

What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.

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What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.

I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your lifestyle change based on "your" findings then you might consider another approach. Personally I could care less what anyone else thinks about what I may eat or drink as long as it makes me feel fine. Insurance, school needs for children etc. are factors others consider when facing this decision (further testing). If you are sure that gluten is a factor in your health I would try to find a doctor who might give me a diagnosis based on diet response which would help in being able to request gluten-free for you and your family in the future. I hope this helps.

Tom

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I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your lifestyle change based on "your" findings then you might consider another approach. Personally I could care less what anyone else thinks about what I may eat or drink as long as it makes me feel fine. Insurance, school needs for children etc. are factors others consider when facing this decision (further testing). If you are sure that gluten is a factor in your health I would try to find a doctor who might give me a diagnosis based on diet response which would help in being able to request gluten-free for you and your family in the future. I hope this helps.

Tom

Tom, you know, I "kind a" got a dx. What do you think of this? I went to see my ENT (Ear, Nose, Throat Specialist) for an ear infection, I quickly told him of the onset of seizures for my daughter and how it was gluten related, how I eliminated it and now she is doing well. He casually says, "Oh, that would be celiac". Gets up, puts our charts away and finishes up with us. Subject closed. Of course nothing was added to the chart. He had anothe patient and he was done with her ears.

Amazing from an ENT. CRAZINESS. 9 yrs ago when seeing him regulary for ear problems, I ask him if my dd problems could be related to milk. The answer was NO WAY. Took her off milk, the dripping infections STOPPED. He has come full circle.

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What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.
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Of course your physical reactions will not change whether or not you are tested and I agree that the Enterolab tests can be expensive. However, this is how being tested has influenced me:

Having those results in print in front of me gave me ammunition. Ammunition to fight off the temptations of people saying," just have ONE bite, it is SOOOO delicious and one bite won't hurt you". Well, one bite cetainly can hurt me. It helps give me the courage and confidence to explain and ask for what I need in a restaurant. Wanting to heal my body after seeing the results of those sky-high malabsorbtion scores gives me the determination to read every single lable on foods and supplements, etc. It gives me the wisdom to question everything--what does 'all natural' mean? What is in that chicken broth that you inject in your deli roast chicken? What are those natural flavors? Having the results of those tests in front of me helps me not to give in to temptation and not feel like I am being finicky and picky. For me the price was worth the Validation and resulting Credibility.

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Of course your physical reactions will not change whether or not you are tested and I agree that the Enterolab tests can be expensive. However, this is how being tested has influenced me:

Having those results in print in front of me gave me ammunition. Ammunition to fight off the temptations of people saying," just have ONE bite, it is SOOOO delicious and one bite won't hurt you". Well, one bite cetainly can hurt me. It helps give me the courage and confidence to explain and ask for what I need in a restaurant. Wanting to heal my body after seeing the results of those sky-high malabsorbtion scores gives me the determination to read every single lable on foods and supplements, etc. It gives me the wisdom to question everything--what does 'all natural' mean? What is in that chicken broth that you inject in your deli roast chicken? What are those natural flavors? Having the results of those tests in front of me helps me not to give in to temptation and not feel like I am being finicky and picky. For me the price was worth the Validation and resulting Credibility.

I do see what you are saying in your case. One bite of a cookie gave my dd a seizure she won't forget. This is enough ammunition for me. I think this may be determined by how big the bite is from eating the gluten. ???

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